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Gluten Sensitivity - Concentration

joshy

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joshy Newbie
joshy
Posted

i have just been tested for celiac disease but it has come back negative but since going gluten free for 4 weeks now all of my symptoms which included  constipation, stomach cramps and migraines are all gone  all remains is always feeling tired even tho sleeping 9 hours or more a day, The Main problem i still have is trouble focusing  driving is hard since if i look at the road too long i just day dream    my question is  has anyone had the same problem that has gone away or is this unheared of     please anyone  need help  its effecting my life alot 

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GottaSki Mentor
GottaSki
Posted

Regardless of diagnosis, the fact that you had many symptoms improve after removing gluten indicates you can't tolerate it.  

 

Make sure you are not getting any gluten from processed foods and are preventing cross-contamination.  If you haven't read this thread - it contains valuable information regarding getting the gluten out:

 

Newbie Info 101 - Celiac Disease - Coping With - Celiac.com Celiac Disease & Gluten-Free Diet Forum

 

Additionally, have you had any nutrient testing to see if you are deficient in any vitamins or minerals?

 

Finally, it can take time.  That you have had many symptoms improve is encouraging...it just may take longer to overcome the fatigue.

 

Hang in there :)

bartfull Rising Star
bartfull
Posted

You said you had JUST been tested, and you also say you have been off gluten for four weeks. Were you off gluten when you were tested? If so, you might have gotten a false negative.

 

Anyway, I agree with Lisa - you need to give it more time. Some symptoms clear up more quickly than others. AND you should get your vitamin and mineral levels tested. And you should read the Newbie 101 thread. She pretty much said it all. I just wanted to second it. :)

Dugudugu Rookie
Dugudugu
Posted

It took me half a year to get rid of being tired. You have to give it some time.

dilettantesteph Collaborator
dilettantesteph
Posted

Yes, concentration was a big problem for me.  It did go away gluten free.  It does come back when I get glutened.  My son has the same issue.  I couldn't even concentrate enough to read the newspaper before diagnosis.  He can't do schoolwork when glutened.  We are both super sensitive and had to go to extremes to avoid all gluten.  

joshy Newbie
joshy
Posted
  • Author

Has anyone else get a pain in the chest, right in the middle  hurts when you push on it   seems to come and go,   Also anyone with gluten insensitive notice nerve damage  seem to have muscle spasms in my stomach muscles an arm muscles

dilettantesteph Collaborator
dilettantesteph
Posted

You should do a new thread for that.  I don't think that very many of us read all the threads, at least I don't.

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KCG91 Enthusiast
KCG91
Posted

Glad to hear a lot of your symptoms are better after going gluten-free! After getting diagnosed with coeliac and going gluten-free I still felt really really tired and unable to concentrate (daydreams - me too) until the doctor had another look at my records and realised she should have prescribed me iron supplements for anaemia. D'uh.

 

Even though your bloodwork was negative I'd really recommend getting tested for anaemia or other deficiencies. I'm feeling better within about five days of starting the supplements. For the record - I tried chemist bought ones previously and they did nothing, so IMO it'd be worth trying to get tested and get the prescription ones if it is iron you need. Good luck (and as everyone else has said, give yourself time to recover!). 

dilettantesteph Collaborator
dilettantesteph
Posted

 I'm feeling better within about five days of starting the supplements. For the record - I tried chemist bought ones previously and they did nothing, so IMO it'd be worth trying to get tested and get the prescription ones if it is iron you need. 

 

That's interesting.  I have been hearing a lot about how supplements are unregulated here in the U.S. and sometimes don't contain what they are supposed to.  I'm guessing that you are in the U.K., is that the case there too?

1desperateladysaved Proficient
1desperateladysaved
Posted

Some brands of supplements are tested by an independent lab.  They usually are not the cheapest brands.

KCG91 Enthusiast
KCG91
Posted

At first I took a combined iron + vit C from a large high street chemist (you guessed correctly, I'm a Brit :)) They're once daily contain 60mg Vit C and 1mg Iron. The prescription ones are twice daily, Ferrous Fumarate 210g, 69g of 'elemental iron'. So it probably has a lot to do with quantities but I wouldn't have realised the difference (and what a difference) without trying the prescription ones too. I don't really know about the testing and eggs over here, though.

KCG91 Enthusiast
KCG91
Posted

Eggs? Eggs?! I meant 'regs'. Thank you auto correct.

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    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • MichaelDG
      celiac.com support

      By MichaelDG · Posted

      How do I contact someone at celiac.com concerning the cessation of my weekly e-newsletter? I had been receiving it regularly for years. When I tried to sign-up on the website, my email was not accepted. I tried again with a new email address and that was rejected as well. Thank you in advance!
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