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Post Here To Join Celiac.com's Online Support Group With Live Chat Meetings! (Free)


Scott Adams

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dilettantesteph Collaborator

When I tried to look at the meeting transcript I was told that I didn't have permission.


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Scott Adams Grand Master

I'll check the permissions on that, and here is the announcement for the next meeting:

Next Celiac.com Live Chat Meeting: 4/19/2014 @ 2 PM Pacific (Topic: Gluten-Free Travel) 

Scott Adams Grand Master

For those who wanted to read the transcript of our first meeting but had a technical issue, please try again, the link is in this post:

https://www.celiac.com/forums/topic/105252-post-here-to-join-celiaccoms-online-support-group-with-live-chat-meetings-free/?p=909196

  • 4 weeks later...
Scott Adams Grand Master

Hi Everyone,

Just a reminder that we have our next live chat meeting this Saturday at 2PM Pacific:

https://www.celiac.com/gluten-free/forum-22/announcement-4-next-celiaccom-live-chat-meeting-4192014-2-pm-pacific-topic-gluten-free-travel/

 

If you have anything you'd like to share at that meeting please feel free to let me know. Also, I'd love to hear back from those who attended the last meeting, especially if you have any ideas for how we can improve, or anything else you'd like to share.

Scott Adams Grand Master

For a variety of reasons we will have to postpone this Saturday's meeting (4/19) until Saturday, 4/26/14 @ 2PM. My apologies for the short notice, and we hope to see you all then. 

  • 2 weeks later...
Scott Adams Grand Master

Who is planning to attend tomorrow's live chat meeting at 2 PM?

Scott Adams Grand Master

We have to cancel the meeting tomorrow. We'll post here when we reschedule it...sorry for the short notice!!


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    • Scott Adams
      In the U.S., most regular wheat breads are required to be enriched with certain B-vitamins and iron, but gluten-free breads are not required to be. Since many gluten-free products are not enriched, we usually encourage people with celiac disease to consider a multivitamin.  In the early 1900s, refined white flour replaced whole grains, and people began developing serious vitamin-deficiency diseases: Beriberi → caused by a lack of thiamin (vitamin B1) Pellagra → caused by a lack of niacin (vitamin B3) Anemia → linked to low iron and lack of folate By the 1930s–40s, these problems were common in the U.S., especially in poorer regions. Public-health officials responded by requiring wheat flour and the breads made from it to be “enriched” with thiamin, riboflavin, niacin, and iron. Folic acid was added later (1998) to prevent neural-tube birth defects. Why gluten-free bread isn’t required to be enriched? The U.S. enrichment standards were written specifically for wheat flour. Gluten-free breads use rice, tapioca, corn, sorghum, etc.—so they fall outside that rule—but they probably should be for the same reason wheat products are.
    • Scott Adams
      Keep in mind that there are drawbacks to a formal diagnosis, for example more expensive life and private health insurance, as well as possibly needing to disclose it on job applications. Normally I am in favor of the formal diagnosis process, but if you've already figured out that you can't tolerate gluten and will likely stay gluten-free anyway, I wanted to at least mention the possible negative sides of having a formal diagnosis. While I understand wanting a formal diagnosis, it sounds like she will likely remain gluten-free either way, even if she should test negative for celiac disease (Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If her symptoms go away on a gluten-free diet, it would likely signal NCGS).        
    • JoJo0611
    • deanna1ynne
      Thank you all so much for your advice and thoughts. We ended up having another scope and more bloodwork last week. All serological markers continue to increase, and the doc who did the scope said there villous atrophy visible on the scope — but we just got the biopsy pathology report back, and all it says is, “Duodenal mucosa with patchy increased intraepithelial lymphocytes, preserved villous architecture, and patchy foveolar metaplasia,” which we are told is still inconclusive…  We will have her go gluten free again anyway, but how soon would you all test again, if at all? How valuable is an official dx in a situation like this?
    • cristiana
      Thanks for this Russ, and good to see that it is fortified. I spend too much time looking for M&S gluten-free Iced Spiced Buns to have ever noticed this! That's interesting, Scott.  Have manufacturers ever said why that should be the case?  
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