Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How To Identify Another Intolerance After Six Weeks Gluten Free?


KCG91

Recommended Posts

KCG91 Enthusiast

I've been gluten free for six weeks now after diagnosis. I didn't think that I had any other intolerances but I'm beginning to wonder. So it may sound like a stupid question (who am I kidding, it is!) but how do you spot the difference between another intolerance and a possible glutening (shared house...) or something that's just part of the withdrawal/healing process? I had hardly any symptoms prior to diagnosis so I'm not sure yet how I'd react to a glutening. 

I'm considering cutting my diet right back after Christmas to try and check for any other intolerances - it seems like a sensible thing to do given that coeliacs often have other intolerances. However is this something that I should only do if I have real concerns, in case I make myself more sensitive to something by removing it? :S 

My diet is currently pretty varied (I'm vegetarian though) and I'm not a bad cook. How would you guys suggest starting an elimination diet or something if I decide to do that? 

Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



shadowicewolf Proficient

Better question: are you having any issues now? If not, do not worry about it. Not everyone has additional intolerances.

KCG91 Enthusiast

Hard to say. As I said I wasn't particularly symptomatic before diagnosis - I'd had mild bloating/cramps/gas for a few years and then this summer just runner's tummy that took longer to go away. I also had the mucousy BMs which I take to be a sign of malabsorption (as well as severe anaemia and sensitive teeth). 

So - the BMs are normal now so I guess I'm managing to stay gluten-free and am absorbing nutrients better? The bloating, gas and cramps vary by day though, which is why I'm asking if there are clear differences between a glutening, healing and other intolerances. 

w8in4dave Community Regular

After I was Dx'd I found I am having a hard time with corn products. I am about 5 months in. Watch for corn. Corn gives me Gas , Bloating , pain!! Big pain! And bloating!! The thing is .. After I was Dx'd I kinda started eating more corn products, noodles , chips, I always drank a pop now and then .. But I bumped it up! I think Corn was always a prob, But after stoping gluten It was ughhh something is still wrong!! The thing is your Villi need to heal! So cheese , dairy will bother you and the corn products. After your Villi heal you can probably eat them again. I eat cheese products again. It has been 5 months for me. I am not ready for corn stuff as of yet. Good luck!! 

1desperateladysaved Proficient

I eat any given thing only 1 of every 4 days.  I have an eating plan that I can look back at when I notice I have symptoms.  When I wait four days between each day of eating things it seems to get more and more obvious what is causing my trouble as I go on.  When I have undeniable trouble  (last time my tummy was so bloated that I couldn't get a deep breath), I look back and remember if I had the same trouble  (But milder) four days before.

 

How do I know just what caused it?  I don't always, but I recheck ingredients, sometimes I check with the person that made the products I then make a best guess.  Four days later, I skip that item and see if I have trouble or not.  If I don't, I strike off that food for a longer time.  If I do have a problem, I go through the process with the next food that is most suspicious.

 

D

Juliebove Rising Star

In my case, an elimination diet likely wouldn't have helped.  I have issues with sooo many things!  I only figured out eggs on my own after totally eliminating them when daughter was diagnosed with have an IgG allergy/intolerance to them.  Then one day I got salad bar and took some egg salad.  Got sick something like 16 hours later.  Did not know why.  Ate the rest of the egg salad the following day.  2 hours later, sick. 

 

Repeated exact same scenario with egg salad I had made myself, believing the salad bar incident to be food poisoning.  Nope!  Same timing and all.  Never again.  I got lucky that time in figuring it out.

 

I have weird ones too like marjoram, thyme, lovage, cloves and mint.  Never would have figured those out!

Pegleg84 Collaborator

Six weeks is not very long, so you're probably still healing. It's sometimes not a bad idea to drop dairy for a while since it's hard to digest, but unless you're getting worse or having weird symptoms you didn't before, then it's likely just part of the healing process. Be sure to double check your kitchen and food for any lingering gluten.

 

Give yourself a few months at least before worrying about other intolerances. By then you should have mostly healed up, and if something else is wrong then you'll likely feel it.

For future reference though, dairy (lactose and/or casein). soy, corn, nightshades, eggs, etc, seem to be common intoleranes.

 

A digestive enzyme and/or probiotics might help with gas/indigestion.

 

Good luck!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MChase Apprentice

I'm new to Gluten Free too (5 weeks).  I started keeping a food diary (using an app on my phone where I can put in food, medication, symptoms).  I know it takes awhile for things to get better when you go gluten free.  But I noticed  other symptoms were popping up.  I then realized eggs were the culprit.  So I started eating them different ways every 3 or 4 days (scrambled with milk, easy over, hard fried, omelet, even tried in baked goods, just egg whites, just egg yolks).  Every time I ingested any eggs whatsoever, I would have issues within 15 minutes that lasted anywhere from several hours to a day and half (depending on how much eggs I consumed).  I also have issues with dairy.  Digestive wise, I can have some dairy if I take Lactaid, but it causes headaches and sinus issues regardless of how much Lactaid.  I know I didn't realize all the foods that I am intolerant to until going gluten free.  I think because I was always in pain (digestive wise) that I never pinpointed what the culprit was.  I now realize what pains (and other symptoms) are associated to what food. I am sure there are plenty of food that I have realized that I have an intolerance to.  Good luck to you.

 

So far I can't have gluten, wheat (allergic according to a prick test), bananas, eggs, dairy, mushrooms, raw onions, any red onions, garlic powder (fresh garlic seems okay if I use it sparingly).  I also break out if I touch pineapples and ginger (so I try not to ingest those.)  I am also beginning to believe I have issues with white potatoes.  Its a long road.  

 

 

**  For me, I didn't want to do a shared household.  At least not at first.  I didn't want to accidentally get glutened.  So, everyone in the household is  gluten free at home.  What they do on their own time outside of the house, is fine.  They must wash their hands when they get home, so they do not get "gluten" on the fridge, cabinets, packages of food, pantry door, etc.  Even with a teenager, no one has complained.  I just make sure I have gluten free snack foods for him (gluten-free yogurt, bananas, apples, fritos, cheese, nuts, etc).  

MChase Apprentice

Six weeks is not very long, so you're probably still healing. It's sometimes not a bad idea to drop dairy for a while since it's hard to digest, but unless you're getting worse or having weird symptoms you didn't before, then it's likely just part of the healing process. Be sure to double check your kitchen and food for any lingering gluten.

 

Give yourself a few months at least before worrying about other intolerances. By then you should have mostly healed up, and if something else is wrong then you'll likely feel it.

For future reference though, dairy (lactose and/or casein). soy, corn, nightshades, eggs, etc, seem to be common intoleranes.

 

A digestive enzyme and/or probiotics might help with gas/indigestion.

 

Good luck!

Pegleg, 

 

How do you know whether it is lactose intolerant or casein intolerant?

KCG91 Enthusiast

Thank you everyone :) advice duly noted :) Got myself onto some good probiotics and decided to put worrying about 'other intolerances' out of my mind for a while - except for eggs. I have noticed that if I eat eggs alone (boiled, omelette etc) I get not D exactly, but a tender tummy, bloating and gas. Products containing eggs seem to be OK though. Anyone else get this? And does anyone know if it might go away when my villi grow back? Thanks!

cyclinglady Grand Master

Pegleg, 

 

How do you know whether it is lactose intolerant or casein intolerant?

Pegleg, 

 

How do you know whether it is lactose intolerant or casein intolerant?

I am butting in.....milk allergies for me start with sinus issues (start generating mucus within minutes.) Then it is on to indigestion, etc. Garlic makes my mouth tingle and then digestive issues. Gluten always begins with indigestion (burping) and actual stomach (not the small or large intestine) pain. Funny how I did not have noticeable gluten issues before my dx. I guess eating a loaf of bread a day for 7 weeks prior to my biopsy did me in!

I guess if you can safely drink Lactaid milk (with the milk sugar removed) you are just lactose intolerant. I can not eat or drink anything derived from cow's milk. I can have butter in baked goods now. It is probably contains such a small amount of milk proteins that it does not produce noticeable symptoms.

cyclinglady Grand Master

Thank you everyone :) advice duly noted :) Got myself onto some good probiotics and decided to put worrying about 'other intolerances' out of my mind for a while - except for eggs. I have noticed that if I eat eggs alone (boiled, omelette etc) I get not D exactly, but a tender tummy, bloating and gas. Products containing eggs seem to be OK though. Anyone else get this? And does anyone know if it might go away when my villi grow back? Thanks!

I am hoping that all my allergies and intolerances that I have had for over 15 years will go away. I am not holding my breath though!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - xxnonamexx posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Fermented foods, Kefir, Kombucha?

    2. - SamAlvi replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      High TTG-IgG and Normal TTG-IgA

    3. - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    4. - lizzie42 replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    5. - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,875
    • Most Online (within 30 mins)
      7,748

    Jen J.
    Newest Member
    Jen J.
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      I have read fermented foods like sauerkraut, pickles, Kefir, Kombucha are great for gut health besides probiotics. However I have searched and read about ones that were tested (Kefir, Kombucha) and there is no clear one that is very helpful. Has anyone take Kefir, Kombucha and noticed a difference in gut health? I read one is lactose free but when tested was high in lactose so I would probably try a non dairy one. Thanks
    • SamAlvi
      Thanks again for the detailed explanation. Just to clarify, I actually did have my initial tests done while I was still consuming gluten. I stopped eating gluten only after those tests were completed, and it has now been about 70 days since I went gluten-free. I understand the limitations around diagnosing NCGS and the importance of antibody testing and biopsy for celiac disease. Unfortunately, where I live, access to comprehensive testing (including total IgA and endoscopy with biopsy) is limited, which makes things more complicated. Your explanation about small-bowel damage, nutrient absorption, and iron-deficiency anemia still aligns closely with my history, and it’s been very helpful in understanding what may be going on. I don't wanna get Endoscopy and I can't start eating Gluten again because it's hurt really with severe diarrhea.  I appreciate you taking the time to share such detailed and informative guidance. Thank you so much for this detailed and thoughtful response. I really appreciate you pointing out the relationship between anemia and antibody patterns, and how the high DGP IgG still supports celiac disease in my case. A gluten challenge isn’t something I feel safe attempting due to how severe my reactions were, so your suggestion about genetic testing makes a lot of sense. I’ll look into whether HLA testing is available where I live and discuss it with my doctor. I also appreciate you mentioning gastrointestinal beriberi and thiamine deficiency. This isn’t something any of my doctors have discussed with me, and given my symptoms and nutritional history, it’s definitely worth raising with them. I’ll also ask about correcting deficiencies more comprehensively, including B vitamins alongside iron. Thanks again for sharing your knowledge and taking the time to help. I’ll update the forum as I make progress.
    • knitty kitty
      Blood tests for thiamine are unreliable.  The nutrients from your food get absorbed into the bloodstream and travel around the body.  So, a steak dinner can falsely raise thiamine blood levels in the following days.  Besides, thiamine is utilized inside cells where stores of thiamine are impossible to measure. A better test to ask for is the Erythrocyte Transketolace Activity test.  But even that test has been questioned as to accuracy.  It is expensive and takes time to do.   Because of the discrepancies with thiamine tests and urgency with correcting thiamine deficiency, the World Health Organization recommends giving thiamine for several weeks and looking for health improvement.  Thiamine is water soluble, safe and nontoxic even in high doses.   Many doctors are not given sufficient education in nutrition and deficiency symptoms, and may not be familiar with how often they occur in Celiac disease.  B12 and Vitamin D can be stored for as long as a year in the liver, so not having deficiencies in these two vitamins is not a good indicator of the status of the other seven water soluble B vitamins.  It is possible to have deficiency symptoms BEFORE there's changes in the blood levels.   Ask your doctor about Benfotiamine, a form of thiamine that is better absorbed than Thiamine Mononitrate.  Thiamine Mononitrate is used in many vitamins because it is shelf-stable, a form of thiamine that won't break down sitting around on a store shelf.  This form is difficult for the body to turn into a usable form.  Only thirty percent is absorbed in the intestine, and less is actually used.   Thiamine interacts with all of the other B vitamins, so they should all be supplemented together.  Magnesium is needed to make life sustaining enzymes with thiamine, so a magnesium supplement should be added if magnesium levels are low.   Thiamine is water soluble, safe and nontoxic even in high doses.  There's no harm in trying.
    • lizzie42
      Neither of them were anemic 6 months after the Celiac diagnosis. His other vitamin levels (d, B12) were never low. My daughters levels were normal after the first 6 months. Is the thiamine test just called thiamine? 
    • knitty kitty
      Yes, I do think they need a Thiamine supplement at least. Especially since they eat red meat only occasionally. Most fruits and vegetables are not good sources of Thiamine.  Legumes (beans) do contain thiamine.  Fruits and veggies do have some of the other B vitamins, but thiamine B 1 and  Cobalamine B12 are mostly found in meats.  Meat, especially organ meats like liver, are the best sources of Thiamine, B12, and the six other B vitamins and important minerals like iron.   Thiamine has antibacterial and antiviral properties.  Thiamine is important to our immune systems.  We need more thiamine when we're physically ill or injured, when we're under stress emotionally, and when we exercise, especially outside in hot weather.  We need thiamine and other B vitamins like Niacin B 3 to keep our gastrointestinal tract healthy.  We can't store thiamine for very long.  We can get low in thiamine within three days.  Symptoms can appear suddenly when a high carbohydrate diet is consumed.  (Rice and beans are high in carbohydrates.)  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so symptoms can wax and wane depending on what one eats.  The earliest symptoms like fatigue and anxiety are easily contributed to other things or life events and dismissed.   Correcting nutritional deficiencies needs to be done quickly, especially in children, so their growth isn't stunted.  Nutritional deficiencies can affect intelligence.  Vitamin D deficiency can cause short stature and poor bone formation.   Is your son taking anything for the anemia?  Is the anemia caused by B12 or iron deficiency?  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.