Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Ramen


lungy

Recommended Posts

lungy Newbie

I'm (a newbie) after a little bit of advice if anyone would be so kind.

 

I should start by saying I don't have coeliac disease.  My mother does.  One of my sisters does too.  And the other has Crohn's disease.  I guess I just got lucky.

 

But anyway, gluten doesn't totally agree with me.  It makes me bloated, particularly if I eat it on an evening.  I've tried cutting out in the past before slowly re-introducing it.  But over the past couple of months I've changed my eating habits completely, based on various books, articles, videos that have enlightened me.  

 

So I haven't eaten any wheat for two months.  No beer either.  I'm not eating processed foods or anything sugary (food or drink).  I'm most definitely not consuming high fructose corn syrup.  I'm still eating some carbs but less each week.  Mostly rice now and potatoes now and again.

 

I won't eat wheat/bread but one food I really do miss is ramen.  I love Japanese food. Any sort of fish or meat, grilled or raw.  I live in Hong Kong and there are a ton of Japanese restaurants.   But it's kind of expensive going for fish/meat every time.  Sometimes I just want to get a bowl of ramen.

 

I feel like I've come this far and it's not really a biggie.  If I'm going to relapse it should be with beer, as I miss that way more than any wheat-based foods.

 

But would it really be so bad if I had a bowl of ramen?   Or should I just try and order one without the noodles (the broth is the best bit anyway).

 

 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kenlove Rising Star

i've missed ramen for 9 years. sadly its one of the most dangerous things you can have as celiac as most ramen is made from  pure wheat.   What you need to find is juwari soba which is pure buckwheat noodles.  I make miso ramen often but  use the soba instead. after awhile you'll like its flavor better.  That said, you have to make sure its juwari or 100% soba which is hard to find in many places. Some health food shops have it. Finding it in Hong kong may be a challenge but I bet you could mail order from Japan.  The only other noodles to find in HK would be rice noodles which are ok but not  as good as the juwari soba.  good luck

 

 

 

I'm (a newbie) after a little bit of advice if anyone would be so kind.

 

I should start by saying I don't have coeliac disease.  My mother does.  One of my sisters does too.  And the other has Crohn's disease.  I guess I just got lucky.

 

But anyway, gluten doesn't totally agree with me.  It makes me bloated, particularly if I eat it on an evening.  I've tried cutting out in the past before slowly re-introducing it.  But over the past couple of months I've changed my eating habits completely, based on various books, articles, videos that have enlightened me.  

 

So I haven't eaten any wheat for two months.  No beer either.  I'm not eating processed foods or anything sugary (food or drink).  I'm most definitely not consuming high fructose corn syrup.  I'm still eating some carbs but less each week.  Mostly rice now and potatoes now and again.

 

I won't eat wheat/bread but one food I really do miss is ramen.  I love Japanese food. Any sort of fish or meat, grilled or raw.  I live in Hong Kong and there are a ton of Japanese restaurants.   But it's kind of expensive going for fish/meat every time.  Sometimes I just want to get a bowl of ramen.

 

I feel like I've come this far and it's not really a biggie.  If I'm going to relapse it should be with beer, as I miss that way more than any wheat-based foods.

 

But would it really be so bad if I had a bowl of ramen?   Or should I just try and order one without the noodles (the broth is the best bit anyway).

lungy Newbie

i've missed ramen for 9 years. sadly its one of the most dangerous things you can have as celiac as most ramen is made from  pure wheat.   What you need to find is juwari soba which is pure buckwheat noodles.  I make miso ramen often but  use the soba instead. after awhile you'll like its flavor better.  That said, you have to make sure its juwari or 100% soba which is hard to find in many places. Some health food shops have it. Finding it in Hong kong may be a challenge but I bet you could mail order from Japan.  The only other noodles to find in HK would be rice noodles which are ok but not  as good as the juwari soba.  good luck

 

Thanks. I'll try and track juwari down.  Yeah, rice noodles are ok.  Vietnamese restaurants are an obvious choice for a poor Ramen substitute.  Not so much because of the noodles, but I find the broth so bland in comparison.  Unless it's spiced-up but then spicy food generally makes me want a cold beer, which kind of defeats the object :(

kenlove Rising Star

it is pretty easy to make yourself once you get a good miso         made with  rice and not barley.  I've been desperate enough to use gluten-free spaghetti noodles  with miso. once you get your own broth you gonna really enjoy it

Thanks. I'll try and track juwari down.  Yeah, rice noodles are ok.  Vietnamese restaurants are an obvious choice for a poor Ramen substitute.  Not so much because of the noodles, but I find the broth so bland in comparison.  Unless it's spiced-up but then spicy food generally makes me want a cold beer, which kind of defeats the object :(

Pegleg84 Collaborator

I also miss the ramen... and there's so many ramen restaurants popping up around here. Of course, if the wheat didn't kill me, the soy would, so that's off the menu.

 

I guess you have to examine why you've cut out gluten. If you're feeling better without it, then probably best to stay away. are you avoiding all gluten, or just wheat? I imagine it's a bit tougher to be 100% gluten-free in Hong Kong.

Of course, if you do decide to cave, and feel like crud, then you'll know for sure.

 

Personally, I'd choose the beer (though there are great gluten-free beers out there now. Not sure if you could get anything in HK, but there's a few being made in New Zealand. Kiwi hops. mmmmmmm)

 

I have also seen gluten-free ramen from a Japanese company. It's like fresh rice pasta. I keep meaning to try some, but not sure how to make the broth properly. Not sure what it was called, but you could look for it.

 

In the meantime, pho will have to do.

kenlove Rising Star

there are a lot of other gluten free noodles popping up around Japan. Wheat  allergies in children are  growing at an alarming  rate.

The sorghum pasta is nice  and  ramen like fettuchini made from  millet is great. 

ive had most of them and still like the juwari soba the best.

 

I also miss the ramen... and there's so many ramen restaurants popping up around here. Of course, if the wheat didn't kill me, the soy would, so that's off the menu.

 

I guess you have to examine why you've cut out gluten. If you're feeling better without it, then probably best to stay away. are you avoiding all gluten, or just wheat? I imagine it's a bit tougher to be 100% gluten-free in Hong Kong.

Of course, if you do decide to cave, and feel like crud, then you'll know for sure.

 

Personally, I'd choose the beer (though there are great gluten-free beers out there now. Not sure if you could get anything in HK, but there's a few being made in New Zealand. Kiwi hops. mmmmmmm)

 

I have also seen gluten-free ramen from a Japanese company. It's like fresh rice pasta. I keep meaning to try some, but not sure how to make the broth properly. Not sure what it was called, but you could look for it.

 

In the meantime, pho will have to do.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,033
    • Most Online (within 30 mins)
      7,748

    davidvibezb
    Newest Member
    davidvibezb
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Jmartes71
      Thankyou so much for your words.Its a hard battle when a supposed well known hospital whose celiac " specialist " has down played me because my colon looks fine and put it in my medical and so pcp doesn't take seriously. In their eyes we all carry that gene.Im having alot of bad days trying to be positive because of it.
    • Scott Adams
      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
    • Scott Adams
      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
    • NanCel
      Hello, no I had to have them re done and then used a liner over the top.  Many dentists are not aware of the celiac effects.  Best of luck.   There is other material, yet, very expensive.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.