Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Newly Diagnosed Celiac, And Just Glutened


generate

Recommended Posts

generate Newbie

Hi. I was recently diagnosed with Celiac about 3-4 months ago. Actually, I was sort of diagnosed. I was going to doctors for months for issues with low energy, depression, and just feeling overall unbalanced. Finally they did a blood test and said that it looks as if I have celiac. Next was the upper endoscopy. The doctor said that I do have signs that I am in the beginning stages of celiac. I'm not exactly sure how someone "may" have celiac, but thats all I have for answers right now. I'm supposed to go back in another month or so for another blood test after eating gluten-free for a good chunk of time.

 

Anyways, I have been eating gluten free, and definitely feel better and more balanced. My energy levels are much better. The diet is easy for me to maintain on my own, but is still somewhat of a challenge when I go out with friends or family. That brings me to my next issue...

 

Tonight I went out for sushi. I ate a piece of one roll and realized after I ate it that there was tempura in it. My stomach is definitely acting up right now. I guess my question is, after you have been eating gluten free for awhile, does eating gluten just once bring you back to square one? I guess I just want to know if the progress I've made lately has been undone. That might be a silly question. 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



notme Experienced

no, you are just going to hafta suffer through symptoms - your intestines have been healing (hopefully) and one glutening isn't going to undo that -  just get back on the horse :)

 

i haven't tried to have sushi 'out' because of the soy sauce (lots of them are made with wheat)  i use bragg's enzyme as a sub at home.

 

hope you feel better :) 

GF Lover Rising Star

Almost two years gluten free but I am still afraid to eat out :ph34r:

 

That said, when I do attempt a meal away from home, the first thing I do is pull the waiter/waitress to the side and privately explain my situation.  I have them check with the Chef on everything from sauces to seasonings and to make sure they take notice of cc issues (leave my baked potato un-cut).  My meals are usually much simpler than other diners but they are safe.  If I happen to come across resistance then I will not order a meal.  I would much rather miss a meal than pay a hefty price.  Note: there was a learning curve. :lol:

 

Colleen

love2travel Mentor

Tempura batter is almost always made with rice flour but you definitely may have been glutened from a sauce or something. We all make mistakes, even those of us who have been gluten free for ages! Try not to worry about it. Easier said than done, I know, but worrying will not help. It will get better. Honest!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,847
    • Most Online (within 30 mins)
      7,748

    rossick11
    Newest Member
    rossick11
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Colleen H
      Do you or anyone know alot about ibuprofen  I wasn't sure if I was eating too much apple sauce.   Something is making my pain so much worse  I'm referring to the intense pins and needles in my feet and lower legs.  Jaw actually has tardive dystonia and muscle spasms throughout my back Almost like an opposite effect that a pain reliever would do. I'm fairly new to this. Whatever is going on seems to be worsening  Do people get a withdrawal effect from gluten?  It's extremely painful 😖  I'll post that question or research on the site  Thank you everyone for responding 
    • Colleen H
    • Colleen H
      I think I found a huge culprit for severe reactions to create worsening of my c symptoms. Do people with celiac have sensitivity and /or have opposite reaction to certain medications Where can I find a list ?  I'm new here I'm.wondering why I am getting worse when I take certain medicine...the burning feet.  Rebound muscle pain so intense  How many people get opposite effects or have a horrible attack after these meds
    • Colleen H
      Does anyone know if that includes scrambled eggs and healthy smart butter (,gluten free) I add a very tiny amount of margarine less than a teaspoon.  I did no't have any bread    It just seems like no matter what I eat my stomach and nerves over fire and here comes a host of horrible symptoms. My lower abdomen feels horrible, my right leg thigh muscle.. very odd. Jaw pain. Burning feet , joint pain , you name it  The anxiety just creeps up into brain fog. I don't think I could explain this to anyone who is unfamiliar.  Also,  I most likely will not remember posting this until I check it.  This is highly unusual for me because I have an excellent memory.  One weekend before I knew anything about celiac I lost an entire weekend from severe brain fog, confusion, pain, etc.  I honestly thought I was losing my mind. When I think back I recall eating a lot of PBJ sandwiches and turkey sandwiches.  Once again did not know about gluten.  I was just too sick to cook. Do people fast during attacks ?? It seems horrible to keep going through this. I hope I'm not causing my own problems... I wonder if I should fast because I'm not eating gluten .  Chicken ,  scrambled eggs no milk , canned carrots,  gluten free low sugar low fat Greek yogurt which I already posted about 😞 Any suggestions I am open... I am bedridden when this happens to me.  Thank you Celiac community. 🙏🏻❤️      
    • Juliane
      Yeah, that sounds super familiar. When inflammation levels are high — especially at the start of changing your diet — the body often develops a fructose and lactose intolerance. Unfortunately, the only thing that really helps is cutting out anything that isn’t lactose-free or that contains sugar. So basically, stick to meat, veggies, fish…
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.