Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Coming Up On 9 Months gluten-free And 7.5 Months Li

ItchyAbby

By ItchyAbby
in Dermatitis Herpetiformis

Recommended Posts

ItchyAbby Enthusiast
ItchyAbby
Posted

And I just wanted to check in/report/send you all love and hugs.

 

I am doing really well. Like, REALLY well.  :D  I keep saying to my family that I feel like a new person - calmer, more focused, waaaay less anxious than ever before in my life. I stopped the Xanax back in December and have been enjoying this new calm in the center of my being. It's wild. I hope it stays! And my digestion is impeccable - too bad it's not something you can really share with people...well, outside of these forums anyway. :lol:

 

The rash still comes and goes but it is so much less of a problem: less itchy, flares clear up quickly, no big blisters, smaller hives in general. I am hopeful that the purple-brown spots will fade in time, but honestly, I can live with it. Looking like a leopard-human hybrid is a small price to pay for feeling as good as I do.

 

And finally, I want to apologize for not being around very much. When I first started coming here I was so thankful for the kind and loving support that I said to myself "You need to make sure you pay it forward when you are better and help others here." But, you see, one of the wonderful things that came out of this horrible, scary, chaotic last year was that I decided to go back to school for Nutritional Therapy Training and that is keeping me VERY busy. So, I am sorry to not be around, but know that I am thinking of you all.

 

To the newbies struggling with DH: IT DOES GET BETTER! Take heart, you will get through this. Love your body, it's an amazing vessel. Feed yourself simple whole foods so it can heal optimally. (If you'd like to read a good and not-too-lengthy book on optimal nutrition, check out Eat Naked by Margaret Floyd) Sleep, slow down, drink water. Time and patience are your best allies.

 

Love and BIG HUGS!

(Much Less Itchy) Abby

 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


squirmingitch Veteran
squirmingitch
Posted

Goooooooooooooooooooooooooooooooooooooooooooo Abby!!!!!!!!!!hurray.gifhurray.gifhurray.gifhurray.gif

 

What wonderful news from you! I'm so happy! Watch me grin. :D  :D  :D  :D  :D  :D  :D  :D  :D  :D  :D  :D  :D 

 

Congratulations girl!

ItchyAbby Enthusiast
ItchyAbby
Posted
  • Author

Thank you, my dear squirmy! *twirlydance* :wub:

powerofpositivethinking Community Regular
powerofpositivethinking
Posted

fantastic news from the feeling better to studying nutrition  :D  :D  :D

GF Lover Rising Star
GF Lover
Posted

Wow Abbster....What A GREAT report back.  So very proud of you. :D  :D  :D  :D  :D  :D  :D  :D  :D  :D  :D  :D

 

Hugs and Hugs :D  :D  :D  :D  :D  :D  :D  :D

 

Colleen

cyclinglady Grand Master
cyclinglady
Posted

Congrats! So happy for you and so glad that you have given others hope!

1desperateladysaved Proficient
1desperateladysaved
Posted

So good to hear!

 

D

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ItchyAbby Enthusiast
ItchyAbby
Posted
  • Author

Thank you all so much! Both for the words of encouragement now, and way back when I wandered in here, confused and sacred. This place is so important!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. RMJ
      - RMJ replied to Me,Sue's topic in Coping with Celiac Disease
      1

      Nausea

      I have trouble with nausea. It often starts when I’m anxious about something (home repairs, sick dog) but continues long after the home is repaired or the dog is healthy again. When it happens I eat less and lose weight. My gastroenterologist suggested ginger or peppermint tea. I don’t know if that will work or not because I haven't had the problem since she...
    2. Colleen H
      - Colleen H posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Stomach burning and neuropathy

      Hello I'm not sure what to think . Seems no matter what I do I get sick. I had some yogurt with only 2 grams of sugar and is labeled gluten free ...the strawberry version seemed to really set me off My jaw is burning as well as my stomach and my feet. Horrible pain..plus acid reflux and nausea... sensitivity to touch pain. ..yikes !! I...
    3. sleuth
      - sleuth replied to fatjacksonthecat's topic in Coping with Celiac Disease
      18

      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      Of course my son is on a 100% gluten free diet. I wish his symptoms were not debilitating as there are right now. He cannot work, even when a miniscule of cross contamination occurs. It's not just GI distress, but intense fatigue, brain fog, depression, anxiety, insomnia, etc. It's literally neurological inflammation. Not to be taken lightly here. We...
    4. Scott Adams
      - Scott Adams replied to fatjacksonthecat's topic in Coping with Celiac Disease
      18

      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      Have you tried AN-PEP enzymes, for example, GlutenX (who is a sponsor here)? A lot of research has shown that it can break down small amounts of gluten in the stomach, before it reaches the intestines. It might be a better approach than risking nicotine addiction, and the questionable research around this. I also hope that he’s trying to be 100% Gluten-F...
    5. Me,Sue
      - Me,Sue posted a topic in Coping with Celiac Disease
      1

      Nausea

      Hi all I was diagnosed Coeliac a few years ago and follow a gluten free diet. The list of foods that I can eat without a problem grows shorter on a weekly basis. [I also have diabetes and asthma also]. BUT the reason I am posting this is because I seem to struggle with nausea quite a lot, which is really quite debilitating, and I was wondering...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,838
    • Most Online (within 30 mins)
      7,748
    Sarah C37
    Newest Member
    Sarah C37
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • RMJ
      Nausea

      By RMJ · Posted

      I have trouble with nausea. It often starts when I’m anxious about something (home repairs, sick dog) but continues long after the home is repaired or the dog is healthy again. When it happens I eat less and lose weight.  My gastroenterologist suggested ginger or peppermint tea. I don’t know if that will work or not because I haven't had the problem since she suggested it.
    • Colleen H
      Stomach burning and neuropathy

      By Colleen H · Posted

      Hello  I'm not sure what to think . Seems no matter what I do I get sick. I had some yogurt with only 2 grams of sugar and is labeled gluten free ...the strawberry version seemed to really set me off My jaw is burning as well as my stomach and my feet.  Horrible pain..plus acid reflux and nausea... sensitivity to touch pain. ..yikes !! I don't know if it's from the lactose in the yogurt or if I'm getting an ulcer  This condition can make you question yourself quite a bit.  Then if you are not sure the anxiety comes 😞 Does any of these symptoms sound familiar to anyone? The neuropathy is quite intense.  What do you eat or drink after this happens  Open to suggestions  Thank you 
    • sleuth
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By sleuth · Posted

      Of course my son is on a 100% gluten free diet.  I wish his symptoms were not debilitating as there are right now.  He cannot work, even when a miniscule of cross contamination occurs.  It's not just GI distress, but intense fatigue, brain fog, depression, anxiety, insomnia, etc.  It's literally neurological inflammation.  Not to be taken lightly here.  We have sought out many other possible ways to cope during this window of time (8 months!!!!)  without success.   AN-PEP does not help and seems like studies on this are not well researched.  So, we are trying this out because research shows some promising results.  And, all participants showed no cravings afterwards, no signs of addiction.  The patch is different than the oral route such as smoking, vaping, gum, pouch, etc. 
    • Scott Adams
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By Scott Adams · Posted

      Have you tried AN-PEP enzymes, for example, GlutenX (who is a sponsor here)? A lot of research has shown that it can break down small amounts of gluten in the stomach, before it reaches the intestines. It might be a better approach than risking nicotine addiction, and the questionable research around this. I also hope that he’s trying to be 100% Gluten-Free.
    • Me,Sue
      Nausea

      By Me,Sue · Posted

      Hi all  I was diagnosed Coeliac a few years ago and follow a gluten free diet. The list of foods that I can eat without a problem grows shorter on a weekly basis. [I also have diabetes and asthma also].  BUT the reason I am posting this is because I seem to struggle with nausea quite a lot, which is really quite debilitating, and I was wondering if others suffer from nausea, even if following a gluten free diet. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.