Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac It Is

ArPlasma

Recommended Posts

ArPlasma Rookie
ArPlasma
Posted

After the longest wait, we have the results of the biopsy for DS1 and it is positive and confirmed the Celiac diagnosis. We got a note from the doctor for the school which hopefully is going to help us keep him a bit safer from gluten at school.

It's been almost 4 weeks since the biopsy and he has been already feeling much better( started the gluten-free diet right after biopsy). No more tummy aches or headaches and his teacher sent me a note yesterday about his increased focus and responsiveness in class. I am hoping this lasts and we can keep him from being glutened as much as possible.

Is it Okay to be happy for finally getting a diagnosis? This just feel like a relief somehow. It is a very strange feeling.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


GottaSki Mentor
GottaSki
Posted

Absolutely...we were extremely happy to finally have a diagnosis.  It is a very good feeling to realize we can improve our health by changing the foods we eat rather than more invasive medical treatments or medications!

 

Congratulations on the completion of a tough process...glad to hear your little one is improving...keep up the great work :)

StephanieL Enthusiast
StephanieL
Posted

I'm glad you have answers! Now onto working with the school to get the accommodations he needs!  And YES, it's okay to be glad you have answers!!

1desperateladysaved Proficient
1desperateladysaved
Posted

Glad you got definitive answers.  Happy to hear that it seems to be helping!

 

D

africanqueen99 Contributor
africanqueen99
Posted

Great job, Mom! Look, he's already healing and starting his journey. :)

Keep it up and stay on top of the school!

ArPlasma Rookie
ArPlasma
Posted
  • Author

Thanks everyone! Next on the list is working on the 504 plan for school.

WinterSong Community Regular
WinterSong
Posted

It is AMAZING to have a diagnosis. I considered it a huge blessing to finally have found out what was wrong and that there was something I could do about it. And so many people struggle with getting a diagnosis in the first place. So yes, be happy! Congratulations! You are now ready to help change his life for the better :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


africanqueen99 Contributor
africanqueen99
Posted

:)

 

I just went through the 504 process and it was SO MUCH EASIER than I expected.  Man, I was expecting a fight and going all "mama bear" on them and it was really an easy and engaging process.

nvsmom Community Regular
nvsmom
Posted

:) I hope he continues to feel better.  Good catch on that, Mom!

ArPlasma Rookie
ArPlasma
Posted
  • Author

Thanks everyone! The school has been great so far, they had already passed a note to the teachers before diagnostic but now the nurse made it known to everyone that it is official. We are still writing the 504. We took a break this week- end, I finally gottorelax a bit and of course I got sick. I always catch something( cold), after being stressed out for too long. :)

DS's school teachers as well as karate instructor have been commenting on his increased responsiveness.

Cara in Boston Enthusiast
Cara in Boston
Posted

Glad you have answers.  Be sure to get everyone else in the family tested.

ArPlasma Rookie
ArPlasma
Posted
  • Author

Glad you have answers.  Be sure to get everyone else in the family tested.

We did. DD tested negative on all. DS2 tested negative on all as well( very close to positive on TTG- IgA and has a skin rash similar to what DS1 at the same age), DH tested positive on ttgs and just had his endo, waiting for results. His GI told him that given blood tests and family history, even if the biopsy is negative for him it most likely means that they have not found damage yet. So everyone is going gluten-free in the house! DD can eat gluten at school and outside, DS2 not at school yet so he will be gluten-free for now.

  • 2 weeks later...
cmc811 Apprentice
cmc811
Posted

After the longest wait, we have the results of the biopsy for DS1 and it is positive and confirmed the Celiac diagnosis. We got a note from the doctor for the school which hopefully is going to help us keep him a bit safer from gluten at school.

It's been almost 4 weeks since the biopsy and he has been already feeling much better( started the gluten-free diet right after biopsy). No more tummy aches or headaches and his teacher sent me a note yesterday about his increased focus and responsiveness in class. I am hoping this lasts and we can keep him from being glutened as much as possible.

Is it Okay to be happy for finally getting a diagnosis? This just feel like a relief somehow. It is a very strange feeling.

Having an official diagnosis is something I would be thrilled about! No one ever wants to hear something wrong with their child but you can't help them if you don't know. Making them better is the ultimate goal so celebrate all you want :)

 

If you don't mind me asking, how old is he and what bloodwork results did he have before biopsy?

ArPlasma Rookie
ArPlasma
Posted
  • Author

Having an official diagnosis is something I would be thrilled about! No one ever wants to hear something wrong with their child but you can't help them if you don't know. Making them better is the ultimate goal so celebrate all you want :)

 

If you don't mind me asking, how old is he and what bloodwork results did he have before biopsy?

Nope don't mind, everything was positive:

tTG- IgG:46, tTG-IgA >100, EMA 1:160

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to Matthias's topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

      Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products...
    2. Matthias
      - Matthias posted a topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

      The one kind of food I had been buying and eating without any worry for hidden gluten were unprocessed veggies. Well, yesterday I discovered yet another pitfall: cultivated mushrooms. I tried some new ones, Shimeji to be precise (used in many asian soup and rice dishes). Later, at home, I was taking a closer look at the product: the mushrooms were growing...
    3. trents
      - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      how much gluten do I need to eat before blood tests?

      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen...
    4. Scott Adams
      - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that y...
    5. Scott Adams
      - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid mul...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,324
    • Most Online (within 30 mins)
      7,748
    mao5617
    Newest Member
    mao5617
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • trents
      Unexpected gluten exposure risk from cultivated mushrooms

      By trents · Posted

      Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products containing yeast because of the fact that they are sometimes cultured on gluten-containing substrate.
    • Matthias
      Unexpected gluten exposure risk from cultivated mushrooms

      By Matthias · Posted

      The one kind of food I had been buying and eating without any worry for hidden gluten were unprocessed veggies. Well, yesterday I discovered yet another pitfall: cultivated mushrooms. I tried some new ones, Shimeji to be precise (used in many asian soup and rice dishes). Later, at home, I was taking a closer look at the product: the mushrooms were growing from a visible layer of shredded cereals that had not been removed. After a quick web research I learned that these mushrooms are commonly cultivated on a cereal-based medium like wheat bran. I hope that info his helpful to someone.
    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      IBS-D vs Celiac

      By Scott Adams · Posted

      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Question

      By Scott Adams · Posted

      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.