Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Both Celiac/gluten Intolerance And Ibs Or Leaky Gut?


Mum in Norway

Recommended Posts

Mum in Norway Contributor

After my inconclusive celiac test, I desied to go totally glutenfree. That worked wonders, and for a month I felt better hvat ever. Then out of the blue, eggs started giving me the same symptoms as gluten did. So I stopped having eggs. Then oats startet making me vomit and soy gave me stomace ace. So I stopped having that as well. Now, someting is slightly upsetting my stomace again, and I can't figure out what. It's not bad now, but I have loos stools and some gas, but the joint pain, anxiety, hormone problems and so on are all pretty much gone.

Why do I keep getting all these intoleranses? Is there anything I can do to keep from getting any more or even get some of the foods back? Could this be IBS or leaky gut in addition to celiac/glutenintolerance? If so, how can I know which one? Is there anything to be done about IBs or leaky gut?

I am so feed up with this crap, and doctors dosen't seem to be intrested if its not something they can test for...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master

Try rotating your foods.  Per my doctor, it helps prevent/slow future allergies/intolerances from developing.  At least until your system calms down.  I did a four day rotation years ago when my allergies and intolerances were identified.  I managed to do it for about 8 months to a year.  It was worth it.  I got healthy, had a baby and years later while going through menopause I developed celiac disease!  

 

It might work for you.  

Mum in Norway Contributor

How do I do that? (I know, I could google it and spend the night reading articles on food rotation, but I really don't feel up to it...)

Juliebove Rising Star

Daughter and I have food intolerances and they do keep changing.  Alas for me, they just keep getting more and more.  For her they are lessening!  But we were told by a Dr. never to eat the same thing two days in a row and preferably not the same things more than twice a week.  That makes it insanely hard for us to eat!  I also have gastroparesis so that further limits what I can eat.

 

But the weird thing for me is that the new intolerances for me were not even things I ate a lot of.  Like oats.  I used gluten-free oats in meatloaf.  I made this perhaps twice a year.  I did make a lot at once so enough for at least three meals.  And a few times a year I made an apple crisp.  That was it for me and oats and yet, now if I eat them, I itch all over and get sick to my stomach.

 

The best thing to do is to get some sort of notebook, or I suppose you could do this on your computer if you wanted to.  Make a list of what you ate each day and your reaction (if any).  This may help you to determine what is causing your problem.  Or not, if it is more than one thing.

 

You should also try to plan your meals in advance so that you are not eating the same thing too often.  And remember that your problem food could be one that you never thought of!  I can't have chicken, lamb, or any kind of fish or seafood.  And what was I eating when my stomach was upset?  Chicken broth with a little rice in it.  No wonder it wasn't making me feel better.  I have switched to vegetable broth and have no problems with that.

Mum in Norway Contributor

Thank you! I did some rotation diet-googleing afterall, and it seemd very overwhelming, but the way you put it it seems alot more do-able :)

That is strange, with your intoleranse to oats...!

 

Do you know how your daughter went about to reintroduce the foods? And did she do something first, like a month of probiotics og some suplements or wait a really long time or something?

cyclinglady Grand Master

It's not hard.  Make a list of all the things you can safely eat.  Or....(thinking) put each food on a 5 x 7 card and then group them into four columns on your kitchen table.  Group items you like together.  Make a list.  Post in in your kitchen, carry it in your purse, etc.  Here's a sample:

 

Day 1 -- beef, potatoes, green beans, lettuce, tomato, pears, cantaloupe, oranges, almonds, peas

Day 2 -- pork, apples (applesauce!), sweet potatoes, cabbage, apricots, pineapple, eggs, peanuts, 

Day 3 -- fish, rice, broccoli, bell peppers, kale, zucchini, strawberries, plums, grapes/raisins, kidney beans

Day 4 -- chicken, butternut squash, corn, kiwi, turnips, dates, taro root, mango, walnuts, sunflower seeds, 

 

I think you get the picture.  I started my "day" in the evening. Then I had my dinner for my breakfast or lunch the next day.    Stick to whole foods and you can expand:  pork = bacon, ham, etc.  But in the beginning stick with more simple less processed foods (save the bacon on pork days in a month or two).  Think out-side-the-box for breakfast. 

 

I ended up eating tons of what I once thought were "weird" foods.  It was pretty fun going into ethnic markets and trying new veggies.  Later you might find that you should group food families together (e.g. tomatoes, peppers, potatoes).  But just start taking baby steps for now.  

 

Going on a rotational diet (even with cheating) did help calm down my "fire" (inflammation) and helped my recovery.  I had twelve more years of good health (triathlons and even a baby) before old menopause caught up with me and possibly triggered my celiac disease. 

 

Keep a food journal and record any reactions (remember, many are delayed up to 48 hours).

 

Hang in there!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to HAUS's topic in Gluten-Free Foods, Products, Shopping & Medications
      7

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

    2. - Scott Adams replied to deanna1ynne's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Inconclusive results

    3. - deanna1ynne replied to deanna1ynne's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Inconclusive results

    4. - cristiana replied to HAUS's topic in Gluten-Free Foods, Products, Shopping & Medications
      7

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,438
    • Most Online (within 30 mins)
      7,748

    rednecksurfer
    Newest Member
    rednecksurfer
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      In the U.S., most regular wheat breads are required to be enriched with certain B-vitamins and iron, but gluten-free breads are not required to be. Since many gluten-free products are not enriched, we usually encourage people with celiac disease to consider a multivitamin.  In the early 1900s, refined white flour replaced whole grains, and people began developing serious vitamin-deficiency diseases: Beriberi → caused by a lack of thiamin (vitamin B1) Pellagra → caused by a lack of niacin (vitamin B3) Anemia → linked to low iron and lack of folate By the 1930s–40s, these problems were common in the U.S., especially in poorer regions. Public-health officials responded by requiring wheat flour and the breads made from it to be “enriched” with thiamin, riboflavin, niacin, and iron. Folic acid was added later (1998) to prevent neural-tube birth defects. Why gluten-free bread isn’t required to be enriched? The U.S. enrichment standards were written specifically for wheat flour. Gluten-free breads use rice, tapioca, corn, sorghum, etc.—so they fall outside that rule—but they probably should be for the same reason wheat products are.
    • Scott Adams
      Keep in mind that there are drawbacks to a formal diagnosis, for example more expensive life and private health insurance, as well as possibly needing to disclose it on job applications. Normally I am in favor of the formal diagnosis process, but if you've already figured out that you can't tolerate gluten and will likely stay gluten-free anyway, I wanted to at least mention the possible negative sides of having a formal diagnosis. While I understand wanting a formal diagnosis, it sounds like she will likely remain gluten-free either way, even if she should test negative for celiac disease (Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If her symptoms go away on a gluten-free diet, it would likely signal NCGS).        
    • JoJo0611
    • deanna1ynne
      Thank you all so much for your advice and thoughts. We ended up having another scope and more bloodwork last week. All serological markers continue to increase, and the doc who did the scope said there villous atrophy visible on the scope — but we just got the biopsy pathology report back, and all it says is, “Duodenal mucosa with patchy increased intraepithelial lymphocytes, preserved villous architecture, and patchy foveolar metaplasia,” which we are told is still inconclusive…  We will have her go gluten free again anyway, but how soon would you all test again, if at all? How valuable is an official dx in a situation like this?
    • cristiana
      Thanks for this Russ, and good to see that it is fortified. I spend too much time looking for M&S gluten-free Iced Spiced Buns to have ever noticed this! That's interesting, Scott.  Have manufacturers ever said why that should be the case?  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.