Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Liquid Diet Option?


Branchler

Recommended Posts

Branchler Newbie

Hi I'm new to the boards but I have been browsing them unregistered for about 4 years now. Let me give some background before I get to my point.

I diagnosed myself with celiac about 4 years ago after googling the strange symptoms I was having at the time. And further confirmed it by accidentally having large meals filled with gluten, and the resulting horrible, tear-inducing D. Jump forward a couple years and I start to have chronic pain and tension in my shoulder muscles and neck. Sometimes resulting in crippling pain, migraine, light and sound sensitivity, and nausea.

Skip forward a year or so and I randomly decided to stop eating rice. Within 1 to 2 days my muscle pain was greatly reduced. (I had been living with it non-stop for a couple years by then.) After a month or so I grew used to the new level of pain and wanted it to go away even more. So I stopped eating potatoes to see how that would go. The pain became a bit less. But it's still here. -I should also note that I went on and off of dairy (because I love cheese) and everytime i was eating it, i would slowly get more and more painful.-

 

Skip forward to about 3 weeks previous to current time, I found this autoimmune protocol diet cook book online and have started to try to live off of it. It bans many many foods including dairy, soy, potatoes, sugar, large amounts of fruit, all grains (rice, corn, etc) and more. My current problem, for the last week or so I have been incredibly weak. Shoulder and neck pain is at a steady medium, and some days I feel like I do today- My body goes through a great deal of stress and then i feel like i need to poo, i try to go and there's nothing. not even the urge to poo. I may feel a bit better, less weak for 30 min or so its random, and then more stress and phantom urges to poo. Eating is very difficult and walking nearly makes me collapse or faint. Cooking these special meals from scratch is out of the question when im like this. 

 

I also suffer from very very bad memory. This shoulder tension and pain led me to believe i probably have fibromayalgia, potentially caused by or a result of celiac disease. maybe a result of my body mistaking rice and other food for gluten. 

 

My life has become incredibly hard and I am constantly battling to stay positive and look to the future. I can't see a doctor unless I believe it's absolutely urgent (colon cancer or something) because I have no money.

 

My question for you (unless you've spotted something you can advise me about from my above background) is if you know of a high calorie liquid product i can drink that is celiac safe, dairy free, and low on sugar. those are the main issues. I've looked at ensures and they all seem to have dairy, claims to be lactose free but i react to it anyway.

 

Thank you for your time and (hopefully) your help. :) I wish you all the best.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



BethM55 Enthusiast

Hi.  Have you looked into Juice Plus?  I haven't looked at their blender mix label in a very long time, but it might work for you.  I'm also responding to bump up your post.  I hope someone responds who knows more than I do!  There was discussion in another post about people reacting to some brands of rice but not others.  There was a general concensus that Lundberg organic brand is well tolerated.

 

That said, I do have fibromyalgia, and have found improvement with being gluten free. 

NoGlutenCooties Contributor

Have you looked into the Nutribullet?  My mother has been going through some extensive dental issues and has been on pretty much a liquid diet for about a year and has great results with it.  You can put pretty much anything in there.  Also, take a look at Designer Whey.  It is whey protein, which is a dairy derivative but from what I've read it seems many people with dairy issues can tolerate the whey protein.  I *think* because it does not have lactose in it - but you'll want to double check that.  I use their French Vanilla flavor as it is lower in sugar and higher in protein than their other varieties.  I've also found that it doesn't have the nasty chemical-like aftertaste that many protein powders have.

 

As for Juice Plus, I used to take the capsules (fruit and veggie ones) but they have oat bran in them.  I can't tolerate oats and I know many Celiacs have this problem, so you may want to be careful with those.  Not sure about the cross-contamination possibilities with it either.

GottaSki Mentor

At times I've had to live off liquid diets as my digestive system flares and will not tolerate even my safe foods in whole form.

 

Over the years we have tried many meal replacement drinks including very expensive medical grade drinks and never found one I could tolerate due to the chemicals they use to produce them.

 

If you are having some luck with the AI diet you found...I highly suggest you make your own soups based on the whole food items you are tolerating.  My freezer always has homemade broth and at least one batch of pureed soup, like carrot, chicken, garlic or brocolli, beef.  These soups aren't much to look at but taste fine and get real nutrients into me without added stress to my inflammed system.

 

Cook when you can and use the frozen soups and broths when you cannot.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - SilkieFairy replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      results from 13 day gluten challenge - does this mean I can't have celiac?

    2. - Wheatwacked replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      Supplements for those Diagnosed with Celiac Disease

    3. - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      results from 13 day gluten challenge - does this mean I can't have celiac?

    4. - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      Supplements for those Diagnosed with Celiac Disease

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,359
    • Most Online (within 30 mins)
      7,748

    Atlanta GF
    Newest Member
    Atlanta GF
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • SilkieFairy
      I am doing a gluten challenge right now and I bought vital wheat gluten so I can know exactly how much gluten I am getting. One tablespoon is 7g so 1½ tablespoons of Vital Wheat Gluten per day will get you to 10g You could add it to bean burgers as a binder or add to hot chocolate or apple sauce and stir. 
    • Wheatwacked
      Raising you vitamin D will increase absorption of calcium automatically without supplementation of calcium.  A high PTH can be caused by low D causing poor calcium absorption; not insuffient calcium intake.  With low D your body is not absorbing calcium from your food so it steals it from your bones.  Heart has priority over bone. I've been taking 10,000 IU D3 a day since 2015.  My doctor says to continue. To fix my lactose intolerance, lots of lactobacillus from yogurts, and brine fermented pickles and saurkraut and olives.  We lose much of our ability to make lactase endogenosly with maturity but a healthy colony of lactobacillus in our gut excretes lactase in exchange for room and board. The milk protein in grass fed milk does not bother me. It tastes like the milk I grew up on.  If I drink commercial milk I get heartburn at night. Some experts estimate that 90% of us do not eat Adequite Intake of choline.  Beef and eggs are the principle source. Iodine deficiency is a growing concern.  I take 600 mcg a day of Liquid Iodine.  It and NAC have accelerated my healing all over.  Virtually blind in my right eye after starting antihypertensive medication and vision is slowly coming back.  I had to cut out starches because they drove my glucose up into the 200+ range.  I replaced them with Red Bull for the glucose intake with the vitamins, minerals and Taurine needed to process through the mitochodria Krebs Cycle to create ATP.  Went from A1c 13 down to 7.9.  Work in progress. Also take B1,B2,B3,B5,B6. Liquid Iodine, Phosphatidyl Choline, Q10, Selenium, D and DHEA.     Choline supplemented as phosphatidylcholine decreases fasting and postmethionine-loading plasma homocysteine concentrations in healthy men +    
    • knitty kitty
      @catnapt, Wheat germ has very little gluten in it.  Gluten is  the carbohydrate storage protein, what the flour is made from, the fluffy part.  Just like with beans, there's the baby plant that will germinate  ("germ"-inate) if sprouted, and the bean part is the carbohydrate storage protein.   Wheat germ is the baby plant inside a kernel of wheat, and bran is the protective covering of the kernel.   Little to no gluten there.   Large amounts of lectins are in wheat germ and can cause digestive upsets, but not enough Gluten to provoke antibody production in the small intestines. Luckily you still have time to do a proper gluten challenge (10 grams of gluten per day for a minimum of two weeks) before your next appointment when you can be retested.    
    • knitty kitty
      Hello, @asaT, I'm curious to know whether you are taking other B vitamins like Thiamine B1 and Niacin B3.  Malabsorption in Celiac disease affects all the water soluble B vitamins and Vitamin C.  Thiamine and Niacin are required to produce energy for all the homocysteine lowering reactions provided by Folate, Cobalamine and Pyridoxine.   Weight gain with a voracious appetite is something I experienced while malnourished.  It's symptomatic of Thiamine B1 deficiency.   Conversely, some people with thiamine deficiency lose their appetite altogether, and suffer from anorexia.  At different periods on my lifelong journey, I suffered this, too.   When the body doesn't have sufficient thiamine to turn food, especially carbohydrates, into energy (for growth and repair), the body rations what little thiamine it has available, and turns the carbs into fat, and stores it mostly in the abdomen.  Consuming a high carbohydrate diet requires additional thiamine to process the carbs into energy.  Simple carbohydrates (sugar, white rice, etc.) don't contain thiamine, so the body easily depletes its stores of Thiamine processing the carbs into fat.  The digestive system communicates with the brain to keep eating in order to consume more thiamine and other nutrients it's not absorbing.   One can have a subclinical thiamine insufficiency for years.  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so the symptoms can wax and wane mysteriously.  Symptoms of Thiamine insufficiency include stunted growth, chronic fatigue, and Gastrointestinal Beriberi (diarrhea, abdominal pain), heart attack, Alzheimer's, stroke, and cancer.   Thiamine improves bone turnover.  Thiamine insufficiency can also affect the thyroid.  The thyroid is important in bone metabolism.  The thyroid also influences hormones, like estrogen and progesterone, and menopause.  Vitamin D, at optimal levels, can act as a hormone and can influence the thyroid, as well as being important to bone health, and regulating the immune system.  Vitamin A is important to bone health, too, and is necessary for intestinal health, as well.   I don't do dairy because I react to Casein, the protein in dairy that resembles gluten and causes a reaction the same as if I'd been exposed to gluten, including high tTg IgA.  I found adding mineral water containing calcium and other minerals helpful in increasing my calcium intake.   Malabsorption of Celiac affects all the vitamins and minerals.  I do hope you'll talk to your doctor and dietician about supplementing all eight B vitamins and the four fat soluble vitamins because they all work together interconnectedly.  
    • Florence Lillian
      Hi Jane: You may want to try the D3 I now take. I have reactions to fillers and many additives. Sports Research, it is based in the USA and I have had no bad reactions with this brand. The D3 does have coconut oil but it is non GMO, it is Gluten free, Soy free, Soybean free and Safflower oil free.  I have a cupboard full of supplements that did not agree with me -  I just keep trying and have finally settled on Sports Research. I take NAKA Women's Multi full spectrum, and have not felt sick after taking 2 capsules per day -  it is a Canadian company. I buy both from Amazon. I wish you well in your searching, I know how discouraging it all is. Florence.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.