Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gave Up Gluten And Feeling Sick


WestCoastGirl

Recommended Posts

WestCoastGirl Apprentice

Hey, all. I'm not a diagnosed celiac. I've known for a long time just on  how I react that I am sensitive to gluten so even if I'm not a celiac, I know I should not have gluten. But I've been putting off giving it up.

 

I have Hashimoto's thyroiditis and have been doing a lot of research lately because I've just been going farther and farther downhill. That's a long story all by itself but last week, the day before Thanksgiving, I decided, Why on earth am I torturing myself? There's a known tie-in between Hashi's and gluten intolerance, I am killing myself, I'm stopping the gluten.

 

Well, I have been feeling progressively more nauseated. :( Is this normal? No one else in my family is sick and I haven't eaten anything "weird". I've had a gluten-substitute food maybe once, it was an Udi's gluten-free bagel, I can't recall having any other actual gluten-free subs. All the rest of my food has been "real food," meat, veggies, and I have been having carbs as always (potatoes, rice) if that makes a difference.

 

I have had zero cheats. I know my labels (I've been researching this literally for years). Even on Thanksgiving I had no gluten at all. I didn't miss it. I had turkey with no gravy, a cauliflower and cheese dish that I brought (YUM, we love this dish in my family), salad and a heap of mashed potatoes.

 

I started feeling nauseated yesterday. All day long. I even had some "icky burps" - sorry - but did not throw up. I did have diarrhea. Now today I am totally thrown for a loop. VERY nauseated and I have pretty severe diarrhea.

 

I'm exhausted as ever so far...

 

Anyone have any ideas? I just feel so terrible right now...in every way. Exhausted from the Hashi's, and now stomach sick.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



NoGlutenCooties Contributor

A few things come to mind...  How long have you been completely gluten-free?  Often symptoms improve in a short amount of time, but sometimes it takes awhile.  Some have reported symptoms getting worse at first - part of the healing process.

You may also have other food allergies/sensitivities - which is common with Celiac folks.  For example, being sensitive to food in the nightshade family is pretty common - which includes potatoes.

bartfull Rising Star

Sounds like you might have just caught a case of the "stomach bug". It's going around.

kellysensei Apprentice

Yeah, my whole family has been sick with a stomach bug in the past 10 days.

 

It's true that you might get worse before you get better. I'm not a diagnosed Celiac, either, but the first few weeks I was off gluten, I suddenly had a lot of heartburn. I discovered that coconut products don't agree with me. Now, six weeks after going gluten-free, I'm fine.

 

Good luck to you!

WestCoastGirl Apprentice

Thanks, everybody.

 

I think I'll stop nightshades too and see what happens.

 

It could be the stomach bug. My kids had that about a week and a half ago. I just thought i'd have gotten it by now but who knows...touching a shopping cart, being out in public, etc., I suppose I could have sniffled in something!

 

I will hang in there. I appreciate the answers. Oh, it has only been a few days that I've been gluten-free.

GF Lover Rising Star

If you continue to feel poorly after a few weeks, then you might want to look at the thyroid again,  It can be difficult to get it stabilized. 

 

Good Luck with the diet

 

Colleen

MGR Apprentice

Also you mentioned you had been eating some cheesy dish- I get horrendous diarrhoea and bloating when I have any Dariry products which are not dairy free-!! And I have also found that after going gluten free for a while, my lactose intolerance got worse... Good luck!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



WestCoastGirl Apprentice

Thanks, everyone! Yes, the dish had cheese. I'll try cutting out dairy.

frieze Community Regular

?withdrawl?

WestCoastGirl Apprentice

Oh, can withdrawal be physical like that? With stomach issues?

 

It seems better today so far. :) Crossing my fingers that it was just a bug. But if not, I'll just have to power through this change.

Pegleg84 Collaborator

I was also thinking possible dairy problems, but it could be a bug. Last week I was under the weather and concluded it must have been CC aftereffects, but one of my coworkers had the exact same thing, sooo...

 

Could also be the unfortunate effects of healing, Our guts tend to be fussy for a while. Too much something could have upset it.

 

In any case, good luck and hope you feel better soon!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

    2. - knitty kitty replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

    3. - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

    4. - Scott Adams replied to Russ H's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      KAN-101 Treatment for Coeliac Disease

    5. - Scott Adams replied to miguel54b's topic in Related Issues & Disorders
      1

      Body dysmorphia experience


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,154
    • Most Online (within 30 mins)
      7,748

    bobadigilatis
    Newest Member
    bobadigilatis
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      This article does not address migraines at all.  Yes, red wine and sulfites are often mentioned in connection with migraine triggers. With me, any kind of alcoholic beverage in very modest amounts will reliably produce a migraine. Nitrous oxide generators, which are vaso dialators, also will give me migraines reliably. So, I think most of my migraines are tied to fluctuations vascular tension and blood flow to the brain. That's why the sumatriptan works so well. It is a vaso constrictor. 
    • knitty kitty
      Excessive dietary tyrosine can cause problems.  Everything in moderation.   Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese.  Sulfites cause a high histamine release.  High histamine levels are found in migraine.  Following a low histamine diet like the low histamine Autoimmune Protocol diet, a Paleo diet, helps immensely.    Sulfites and other migraine trigger foods can cause changes in the gut microbiome.  These bad bacteria can increase the incidence of migraines, increasing histamine and inflammation leading to increased gut permeability (leaky gut), SIBO, and higher systemic inflammation.   A Ketogenic diet can reduce the incidence of migraine.  A Paleo diet like the AIP diet, that restricts carbohydrates (like from starchy vegetables) becomes a ketogenic diet.  This diet also changes the microbiome, eliminating the bad bacteria and SIBO that cause an increase in histamine, inflammation and migraine.  Fewer bad bacteria reduces inflammation, lowers migraine frequency, and improves leaky gut. Since I started following the low histamine ketogenic AIP paleo diet, I rarely get migraine.  Yes, I do eat carbs occasionally now, rice or potato, but still no migraines.  Feed your body right, feed your intestinal bacteria right, you'll feel better.  Good intestinal bacteria actually make your mental health better, too.  I had to decide to change my diet drastically in order to feel better all the time, not just to satisfy my taste buds.  I chose to eat so I would feel better all the time.  I do like dark chocolate (a migraine trigger), but now I can indulge occasionally without a migraine after.   Microbiota alterations are related to migraine food triggers and inflammatory markers in chronic migraine patients with medication overuse headache https://pmc.ncbi.nlm.nih.gov/articles/PMC11546420/  
    • trents
      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit. 
    • Scott Adams
      I agree that KAN-101 looks promising, and hope the fast track is approved. From our article below: "KAN-101 shows promise as an immune tolerance therapy aiming to retrain the immune system, potentially allowing safe gluten exposure in the future, but more clinical data is needed to confirm long-term effects."  
    • Scott Adams
      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress and inflammation that uncontrolled celiac disease can inflict on the entire body, including the nervous system. It makes complete sense that the specific sensory input—the pressure points of your elbows on your knees—created a temporary, distorted body map in your brain, and the fact that it ceased once you adopted a gluten-free diet is a crucial detail. Your intuition to document this is absolutely right; it's not "crazy" but rather a significant anecdotal data point that underscores the mysterious and far-reaching ways gluten can affect individuals. Your theory about sensory triggers from the feet for others is also a thoughtful insight, and sharing this story could indeed be validating for others who have had similar, unexplainable sensory disturbances, helping them feel less alone in their journey.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.