Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gave Up Gluten And Feeling Sick

WestCoastGirl

By WestCoastGirl
in Coping with Celiac Disease

Recommended Posts

WestCoastGirl Apprentice
WestCoastGirl
Posted

Hey, all. I'm not a diagnosed celiac. I've known for a long time just on  how I react that I am sensitive to gluten so even if I'm not a celiac, I know I should not have gluten. But I've been putting off giving it up.

 

I have Hashimoto's thyroiditis and have been doing a lot of research lately because I've just been going farther and farther downhill. That's a long story all by itself but last week, the day before Thanksgiving, I decided, Why on earth am I torturing myself? There's a known tie-in between Hashi's and gluten intolerance, I am killing myself, I'm stopping the gluten.

 

Well, I have been feeling progressively more nauseated. :( Is this normal? No one else in my family is sick and I haven't eaten anything "weird". I've had a gluten-substitute food maybe once, it was an Udi's gluten-free bagel, I can't recall having any other actual gluten-free subs. All the rest of my food has been "real food," meat, veggies, and I have been having carbs as always (potatoes, rice) if that makes a difference.

 

I have had zero cheats. I know my labels (I've been researching this literally for years). Even on Thanksgiving I had no gluten at all. I didn't miss it. I had turkey with no gravy, a cauliflower and cheese dish that I brought (YUM, we love this dish in my family), salad and a heap of mashed potatoes.

 

I started feeling nauseated yesterday. All day long. I even had some "icky burps" - sorry - but did not throw up. I did have diarrhea. Now today I am totally thrown for a loop. VERY nauseated and I have pretty severe diarrhea.

 

I'm exhausted as ever so far...

 

Anyone have any ideas? I just feel so terrible right now...in every way. Exhausted from the Hashi's, and now stomach sick.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


NoGlutenCooties Contributor
NoGlutenCooties
Posted

A few things come to mind...  How long have you been completely gluten-free?  Often symptoms improve in a short amount of time, but sometimes it takes awhile.  Some have reported symptoms getting worse at first - part of the healing process.

You may also have other food allergies/sensitivities - which is common with Celiac folks.  For example, being sensitive to food in the nightshade family is pretty common - which includes potatoes.

bartfull Rising Star
bartfull
Posted

Sounds like you might have just caught a case of the "stomach bug". It's going around.

kellysensei Apprentice
kellysensei
Posted

Yeah, my whole family has been sick with a stomach bug in the past 10 days.

 

It's true that you might get worse before you get better. I'm not a diagnosed Celiac, either, but the first few weeks I was off gluten, I suddenly had a lot of heartburn. I discovered that coconut products don't agree with me. Now, six weeks after going gluten-free, I'm fine.

 

Good luck to you!

WestCoastGirl Apprentice
WestCoastGirl
Posted
  • Author

Thanks, everybody.

 

I think I'll stop nightshades too and see what happens.

 

It could be the stomach bug. My kids had that about a week and a half ago. I just thought i'd have gotten it by now but who knows...touching a shopping cart, being out in public, etc., I suppose I could have sniffled in something!

 

I will hang in there. I appreciate the answers. Oh, it has only been a few days that I've been gluten-free.

GF Lover Rising Star
GF Lover
Posted

If you continue to feel poorly after a few weeks, then you might want to look at the thyroid again,  It can be difficult to get it stabilized. 

 

Good Luck with the diet

 

Colleen

MGR Apprentice
MGR
Posted

Also you mentioned you had been eating some cheesy dish- I get horrendous diarrhoea and bloating when I have any Dariry products which are not dairy free-!! And I have also found that after going gluten free for a while, my lactose intolerance got worse... Good luck!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


WestCoastGirl Apprentice
WestCoastGirl
Posted
  • Author

Thanks, everyone! Yes, the dish had cheese. I'll try cutting out dairy.

frieze Community Regular
frieze
Posted

?withdrawl?

WestCoastGirl Apprentice
WestCoastGirl
Posted
  • Author

Oh, can withdrawal be physical like that? With stomach issues?

 

It seems better today so far. :) Crossing my fingers that it was just a bug. But if not, I'll just have to power through this change.

Pegleg84 Collaborator
Pegleg84
Posted

I was also thinking possible dairy problems, but it could be a bug. Last week I was under the weather and concluded it must have been CC aftereffects, but one of my coworkers had the exact same thing, sooo...

 

Could also be the unfortunate effects of healing, Our guts tend to be fussy for a while. Too much something could have upset it.

 

In any case, good luck and hope you feel better soon!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. xxnonamexx
      - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      32

      My journey is it gluten or fiber?

      I made it through the holiday w/o being glutened. I had my brother cook with gluten-free breadcrumbs and I didn't get sick. I baked cookies with gluten-free flour and had dry ingredients for cookies in ziplock bag. I also made gluten cookies as well and guess I did good washing to avoid CC. My wife also went to a french bakery and bought a gluten-free flourless...
    2. xxnonamexx
      - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      32

      My journey is it gluten or fiber?

      What do you mean it would not allow any celiac to eat gluten again. I think if this helps cross contamination when eating out at a non dedicated gluten-free restaurant this would be nice not to encounter the pains. But is their a daily enzyme to take to help strengthen the digestive system?
    3. SamAlvi
      - SamAlvi replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      High TTG-IgG and Normal TTG-IgA

      Hi, thank you for the reply. Unfortunately, no other antibody tests were ordered. I am a 32-year-old male. About two months ago, I ate pancakes and then developed severe diarrhea that lasted the entire day. At night, I became unconscious due to fluid loss and was admitted to the ER, where I received IV fluids. Two days later, I ate bread again and once...
    4. trents
      - trents replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      High TTG-IgG and Normal TTG-IgA

      Welcome to the celiac.com community, @SamAlvi! Were there any other antibody tests ordered? Particularly, was there a "total IGA" test ordered to check for IGA deficiency. When people are IGA deficient, celiac panel IGA test scores, such as the TTG-IGA, are likely not valid. If a total IGA test was not ordered, I would request such to be done. Note:...
    5. Scott Adams
      0

      Homemade Gluten-Free Egg Drop Soup

  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,842
    • Most Online (within 30 mins)
      7,748
    aetherwax
    Newest Member
    aetherwax
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • xxnonamexx
      My journey is it gluten or fiber?

      By xxnonamexx · Posted

      I made it through the holiday w/o being glutened. I had my brother cook with gluten-free breadcrumbs and I didn't get sick. I baked cookies with gluten-free flour and had dry ingredients for cookies in ziplock bag. I also made gluten cookies as well and guess I did good washing to avoid CC. My wife also went to a french bakery and bought a gluten-free flourless chocolate cake dedicated gluten-free it was out of this world. 
    • xxnonamexx
      My journey is it gluten or fiber?

      By xxnonamexx · Posted

      What do you mean it would not allow any celiac to eat gluten again. I think if this helps cross contamination when eating out at a non dedicated gluten-free restaurant this would be nice not to encounter the pains. But is their a daily enzyme to take to help strengthen the digestive system? 
    • SamAlvi
      High TTG-IgG and Normal TTG-IgA

      By SamAlvi · Posted

      Hi, thank you for the reply. Unfortunately, no other antibody tests were ordered. I am a 32-year-old male. About two months ago, I ate pancakes and then developed severe diarrhea that lasted the entire day. At night, I became unconscious due to fluid loss and was admitted to the ER, where I received IV fluids. Two days later, I ate bread again and once more developed severe diarrhea. I ended up in the ER again and received IV fluids. In my country, Pakistan, doctors are unfortunately not very thorough, so they treated me for a stomach infection. I visited three or four doctors, including a gastroenterologist, but it seemed like they just wanted to keep me on medications and IV fluids. Eventually, I did some digging myself and started connecting the dots. For years, I’ve had excessive gas buildup and frequent loose stools, but I never paid much attention to it. I also cannot easily digest dairy products. Two years ago, I had a CBC test that showed iron deficiency. My doctor told me to eat more meat and said it was nothing serious. However, for the past five years, I’ve also had severe motion sickness, which I never experienced before. Whenever I get on a bus or in a car, I sometimes lose consciousness for 10–20 seconds and wake up sweaty, and occasionally I feel the need to vomit. After more research on the internet, I came across gluten and celiac disease, so I got two related tests (TTG-IgA & TTG IgG) done along with a stool test and another CBC. The stool test showed weakly positive blood. Ever since eating those pancakes and bread, I’ve had a burning sensation in my gut. My doctor reviewed my tests, he told me to completely stop eating gluten and started me on IV fluids for 20 days, saying that I had severe inflammation in my gut. It has now been two months since I quit gluten, and I’m still not sure whether this is celiac disease or gluten intolerance. I don’t really trust doctors in Pakistan, so I thought I might get some help here.
    • trents
      High TTG-IgG and Normal TTG-IgA

      By trents · Posted

      Welcome to the celiac.com community, @SamAlvi! Were there any other antibody tests ordered? Particularly, was there a "total IGA" test ordered to check for IGA deficiency. When people are IGA deficient, celiac panel IGA test scores, such as the TTG-IGA, are likely not valid. If a total IGA test was not ordered, I would request such to be done. Note: "Total IGA" goes by other names as well. I will include a primer on celiac disease antibody testing which does a good job in covering the nomenclature variations connected with the various tests. Elevated IGG scores can certainly indicate celiac disease but they are more likely than elevated IGA tests to be caused by something else.  
    • GlorietaKaro
      Am I nuts?

      By GlorietaKaro · Posted

      Thank you— yes, valid and essential— The issue either doctors is that every one I have tried to talk to about this has essentially rolled their eyes and dismissed me as a hypochondriac, which gets discouraging. I believe a diagnosis would help me to be taken seriously by doctors as well as being validating, but can carry on without it.    There are many, probably most people in my area of my age and gender, who avoid gluten, but many just avoid it casually— eating the occasional plate of wheat pasta or a delicious-looking dessert, or baking cookies with wheat flour for gatherings.  That is not an option for me. I don’t eat other people’s cooking or go to restaurants that do not have strict cross- contamination procedures. It can be boring and lonely, and people do look at me as if I am being a bit dramatic but weeks of symptoms after a single small exposure has taught me to respect my experience.    Thank you very much for your response— sometimes I just need to hear that I am not crazy—
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.