Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Is Bleeding A Thing?

BrennanaBread

Recommended Posts

BrennanaBread Rookie
BrennanaBread
Posted

So this is gross, but when I lived in Massachusetts, where it gets very cold, I would get torrential nosebleeds that refused to stop or properly clot. Like...soaked 4 dish towels and at one point an entire roll of paper towels. Like two people have been so scared they called 911. Blood faucet on my face.

 

Is this a thing? I live in Florida now and I don't get them from the cold, but the few times I have gotten them here, same deal.

 

Thank you for reading.

 

-B

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


GF Lover Rising Star
GF Lover
Posted

Hi BrennanaBread and Welcome.

 

I don't get anything as severe as yours but I do get the majority of them in the Winter.  I'm assuming you have been checked out and have ruled out anything serious?  

 

As I say to my Hubs when I can't do anything about something....Good Luck With That !  :D

 

Colleen

nvsmom Community Regular
nvsmom
Posted

I don't know either but I wouldn't be surprised. I used to get bad nosebleeds as a child - I remember a six hour one on Christmas once. Bleach! After that I had my nose cauterizd and that helped.

My 11 year old used to get nosebleeds a few times a week, especially in the winter, but since going gluten-free it has improved.... Could be a coincidence though.

Thrombocytopenia is related to celiac disease and can lead to nose bleeds, and it is related to celiac disease. it means your body is attacking your platelets so you aren't clotting. This could also include easy bruising, bleeding gums, petechia, anemia, and very heavy periods. It is not very common though and if you don't ave other symptoms, I wouldn't worry.

I believe, and I am not sure of this, that low potassium can lead to bleeding too.

powerofpositivethinking Community Regular
powerofpositivethinking
Posted

Welcome!

 

I didn't get nose bleeds, but I would end up with these random bruises, so when I got my vit/min levels tested, I expected to be anemic.  It turns out I wasn't anemic and instead was Vitamin K deficient.  Vit K deficiency can cause nose bleeds.  check out this link:

 

Open Original Shared Link

 

 

So this is gross, but when I lived in Massachusetts, where it gets very cold, I would get torrential nosebleeds that refused to stop or properly clot. Like...soaked 4 dish towels and at one point an entire roll of paper towels. Like two people have been so scared they called 911. Blood faucet on my face.

 

Is this a thing? I live in Florida now and I don't get them from the cold, but the few times I have gotten them here, same deal.

 

Thank you for reading.

 

-B

shadowicewolf Proficient
shadowicewolf
Posted

So this is gross, but when I lived in Massachusetts, where it gets very cold, I would get torrential nosebleeds that refused to stop or properly clot. Like...soaked 4 dish towels and at one point an entire roll of paper towels. Like two people have been so scared they called 911. Blood faucet on my face.

 

Is this a thing? I live in Florida now and I don't get them from the cold, but the few times I have gotten them here, same deal.

 

Thank you for reading.

 

-B

Have you went to an ENT (ears, nose, and throat doctor)? What happens with nose bleeds is that you have very small veins in your nose and sometimes those veins come too close to the surface. When that happens, you can have very bad nose bleeds that are caused by the smallest things (such as cold, dry air or even just dry air).

 

If that is the case, it can be fixed.

 

Of course, there are other causes. Just thought i'd point out one factor.

BrennanaBread Rookie
BrennanaBread
Posted
  • Author

Have you went to an ENT (ears, nose, and throat doctor)? What happens with nose bleeds is that you have very small veins in your nose and sometimes those veins come too close to the surface. When that happens, you can have very bad nose bleeds that are caused by the smallest things (such as cold, dry air or even just dry air).

 

If that is the case, it can be fixed.

 

Of course, there are other causes. Just thought i'd point out one factor.

 

Yes, I went to an ENT up north and he refused to cauterize my nose and instead told me to put Bacitracin in my nose every day. I asked him if I could use Aquaphor (since I have a full container because that's what I heal tattoos with) and he said no, because "it's water based". It's petroleum based. Nimrod. My hematologist heard what he'd said and told me "Well, we'll find you someone....smarter."

 

I've also seen said hematologist because my mother has an autoimmune disease called aplastic anemia which causes her to bleed uncontrollably when she's injured or has a nosebleed. I was tested for a bunch of blood related diseases, and came up negative for everything. It's good to know that celiac disease can cause issues with that. Thank you for your input!

IrishHeart Veteran
IrishHeart
Posted

actually, I do recall reading that nosebleeds are an associated condition with celiac.

 

"CARDIOVASCULAR SYSTEM PROBLEMS

Disorders of the heart and blood vessels.

  • Angina Pectoris
  • Aortic Vasculitis
  • Atherosclerosis
  • Cardiomegaly
  • Coronary Artery Disease
  • Easy Bruising (Ecchymosis)
  • Hypertension
  • Idiopathic Dilated Cardiomyopathy
  • Nosebleeds, Unexplained"
found here:
 
Open Original Shared Link
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


NoGlutenCooties Contributor
NoGlutenCooties
Posted

I very occasionally get a pretty bad nosebleed - maybe 3 or 4 of them in the last 15 years (that kind of "occasional") - and they've always been attributed to dry, cold, weather - and one was because I took Sudafed for a cold and I guess it worked a little too well at drying out my sinuses.

 

Anyhow... I just wanted to add that my most recent nosebleed was just a month or so ago - and the darned thing wouldn't stop.  Not as bad as what you described, but for me... this one was bad.  I remembered something that I saw on Sex-in-the-City and actually grabbed a slender tampon and put it in my nose (what can I say?  I was getting desparate!!) - it worked wonders!  the bleeding stopped pretty much immediately.  No kidding.

Just an idea... to save the dish towels... ;)

BrennanaBread Rookie
BrennanaBread
Posted
  • Author

Hahaha! I have photos of me with Super tampons stuffed up both nostrils, actually. They filled up fast and got too big for my nose. I also used one when I pierced my own nose as a teenager to catch the needle. Those things are darn useful.

 

If you have another one that won't stop, what works for me (taught by a paramedic) is ice. Get an icepack or a bag of frozen veggies (I use those for my god awful migraines, too) and hold it to the side that's bleeding. It works like a charm.

 

 

 

 

I very occasionally get a pretty bad nosebleed - maybe 3 or 4 of them in the last 15 years (that kind of "occasional") - and they've always been attributed to dry, cold, weather - and one was because I took Sudafed for a cold and I guess it worked a little too well at drying out my sinuses.

 

Anyhow... I just wanted to add that my most recent nosebleed was just a month or so ago - and the darned thing wouldn't stop.  Not as bad as what you described, but for me... this one was bad.  I remembered something that I saw on Sex-in-the-City and actually grabbed a slender tampon and put it in my nose (what can I say?  I was getting desparate!!) - it worked wonders!  the bleeding stopped pretty much immediately.  No kidding.

Just an idea... to save the dish towels... ;)

GretaJane Newbie
GretaJane
Posted

Vitamin K deficiency causes nosebleeds because its needed for clotting. Take a supplement and eat your dark leafy greens!

NoGlutenCooties Contributor
NoGlutenCooties
Posted

Hahaha! I have photos of me with Super tampons stuffed up both nostrils, actually. They filled up fast and got too big for my nose. I also used one when I pierced my own nose as a teenager to catch the needle. Those things are darn useful.

 

If you have another one that won't stop, what works for me (taught by a paramedic) is ice. Get an icepack or a bag of frozen veggies (I use those for my god awful migraines, too) and hold it to the side that's bleeding. It works like a charm.

 

I'm so glad I'm not the only one who has done this!  :ph34r:

BrennanaBread Rookie
BrennanaBread
Posted
  • Author

I'm so glad I'm not the only one who has done this!  :ph34r:

 

My tenth grade English teacher proudly told us of a horrible nosebleed she had as a preteen and going to the hospital and having a tampon pulled up through her throat and into her nasal passage. You're SO not the only one! If it fits and it's absorbent and sterile, it's been used!

NoGlutenCooties Contributor
NoGlutenCooties
Posted

Those things are darn useful.

 

I don't know if this is really true or just another urban legend that got propagated via the Internet, but someone claiming to be the mother of a soldier overseas said that they have been used to plug wounds on the battlefield in an emergency when that was all that was within reach.  :o

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. suek54
      - suek54 replied to suek54's topic in Dermatitis Herpetiformis
      5

      Awaiting dermatitis herpetiformis confirmation following biopsy

      Thank you all for your advice and the dermatitis herpetiformis article. The latter made me realise I had stopped taking my antihistamine, which I will restart today. The Dapsone has cleared the rash entirely but I still get quite a bit itching, absolutely nothing to see though. I know its notoriously hard to clear and its still relatively early days for me...
    2. trents
      - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      how much gluten do I need to eat before blood tests?

      So, essentially all of the nutrition in the food we eat is absorbed through the villous lining of the small bowel. This is the section of the intestinal track that is damaged by celiac disease. This villous lining is composed of billions of finger-like projections that create a huge amount of surface area for absorbing nutrients. For the celiac person, when...
    3. catnapt
      - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      how much gluten do I need to eat before blood tests?

      thank you so much for your detailed and extremely helpful reply!! I can say with absolute certainty that the less gluten containing products I've eaten over the past several years, the better I've felt. I wasn't avoiding gluten, I was avoiding refined grains (and most processed foods) as well as anything that made me feel bad when I ate it. It's the...
    4. trents
      - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      how much gluten do I need to eat before blood tests?

      Welcome, @catnapt! The most recent guidelines are the daily consumption of a minimum of 10g of gluten (about the amount found in 4-6 slices of wheat bread) for a minimum of two weeks. But if possible stretching that out even more would enhance the chances of getting valid test results. These guidelines are for those who have been eating gluten free for...
    5. catnapt
      - catnapt posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      how much gluten do I need to eat before blood tests?

      after several years of issues with a para-gland issue, my endo has decided it's a good idea for me to be tested for celiac disease. I am 70 yrs old and stunned to learn that you can get celiac this late in life. I have just gradually stopped eating most foods that contain gluten over the past several years- they just make me feel ill- although I...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,256
    • Most Online (within 30 mins)
      7,748
    Christie Fassel
    Newest Member
    Christie Fassel
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • suek54
      Awaiting dermatitis herpetiformis confirmation following biopsy

      By suek54 · Posted

      Thank you all for your advice and the dermatitis herpetiformis article. The latter made me realise I had stopped taking my antihistamine, which I will restart today. The Dapsone has cleared the rash entirely but I still get quite a bit itching, absolutely nothing to see though. I know its notoriously hard to clear and its still relatively early days for me.  The iodine issue is very interesting. I do eat quite a bit of salt because I have Addison's disease and sodium retention is an issue. I also have autoimmune hypothyroidism, not sure how a low iodine diet would play into that? Because of my Addison's I am totally steroid dependent, I take steroids 4 x daily and cannot mount any defence against inflammation. I need to increase my meds for that. Now that I know what is wrong I can do just that if Im having a bad day. Life is very sweet, just so damn complicated sometimes! Hey ho, onwards. Thank you again for your advice.  
    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      So, essentially all of the nutrition in the food we eat is absorbed through the villous lining of the small bowel. This is the section of the intestinal track that is damaged by celiac disease. This villous lining is composed of billions of finger-like projections that create a huge amount of surface area for absorbing nutrients. For the celiac person, when gluten is consumed, it triggers an autoimmune reaction in this area which, of course, generates inflammation. The antibodies connected with this inflammation is what the celiac blood tests are designed to detect but this inflammation, over time, wears down the finger-like projections of the villous lining. Of course, when this proceeds for an extended period of time, greatly reduces the absorption efficiency of the villous lining and often results in many and various nutrient deficiency-related health issues. Classic examples would be osteoporosis and iron deficiency. But there are many more. Low D3 levels is a well-known celiac-caused nutritional deficiency. So is low B12. All the B vitamins in fact. Magnesium, zinc, etc.  Celiac disease can also cause liver inflammation. You mention elevated ALP levels. Elevated liver enzymes over a period of 13 years was what led to my celiac diagnosis. Within three months of going gluten free my liver enzymes normalized. I had elevated AST and ALT. The development of sensitivities to other food proteins is very common in the celiac population. Most common cross reactive foods are dairy and oats but eggs, soy and corn are also relatively common offenders. Lactose intolerance is also common in the celiac population because of damage to the SB lining.  Eggs when they are scrambled or fried give me a gut ache. But when I poach them, they do not. The steam and heat of poaching causes a hydrolysis process that alters the protein in the egg. They don't bother me in baked goods either so I assume the same process is at work. I bought a plastic poacher on Amazon to make poaching very easy. All this to say that many of the issues you describe could be caused by celiac disease. 
    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      thank you so much for your detailed and extremely helpful reply!! I can say with absolute certainty that the less gluten containing products I've eaten over the past several years, the better I've felt.   I wasn't avoiding gluten, I was avoiding refined grains (and most processed foods) as well as anything that made me feel bad when I ate it. It's the same reason I gave up dairy and eggs- they make me feel ill.  I do have a bit of a sugar addiction lol so a lot of times I wasn't sure if it was the refined grains that I was eating - or the sugar. So from time to time I might have a cookie or something but I've learned how to make wonderful cookies and golden brownies with BEANS!! and no refined sugar - I use date paste instead. Pizza made me so ill- but I thought it was probably the cheese. I gave up pizza and haven't missed it. the one time I tried a slice I felt so bad I knew I'd never touch it again. I stopped eating wheat pasta at least 3 yrs ago- just didn't feel well after eating it. I tried chick pea pasta and a few others and discovered I like the brown rice pasta. I still don't eat a lot of pasta but it's nice for a change when I want something easy. TBH over the years I've wondered sometimes if I might be gluten intolerant but really believed it was not possible for me to have celiac disease. NOW I need to know for sure- because I'm in the middle of a long process of trying to find out why I have a high parathyroid level (NOT the thyroid- but rather the 4 glands that control the calcium balance in your body) I have had a hard time getting my vit D level up, my serum calcium has run on the low side of normal for many years... and now I am losing calcium from my bones and excreting it in my urine (some sort of renal calcium leak) Also have a high ALP since 2014. And now rapidly worsening bone density.  I still do not have a firm diagnosis. Could be secondary HPT (but secondary to what? we need to know) It could be early primary HPT. I am spilling calcium in my urine but is that caused by the high parathyroid hormone or is it the reason my PTH is high>? there are multiple feedback loops for this condition.    so I will keep eating the bread and some wheat germ that does not seem to bother me too much (it hasn't got enough gluten to use just wheat germ)    but I'm curious- if you don't have a strong reaction to a product- like me and wheat germ- does that mean it's ok to eat or is it still causing harm even if you don't have any obvious symptoms? I guess what you are saying about silent celiac makes it likely that you can have no symptoms and still have the harm... but geez! you'd think they'd come up with a way to test for this that didn't require you to consume something that makes you sick! I worry about the complications I've been reading about- different kinds of cancers etc. also wondering- are there degrees of celiac disease?  is there any correlation between symptoms and the amnt of damage to your intestines? I also need a firm diagnosis because I have an identical twin sister ... so if I have celiac, she has it too- or at least the genetic make up for having it. I did have a VERY major stress to my body in 2014-2016 time frame .. lost 50lbs in a short period of time and had severe symptoms from acute protracted withdrawal off an SSRI drug (that I'd been given an unethically high dose of, by a dr who has since lost his license)  Going off the drug was a good thing and in many ways my health improved dramatically- just losing 50lbs was helpful but I also went  off almost a dozen different medications, totally changed my diet and have been doing pretty well except for the past 3-4 yrs when the symptoms related to the parathyroid issue cropped up. It is likely that I had low vit D for some time and that caused me a lot of symptoms. The endo now tells me that low vit D can be caused by celiac disease so I need to know for sure! thank you for all that great and useful information!!! 
    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      Welcome, @catnapt! The most recent guidelines are the daily consumption of a minimum of 10g of gluten (about the amount found in 4-6 slices of wheat bread) for a minimum of two weeks. But if possible stretching that out even more would enhance the chances of getting valid test results. These guidelines are for those who have been eating gluten free for a significant amount of time. It's called the "gluten challenge".  Yes, you can develop celiac disease at any stage of life. There is a genetic component but also a stress trigger that is needed to activate the celiac genes. About 30-40% of the general population possesses the genetic potential to develop celiac disease but only about 1% of the general population actually develop celiac disease. For most with the potential, the triggering stress event doesn't happen. It can be many things but often it is a viral infection. Having said that, it is also the case that many, many people who eventually are diagnosed with celiac disease probably experienced the actual onset years before. Many celiacs are of the "silent" type, meaning that symptoms are largely missing or very minor and get overlooked until damage to the small bowel lining becomes advanced or they develop iron deficiency anemia or some other medical problem associated with celiac disease. Many, many are never diagnosed or are diagnosed later in life because they did not experience classic symptoms. And many physicians are only looking for classic symptoms. We now know that there are over 200 symptoms/medical problems associated with celiac disease but many docs are only looking for things like boating, gas, diarrhea. I certainly understand your concerns about not wanting to damage your body by taking on a gluten challenge. Your other option is to totally commit to gluten free eating and see if your symptoms improve. It can take two years or more for complete healing of the small bowel lining once going gluten free but usually people experience significant improvement well before then. If their is significant improvement in your symptoms when going seriously gluten free, then you likely have your answer. You would either have celiac disease or NCGS (Non Celiac Gluten Sensitivity).
    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      after several years of issues with a para-gland issue, my endo has decided it's a good idea for me to be tested for celiac disease. I am 70 yrs old and stunned to learn that you can get celiac this late in life. I have just gradually stopped eating most foods that contain gluten over the past several years- they just make me feel ill- although I attributed it to other things like bread spiking blood sugar- or to the things I ate *with* the bread or crackers etc   I went to a party in Nov and ate a LOT of a vegan roast made with vital wheat gluten- as well as stuffing, rolls and pie crust... and OMG I was so sick! the pain, the bloating, the gas, the nausea... I didn't think it would ever end (but it did) and I was ready to go the ER but it finally subsided.   I mentioned this to my endo and now she wants me to be tested for celiac after 2 weeks of being on gluten foods. She has kind of flip flopped on how much gluten I should eat, telling me that if the symptoms are severe I can stop. I am eating 2-3 thin slices of bread per day (or english muffins) and wow- it does make me feel awful. But not as bad as when I ate that massive amnt of vital wheat gluten. so I will continue on if I have to... but what bothers me is - if it IS celiac, it seems stupid for lack of a better word, to intentionally cause more damage to my body... but I am also worried, on the other hand, that this is not a long enough challenge to make the blood work results valid.   can you give me any insight into this please?   thank you
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.