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No Gluten But Still Sick


kristinagaro

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kristinagaro Rookie

Hi everyone!

I was diagnosed a couple of weeks ago and have been completely gluten free since. I have not had any gluten in my diet, but I have been sick for the last two days. Yesterday was not horrible, but today I am tired again, have diarrhea, and my gut is making tons of noises. I have been getting better and better the last two weeks with almost none of these symptoms. I can't figure out where the gluten could have come from (and I am 99% sure I haven't consumed any). Is there any other reason I may be getting the common symptoms of being glutened although I wasn't?

Thank you for you help!


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kareng Grand Master

The stomach virus that seems to be going around the whole country?

kristinagaro Rookie

The stomach virus that seems to be going around the whole country?

Well, obviously, that's a possibility. lol I just wanted to know if anyone else had symptoms soon after they were diagnosed, although they hadn't consumed anything they weren't supposed to. I've been light headed and tired too though, which is common for me when glutened. Hopefully I feel better tomorrow.

kristinagaro Rookie

The stomach virus that seems to be going around the whole country?

I also live in Germany though, and there has not been a serious stomach bug outbreak here.

GF Lover Rising Star

You said 99% sure?  Have you prepared you Kitchen to be Gluten Free?  Did you eat out?  Take a look at the Newbie 101 Thread if you haven't already.  Hope you feel better.

 

Colleen

w8in4dave Community Regular

a couple of weeks is so hard to say you have been 100% gluten free. It is so early! I found things I was eating that had hidden Gluten in them. Cannot remember right off hand now what it was but it happens. Try to eat as natural as possible! Meat and veggies, make sure you wash your veggies before you eat them. If you eat canned veggies make sure you check the ingredients. Make sure anything like rice or Quinoa is Gluten free. So unless you have another intolerance you are probably getting a bit of Gluten in you. Also if your taking any meds they could have Gluten in them. The newbie thread is wonderful!! 

kristinagaro Rookie

You said 99% sure?  Have you prepared you Kitchen to be Gluten Free?  Did you eat out?  Take a look at the Newbie 101 Thread if you haven't already.  Hope you feel better.

 

Colleen

Yeah. I have quite a few other Celiac's in my family. I had my kitchen and WHOLE house gluten-free before I was even diagnosed. I actually diagnosed myself, took it to the doctor, and he confirmed it with blood tests and a biopsy. I have started to feel better late this afternoon, so not sure what it could have been. I am still a little confused on certain products, but I have steered clear of things like that. I haven't eaten out either. Just got a call from the hubby though, and he says he isn't feeling well either. Maybe it is a stomach bug.

I guess I won't know until my body is completely healed. Then, as I have heard, it is much easier to sense when and how you are glutened.

Thanks for the help! I will definitely go check out the newbie forum!


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nvsmom Community Regular

Withdrawal could be the culprit too. It usually hits sometime in the first week gluten-free and lasts for a a few days or a couple of weeks. I found it quite exhausting when I experienced it. Either way, virus, or withdrawal, I hope you feel better soon.

 

This is the newbie link: https://www.celiac.com/forums/topic/91878-newbie-info-101/

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    • trents
      Unfortunately, the development of celiac disease usually is not an end in and of itself. It usually brings along friends, given time. It is at heart an immune system dysfunction which often embraces other immune system dysfunctions as time goes on.
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      Thanks so much for the responses. I will urge him to go for further investigation. To be 48yrs old and develop a new allergy.. ugh, As if celiac disease isn’t enough! 
    • trents
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      @Celiacpartner, I agree with Scott. We have a food festival yearly in the town I live in, with artisan food stalls everywhere. I spoke to the owner of one of the artisan burger stalls, enquiring if the burgers were gluten-free when I said I was Coeliac ... he said he had a serious anaphylactic allergy to fish himself. He possibly carries an epi-pen or two everywhere he goes. I would go see an allergist as soon as possible as suggested.
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      After years of stable management, developing new symptoms to historically safe foods like nuts and fish strongly suggests a secondary issue has developed. It is highly unlikely to be a new gluten issue if the foods themselves are certified gluten-free. The most probable explanations are a new, separate food intolerance (perhaps to a specific protein in certain nuts or fish) or a true IgE-mediated food allergy, which can develop at any age. The symptoms you describe—cramps and the urge to vomit—can be consistent with either. It is crucial he sees an allergist for proper testing (like a skin prick or blood test) to identify the specific culprit and rule out a serious allergy, as reactions can sometimes worsen with repeated exposure.
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