Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Saliva Tests For Antibodies, I Don't Know About These

1desperateladysaved

Recommended Posts

1desperateladysaved Proficient
1desperateladysaved
Posted

I know the forum is constantly holding out antibody blood tests as part of the diagnostics.  I heard yesterday of saliva test for antibodies and wonder if these had been considered   My daughters tested negative to the recommended battery of tests even though they  have symptoms.  I am looking for options and non-options.

 

D

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


nvsmom Community Regular
nvsmom
Posted

I'm afraid I don't know anything about the saliva tests, I don't know how widely accepted or dismissed those are.

 

I just wanted to add that it could be NCGI or early celiac disease so if there are no more tests to be run, she might want to try going gluten-free for a few months to see how she feels.... That's what I had to do with my boys.

1desperateladysaved Proficient
1desperateladysaved
Posted
  • Author

I'm afraid I don't know anything about the saliva tests, I don't know how widely accepted or dismissed those are.

 

I just wanted to add that it could be NCGI or early celiac disease so if there are no more tests to be run, she might want to try going gluten-free for a few months to see how she feels.... That's what I had to do with my boys.

Thanks.  My young adult children really say they would eat normal anyway.  Not sure how they can say that when they have watched their Mom.  The light is dawning though.  Inadvertently struck them sad last night by mentioning someone planned to study unborn deaths to see if the child had celiac disease.  I had heard about it at the summit yesterday and have a daughter interested in doing research this coming summer.  I guess they hadn't realized until recently that celiac is a serious disease, and not just a desire for manipulating with diets.  I won't fail them now, if I can help it.

nvsmom Community Regular
nvsmom
Posted

Good luck.... It scares me that me kids are getting older and they'll have to be responsible for their own health - I hope they treasure it.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,866
    • Most Online (within 30 mins)
      7,748
    Gabrielle Lafond
    Newest Member
    Gabrielle Lafond
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Oh my goodness medication causing pain !!!!

      By Scott Adams · Posted

      Many of us with celiac find that the fillers in medications can cause a reaction, and sometimes our bodies just process things weirdly. That "rebound muscle pain" and "burning feet" you described sounds awful and is a huge red flag. It's frustrating enough managing the diet without medication causing setbacks. So sorry you're dealing with this, but you're definitely on the right track by connecting the dots. You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      Knowing what to do when feeling unwell.

      By Scott Adams · Posted

      It's so tough when you're doing everything right and still get hit with it. I'm glad you're figuring out a system that works for you—the peppermint tea and rehydration powders are smart moves. It sounds like you've really learned to listen to your body, and that's half the battle. Sticking to simple, safe food at home is the best way to build yourself back up. It's great you can take the time to rest properly. Thanks for sharing what works; it's a big help to others figuring this out too. This article, and the comments below it, may be helpful:    
    • Scott Adams
      Celiac and dermatitis herpetiformis has taken Me from Me

      By Scott Adams · Posted

      I am so sorry you're going through this. It's bad enough to fight for a diagnosis and manage this disease, but to have your partner use it as a weapon against you is truly devastating. What you're describing isn't just a lack of support; it's abuse, full stop. Controlling your food and money is cruel, and his pleasure in your misery is chilling. Please hear this: the kindness from that woman at the food pantry is what you deserve. It's a glimpse of the real world, where people care. You deserve to eat, to heal, and to have peace. His actions are the biggest barrier to your health right now, and you are not broken—you are surviving in an impossible situation. Don't give up on that lifeline you've found.
    • Colleen H
      Ibuprofen

      By Colleen H · Posted

      Thank you.. Christina My anxiety is through the roof.  I think it was from eggs.  I really don't know because my eyes feel sore. Like I'm allergic to them.  I was defient in B12.   My heart is pounding and it won't stop.  Not sure what to do.   I don't have much support other than this forum.    Colleen 
    • nanny marley
      Manitol and mri

      By nanny marley · Posted

      Thanks rmj when I first rang up it was we can't do it without , but I talked to a lovely lady and she sorted it all out for me, so it pays to be persistent , I would have had to decline if I hadn't been given the water option too , so yes I'm glad too 😌
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.