Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Sister Doesn't Understand


ryann14

Recommended Posts

ryann14 Rookie

Hey guys, my older sister has recently moved in with my mom and I she eats gluten all the time. But I have also labeled everything and talked to her about cross contamination and everything but she still uses everything and I still get sick because she refuses to understand how sick. Any ways to get her to understand, I was diagnosed in February and living by myself but I came home after a injury. Any ways to get my boyfriends mom to understand.

Thank you, this website is awesome


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

I think your mom should lay down the rules to your sister. It is your mom's house. Does your mom " believe" your diagnosis and cc, etc?

For your boyfriends mom, does your boyfriend " get it"? Maybe he could speak to her first? Or the two of you together? For myself, I wouldn't expect her to fix food for me. But I would want her to understand why I brought my own food for get- togethers.

ryann14 Rookie

I think your mom should lay down the rules to your sister. It is your mom's house. Does your mom " believe" your diagnosis and cc, etc?

For your boyfriends mom, does your boyfriend " get it"? Maybe he could speak to her first? Or the two of you together? For myself, I wouldn't expect her to fix food for me. But I would want her to understand why I brought my own food for get- togethers.

Yea,its my mom's house and my mom has told her thst se needs to stop it but my sister says thatit isn't that bad and if it was then i would move out but i just had surgery (unrelated to celiac) but i can't move just yet. It seems like she doesn't care.

kareng Grand Master

Yea,its my mom's house and my mom has told her thst se needs to stop it but my sister says thatit isn't that bad and if it was then i would move out but i just had surgery (unrelated to celiac) but i can't move just yet. It seems like she doesn't care.

What I'm saying is...if she isn't following your mom's rules, she should move out. But that is for your mom to decide. If your mom thinks the behavior is OK , you will have to work around it. Maybe lock up your safe food? Look at the links on this thread and show them to her and your mom?

https://www.celiac.com/forums/topic/105148-amount-of-gluten-in-single-small-bread-crumb/

KCG91 Enthusiast

Hard as it might be, it's probably worth giving it your best shot to get your sister and boyfriend's mum to understand now. Although my flatmates have been fine with some of the changes I made, I didn't really spell it out to them when I was diagnosed a few months ago because I didn't want to cause too much fuss. Now I can see that there are things they need to change but it's harder to tell them that they're doing it wrong because I let it slide at the start... Just a thought! Hope you can get her to listen. 

Neon rainbow Newbie

Argh, understand your frustration completely.

My partner and I were both living with my dad, step mum (my sb and his mrs too) when I first went gluten-free. So hard to get then too understand, my Stepmum after 6months finally realised I wasn't faking it, and I do get very ill.

Some people just don't want to look past thier own nose.

My dad brushed it off, but I did all the cooking so he just had to deal haha. He still doesn't quite understand what gluten is, and needs his glasses to read labels but he tried.

frieze Community Regular

Hey guys, my older sister has recently moved in with my mom and I she eats gluten all the time. But I have also labeled everything and talked to her about cross contamination and everything but she still uses everything and I still get sick because she refuses to understand how sick. Any ways to get her to understand, I was diagnosed in February and living by myself but I came home after a injury. Any ways to get my boyfriends mom to understand.

Thank you, this website is awesome

it seems to be purposeful, some jealousy or other psych things going on?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to MauraBue's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Have Tru Joy Sweets Choco Chews been discontinued??

    2. - Scott Adams replied to chrish42's topic in Doctors
      5

      Doctors and Celiac.com

    3. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      how much gluten do I need to eat before blood tests?

    4. - MauraBue posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Have Tru Joy Sweets Choco Chews been discontinued??

    5. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      how much gluten do I need to eat before blood tests?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,259
    • Most Online (within 30 mins)
      7,748

    MauraBue
    Newest Member
    MauraBue
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      Some of the Cocomels are gluten and dairy-free: https://cocomels.com/collections/shop-page
    • Scott Adams
      Thank you for the kind words! I keep thinking that things in the medical community are improving, but a shocking number of people still post here who have already discovered gluten is their issue, and their doctors ordered a blood test and/or endoscopy for celiac disease, yet never mentioned that the protocol for such screening requires them to be eating gluten daily for weeks beforehand. Many have already gone gluten-free during their pre-screening period, thus their test results end up false negative, leaving them confused and sometimes untreated. It is sad that so few doctors attended your workshops, but it doesn't surprise me. It seems like the protocols for any type of screening should just pop up on their computer screens whenever any type of medical test is ordered, not just for celiac disease--such basic technological solutions could actually educate those in the medical community over time.
    • trents
      The rate of damage to the villous lining of the SB and the corresponding loss of nutrient absorbing efficiency varies tremendously from celiac to celiac. Yes, probably is dose dependent if, by dose dependent you mean the amount of exposure to gluten. But damage rates and level of sensitivity also seem to depend on the genetic profile. Those with both genes HLA-DQ2 and HLA-DQ8 seem to be more sensitive to minor amounts of gluten exposure than those with just one of those genes and those with only DQ2 seem to be more sensitive than those with only DQ8. But there are probably many factors that influence the damage rate to the villi as well as intensity of reaction to exposure. There is still a lot we don't know. One of the gray areas is in regard to those who are "silent" celiacs, i.e. those who seem to be asymptomatic or whose symptoms are so minor that they don't garner attention. When they get a small exposure (such as happens in cross contamination) and have no symptoms does that equate to no inflammation? We don't necessarily know. The "sensitive" celiac knows without a doubt, however, when they get exposure from cross contamination and the helps them know better what food products to avoid.
    • MauraBue
      Help!  My 5 year old daughter just stopped eating dairy and gluten due to her EoE and Celiac.  Her favorite candy in the world is tootsie rolls.  I did some research, and it sounds like these are the only options for finding something similar, but I can't find them anywhere to actually purchase.  Have they been discontinued??  Does anyone have another recommendation for a gluten-free/DF tootsie roll option?
    • catnapt
      I wonder how long it usually takes and if it is dose dependent as well... or if some ppl have a more pronounced reaction to gluten than others   thanks again for all the great info    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.