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Gastritis Flare Up? Time To Find A Gi?


Pegleg84

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Pegleg84 Collaborator

Hi all,

 

I was going to revive an old thread from the dead, but those often get overlooked, so if you want the background story, take a look here

https://www.celiac.com/forums/topic/99003-gastritis/?hl=gastritis

 

I had an endoscopy fall 2012 and they did see some mild gastritis. I saw a GI once last January, but it was kind of useless as he didn't address the gastritis at all.

 

One year later, Doing relatively better. No (discernable) glutenings recently. I was even a good girl and did almost all my own cooking on vacation a couple weeks ago (packed pans and cutting board in my luggage and the whole bit!). But no matter how safe/careful I've been, I've been having more and more issues with random nausea after eating, aches, tired, slight heartburn, anxiety is up, etc etc. It is possible that I did suffer a mild glutening (no real, um, bathroom issues) that's just worn me down, and/or my gastritis might be flaring up again.

 

I have no clue if the gastritis ever healed, or got worse, or what. The pain/nausea I've been having does fit the description. It's all up along my left side, and the lower part of my chest. I haven't been physically sick because of it, but often feel like I could. Afternoons at work have been rough cause I've been nauseous after eating. I haven't been cooking anything unusual or that anything that should bother me. (It could be a new intolerance, but even then it seems to be pretty random)

 

In any case, I'm thinking it might be time to see another gastroenterologist and get things checked out properly, see if that gastritis is still kicking around and find out what I should do about it. Any advice/opinions on that? (If anyone knows a good GI in Toronto, that would be a big help). I'm not looking forward to another round of appointments and waiting and tests and possible dead ends, but I think I might have to. I'm going to do some research and take a few names to my doctor this time.

 

I'm so sick of being sick! Blaargh!

 

Thanks guys


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IrishHeart Veteran

gastritis is inflammation of the GI tract.

so, what causes it?

 

 

"Gastritis can be caused by irritation due to excessive alcohol use, chronic vomiting, stress, or the use of certain medications such as aspirin or other anti-inflammatory drugs. It may also be caused by any of the following:

  • Helicobacter pylori (H. pylori): A bacteria that lives in the mucous lining of the stomach. Without treatment the infection can lead to Open Original Shared Link, and in some people,Open Original Shared Link.
  • Pernicious Open Original Shared Link: A form of anemia that occurs when the stomach lacks a naturally occurring substance needed to properly absorb and digest vitamin B12.
  • Bile reflux: A backflow of bile into the stomach from the bile tract (that connects to the liver and gallbladder).
  • Infections caused by bacteria and viruses.
  • Open Original Shared Link
  •  
  • So....could any of these be an issue ? And probiotics are a great help with gastritis.... FWIW
MJ-S Contributor

My endoscopy showed chronic gastritis when I was first diagnosed. I was tested for all the things IrishHeart mentioned - everything was negative. Severe symptoms went away when I stopped eating gluten. Gastritis just means inflammation of the stomach lining, so no reason this can't just be celiac damage that affects some of us in this area. Probiotics have made no discernible difference for me.

 

I have almost identical intolerances to yours (except the brown rice). When I react, I get gastritis symptoms, especially if it's a dairy reaction. Cross-contamination is a real possibility, although I agree that if you can't quickly pinpoint a pattern with your diet you should see a GI and get some tests run, just in case it's something else. 

 

I'm curious - have you verified that your egg intolerance is actually from eggs? As my soy intolerance grew more sensitive, I started having trouble with eggs. I tried soy-free eggs (from chickens that were not fed any soy) and was totally fine with them. I now cannot even tolerate any baked goods that have egg as an ingredient (just egg whites seem ok), but am totally fine as long as the egg is soy-free. Worth investigating, at least.

 

And I agree - soy is the root of all evil (well, along with gluten). Do not underestimate its ability to hide and make you miserable.

Pegleg84 Collaborator

Hey guys,

 

The endoscopy that showed the gastritis inflammation was looong after going gluten-free (5 years today!). I just have no idea what caused it in the first place, or if the pain I keep getting is it coming back, for whatever reason.

I've been feeling better the past few days, so fingers crossed I've gotten past whatever it was. I am going to talk to my doctor about it when I see her next, but it all comes down to diet anyway so maybe an elimination is in order. I do find I have more trouble with grains in general these days. Blergh.

 

Re: other intolerances: I can eat eggs in baked goods ok, just not on their own or as the main ingredient. Things like brown rice is "a little bit is ok, but not a whole bowl of it" type of thing. That is interesting about soy-free eggs though. I'll look into it. Soy is evil. EVIL!

 

in any case, I've stopped panicking. We'll see what happens. I keep up with my digestive enzymes, and I should try a probiotic I guess (just found some yogurt I can eat and it tastes like good! so that'll help too)

 

Anyway, thanks guys.

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    • xxnonamexx
      What about digestive enzymes that I hear help? I take align 5x probiotics daily.
    • Samanthaeileen1
      thank you RMJ! That is very helpful advice. Good to know we aren’t crazy if we don’t do the endoscopy. We are going to try the gluten free and see how symptoms and levels improve.    thank you Wheatwacked (love the username lol) that is also reassuring. Thankfully she has an amazing and experienced pediatrician. And yesss I forgot to mention the poop! She has the weirdest poop issues.    How long did it take y'all to start seeing improvement in symptoms? 
    • Wheatwacked
      My son was diagnosed when he was weaned in 1976 after several endoscopies.  Given your two year old's symptoms and your family history and your pediatrition advocating for the dx, I would agree.  Whether an endoscopy is positive or negative is irrelevant.   That may happen even with endoscopy.  Pick your doctors with that in mind. In the end you save the potential trauma of the endoscopy for your baby.   Mine also had really nasty poop.  His doctor started him on Nutramigen Infant because at the time it was the only product that was hypo allergenic and had complete nutrition. The improvement was immediate.
    • RMJ
      So her tissue transglutaminase antibody is almost 4x the upper end of the normal range - likely a real result. The other things you can do besides an endoscopy would be: 1.  Genetic testing.  Unfortunately a large proportion of the population has genes permissive for celiac disease, but only a small proportion of those with the genes have it. With family history it is likely she has the genes. 2.  Try a gluten free diet and see if the symptoms go away AND the antibody levels return to normal. (This is what I would do). Endoscopies aren’t always accurate in patients as young as your daughter. Unfortunately, without an endoscopy, some doctor later in her life may question whether she really has celiac disease or not, and you’ll need to be a fierce mama bear to defend the diagnosis! Be sure you have a good written record of her current pediatrician’s diagnosis. Doing a gluten challenge for an endoscopy later in life could cause a very uncomfortable level of symptoms.   Having yourself, your husband and your son tested would be a great idea.  
    • Samanthaeileen1
      here are the lab ranges.  Normal ranges for tissue transglutaminase are: <15.0 Antibody not detected > or = 15.0 Antibody detected normal for endomysial antibody is < 1.5. So she is barely positive but still positive. 
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