Possibly Celiac, Have A Few Questions Please

[missjec]

Hi there

I'm 31 and I'm writing for the uk

I began with loose stools back in April of this year and have only just talked myself round into visiting my gp (was stupidly embarrassed)

I've had diarrhea daily without any pain. I've also lost two and a half stone in weight. My doctor has suggested I could be celiac and I am due to return on Tuesday to have blood tests to determine this.

Today I have eaten as normal and I've not had a bad rush for the loo day. I ate bread for breakfast and I've had two rushes for the loo a good 9 hours later. If I had celiac would it not be expected that I would need to make a dash a lot sooner than that? Or does it take a good time to reach the intestine where the problems start?

Also would I not have furthar symptoms this long after initially starting with diarrhea. I may often get a little tired after eating bread but apart from that and the diarrhea I have no pain cramps or anything

Thank you in anticipation of any response

[nvsmom]

I found that my symptoms waxed and waned but grew in severity as the years passed. As I child, I would get a stomachache after dinner on some nights, usually had C, and developed migraines.  As a young adults, I often became bloated and developed joint pain, and then as I grew older the symptoms became more severe and tended to happen more often... In my experience, symptoms don't always correlate to how much gluten I'm eating when eating it regularly; it was more to due with my overall health, if I let myself get overtired, or even what time of the month it was. It's possible that some people get sick every time they eat it, but I personally did not always get immediate symptoms.

 

You might as well get tested. Some celiacs never have any symptoms, and you have a few.. Make sure you keep eating gluten until all testing is done or it could affect the results.

 

Good luck and welcome to the board.  

[missjec]

Thankyou for your reply anf welcome

I will be sure not to cut out the gluten before my blood test thankyou for sharing your knowledge

[1desperateladysaved]

Some people react to gluten almost immediately, but some take hours or days.

[WestCoastGirl]

I usually don't get the diarrhea until at least a few hours after I've eaten gluten (or dairy). However, conversely, sometimes it will literally be within minutes. I don't think there's an official length of time between ingestion and reaction across the community or even, as in my case, with one specific individual all the time.

 

I hope you feel better soon.

[NoGlutenCooties]

For what it's worth, I didn't have any symptoms at all but my biopsy showed moderate to severe villi damage.  I only got the bloodtest in the first place because Celiac is in my family and wanted a base-line, thinking that for sure it would be negative because I didn't have any symptoms.  I don't think being asymptomatic, especially early on, is all that uncommon.  So to only have one relatively mild symptom is completely realistic.

[missjec]

Thankyou for your replies

My blood test for celiac came back negative.

The doc has however requested more blood tests new years eve as i have raised liver function results?

Im still no better with the diarrhea. This is month 8 and i am at my witts end with it all now as i really have no idea what is causing my very frequent bowel movements.

Could it still be celiac with a negative blood test?

Could it be a gluten intolorence juat not celiac?

Ive lost two and a half stone and im still loosing weight now. Im planning on going gluten free from xmas day see if this has any effects. Could the gluten cause the raised resulrs in my liver function.

Sorry for all the questions its just my doc is rather unhelpful...im based in the uk. I have a furthar docs appointment xmas eve as i was told to go back if im still having diarrhea.

I have no other symptoms. Just severe diarrhea and weight loss. Sorry for too much information but my diarrhea is 9/10 times like a thick watery diarrhea. Ocxasionally i get small rough bits of poo and i can sometimes see undigested food particles in it. Im now at the point where i have to time any wating around leaving the house. I dont know whay to do!

Would you advise cutting out the next lot of liver blood tests? Would this give docs the right result as in getting to the bottom of the issues?

Im grwatful for any replies or ideas

Thankyou

[NoGlutenCooties]

You can have a negative bloodtest and still have Celiac.  You could also be either gluten sensitive or have non-celiac gluten intolerance.  The only way to know for sure if you fall into this category (as far as I know) is to go completely, 100% gluten-free and see if your symptoms go away.  As far as the liver bloodtests, if it were me I would go ahead and let them run the tests.  What could it hurt?  There is always a chance that there is something else going on, and if it were me, I'd want to know.

[missjec]

Thanks for your replies

Im deffinatly going to have the next blood tests go...i mistyped the message was meant to write cut out thw gluten before the next blood tests.

Boxing day i will begin a gluten free diet.

How long could i expect to see a change if it is gluten that is causing my problems?

[nvsmom]

Could it still be celiac with a negative blood test?

Could it be a gluten intolorence juat not celiac?

 

 

Yes and yes. Sometimes the endoscopic biopsy can catch cases of celiac disease that the blood tests miss, if that's something you would consider doing it could clarify the situation more.

 

Some feel better within days, some take weeks or months and others experience withdrawal in the first few weeks and feel worse for a time. It really varies from person to person and from symptom to symptom. Bloating, stomach pain and headaches are generally some of the first symptoms to improve. Pain and nerve issues tend to be at the other end of the spectrum and take weeks to years to improve.

 

Good luck with the liver tests and the gluten-free diet. I hope you are feeling better soon.