Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Trokendi Xr Gluten Free?


jillibean

Recommended Posts

jillibean Newbie

I have been Gluten free for over a year and a half.  I have found that I am super sensative to gluten, even to medications.  The tiniest little pill can make me throw up within an hour of taking it.  The more I have the worse I get, then diarrhia for days, and a 3 - 4 day migraine.  

 

About 2 weeks ago, my doctor switched me from topamax to trokendi xr, the new extended release (for migrianes).  The very first day I was bloated and throwing up.  I thought maybe it was a side effect of the new medicine until a couple days later when my migraines were worse and I was throwing up several times a day.  My husband was the one who pointed out that it seemed like a glutening.  I checked eventhing I had eaten, then my skin products, chapstick, shampoo, eventhing.  I am hypervigilent.  Only the Trokendi XR was different.  I tried calling the company, but of course they are only open when I'm at work. 

 

There is basically no info on this medicine on the internet because it is so new.  I have done a search of the inactive ingredients and a couple could be questionable.  Has anyone else tried this medication?  I will be stopping it anyway, but I thought it might be good to open dialogue about it for people in the future. 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Adalaide Mentor

I think you are either going to have to just call them on a break or lunch, or switch back. Whether the reaction is to gluten or something else, you obviously aren't tolerating the medication for one reason or another and I honestly doubt the reason matters. If you were doing well on topamax, I don't see the point in switching to an extended release beyond pharmaceutical company kickbacks. If you aren't doing well on it, there are other solutions.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,375
    • Most Online (within 30 mins)
      7,748

    Isabellla
    Newest Member
    Isabellla
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Rogol72
      A friend of mine is in the bar trade most of his life and has never heard of lines being mixed for different type of beers and ciders. Better to stick with cans.
    • Rejoicephd
      Thanks very much for confirming my suspicion @Scott Adams! That helps a lot because I'm really trying to track down and get rid of these sources of cross-contact and so I'm going to just rule out the draft ciders and hope that helps. Also @Rogol72 its nice to hear you haven't had a problem on that side of the pond - draft cider lines being used for cider only certainly sounds like the right way to do it, but I think that must not always be practiced over here! 
    • Zuma888
      I didn't ask a doctor about this actually. I did ask several doctors a long time ago and they told me gluten has nothing to do with hashimoto's. One of them told me to do a gluten challenge to test for celiac, but at the time I was in graduate school so couldn't afford to be even more ill than I was. If you have the symptoms, I really don't advise you to do a gluten challenge. It messed me up mentally and physically for months. At the same time, I benefitted from doing the challenge in the sense that it convinced me that all my symptoms were truly from gluten - even stuff like insomnia! So now I am terrified to eat gluten, whereas before I would have a little once in a while and not notice anything dramatic. 
    • Winnie-Ther-Pooh
      I am in a similar situation where I can't feasibly do a gluten challenge but have all the symptoms and I have 2 celiac genes. I'm curious if your doctor advised you to eat as if you had a diagnosis or if they were more dismissive about it. 
    • Zuma888
      Negative, although I had most of the symptoms of celiac disease. I now eat as if I had a diagnosis.
×
×
  • Create New...