Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Has Anyone Had Raynauds Syndrome Improve On Gluten Free Diet?

1desperateladysaved

Recommended Posts

1desperateladysaved Proficient
1desperateladysaved
Posted

I recently found out that I have Raynauds.  Is it related to celiac?  Also does it improve with a gluten free diet?

 

D

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


KCG91 Enthusiast
KCG91
Posted

I wondered about this as my Mum has Raynauds and although I've never seen a GP about it my circulation was really bad before I went gluten-free. Happy to say it's improved considerably :) hope yours does too!

Gemini Experienced
Gemini
Posted

Yes, Diana, I have Reynaud's and it has improved tremendously on the gluten-free diet.  My fingers used to blanch and turn white when exposed to the cold and now, I can tolerate the cold much, much better.  They do not turn white and numb nearly as much as they used to and it's only the very fingertips that are affected.  I can also reach into the freezer section and grab frozen items without gloves!   :)

 

Reduce the inflammation in your body, over time, and other AI diseases improve.

jebby Enthusiast
jebby
Posted

Hi Diana. I have had the same experience as Gemini, my Raynaud's has virtually disappeared since going gluten-free in 2010.

1desperateladysaved Proficient
1desperateladysaved
Posted
  • Author

I think there is hope for me, for though I feel really good, I still feel I am in transition at 18 months gluten free.  One of my daughters has raynaud's  too, so the logical question is whether this might be a sign of celiac for my family.  I see everything as symptoms though, and my family sees nothing as symptoms.  Strange deal for a person with 2 copies of celiac genes!

 

D

LauraTX Rising Star
LauraTX
Posted

I have mild Raynauds with my lupus.  It seems to be one of the things that improve when I just eat more healthy in general, but I did not notice a difference after going gluten-free.  

frieze Community Regular
frieze
Posted

hey doc, I was wondering recently, is Raynaud's centrally controlled? ie, breath in cold air, peripheral circ. shuts down?  maybe we should ask Dr H if he sees it in his ataxia patients??

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Nick-incollege Rookie
Nick-incollege
Posted

yeah, actually! I didn't notice until now, but since going gluten free a year ago, I haven't had my fingers turn white once! which totally never happens, it used to happen like all the time

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,650
    • Most Online (within 30 mins)
      7,748
    Alexandersgirl
    Newest Member
    Alexandersgirl
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Medication

      By trents · Posted

      Did the GI doc give you any rational for stopping the Tylenol during the gluten challenge? I have never heard of this before and I can't imagine a good reason for it. Ibuprofen, maybe, because it is an anti inflammatory but acetaminophen?  I don't see that it would have any impact on the test results to take Tylenol.
    • Julie 911
      Medication

      By Julie 911 · Posted

      Good day! New members here and I have a question about medication. My gastroenterologist made me stop some medication during the gluten challenge beforenthe screening test but I have a little surgery tomorrow and I need to know if I can use tylenol for half a day or if it will give me false results using it.   Thanks 
    • Scott Adams
      Buckwheat

      By Scott Adams · Posted

      I agree, there can be contamination at many points--milling is another possible source of contamination for any flours.
    • trents
      Buckwheat

      By trents · Posted

      Keep in mind that with manufactured food products, "gluten free" doesn't equate to no gluten. Things that are naturally gluten free can be cross-contaminated with gluten in the field, in shipping and in processing. In the U.S. companies can use the gluten free label as long as the product doesn't exceed 20ppm of gluten. That amount still may cause a reaction in some people.
    • deanna1ynne
      Inconclusive results

      By deanna1ynne · Posted

      Dd10 was tested for celiac four years ago bc two siblings were dx’d (positive labs and biopsies). Her results at the time were positive ema  and ttg (7x the UL), but a negative biopsy. We checked again three months later and her ttg was still positive (4x the UL), but ema and biopsy were negative. Doc said it was “potential celiac” and to keep eating gluten, but we were concerned about harming her growth and development while young and had her go gluten-free because we felt the labs and ema in particular were very suggestive of early celiac, despite the negative biopsies. She also had stomach aches and lethargy when eating it. We just felt it’d be better to be safe than sorry. Now, four years later, she doesn’t want to be gluten-free if she doesn’t “have to be,” so underwent a 12 week gluten challenge. She had labs done before starting and all looked great (celiac panel all negative, as expected.) Surprisingly, she experienced no noticeable symptoms when she began eating gluten again, which we felt was a positive sign. However, 12 weeks in, her labs are positive again (ttg 4x the UL and ema positive again as well). Doc says that since she feels fine and her previous two biopsies showed nothing, she can just keep eating gluten and we could maybe biopsy again in two years. I was looking up the ema test and the probability of having not just one but two false positives, and it seems ridiculously low.  Any advice? Would you biopsy again? She’s old enough at this point that I really feel I need her buy-in to keep her gluten-free, and she feels that if the doc says it’s fine, then that’s the final word — which makes me inclined to biopsy again and hope that it actually shows damage this time (not because I want her to have celiac like her sisters, but because I kind of think she already does have it, and seeing the damage now would save her more severe damage in the long run that would come from just continuing to eat gluten for a few more years before testing again.)  Our doc is great - we really like him. But we are very confused and want to protect her. One of her older sibs stopped growing and has lots of teeth problems and all that jazz from not catching the celiac disease sooner, and we don’t want to get to that point with the younger sis. fwiw- she doesn’t mind the biopsy at all. It’s at a children’s hospital and she thinks it’s kind of fun. So it’s not like that would stress her out or anything.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.