Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Accurate Information


gilligan

Recommended Posts

gilligan Enthusiast

Did anyone see the Katie Show today?  She had a Dr. Hyman from the UltraWellness Center on the show as a guest.  I question two things that he said: 1)  when you lick envelopes, it's the gluten that's making the "stickiness"  and 2) that testing is available for gluten sensitivity although it's not that reliable.  Aren't envelopes gluten free, and I thought there wasn't any test for ncgs?

 

I wasn't really sure where to post this, so that's why it's under this category.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mamaw Community Regular

Years ago  envelopes  contained  gluten but  haven't  heard  of any  lately....NCGS,,,, they are  working  on  testing  , ... Not sure  who  Dr Hyman is....lots  of  inaccurate   info  floating  around..... one  chews  it up  , spits  it  out  &  there  it  is......I  don't  swallow everything  Dr Oz  comes out  with  either!

IrishHeart Veteran

(1) "Tonya Muse, senior vice president of the Envelope Manufacturers Association, states that adhesives used on envelopes do not contain gluten.There are actually only a few envelope glue manufacturers in the US. National Starch & Chemical, a New Jersey company, is one of the largest adhesive suppliers in the world. A company spokesperson says it makes its glue from corn, which is gluten free"

 

P.S. I lick envelopes to seal them and I am fine.

 

(2) At this time, there are NO valid tests for gluten sensitivity.

 

from the center where Dr. Fasano, a leading celiac researcher works:

 

"Although researchers at the Center for Celiac Research are working to develop tests for gluten sensitivity, currently there are no definitive blood tests for the condition."

Open Original Shared Link

 

(3) The internet is full of opinions and wild speculation--about gluten and other things. Choose wisely.

gilligan Enthusiast

Thanks for the responses.  I was sure he was wrong on those points, but I've never really heard a doctor on tv talk about gluten before, so I was shocked when he made those statements.  I had a little time so I looked him up - 

 

"Mark Hyman, MD is an American physician, scholar and author. He is the founder and medical director of the UltraWellness Center and a columnist for The Huffington Post. Hyman is a regular contributor to the Katie Couric Show."

 

Get your facts straight, doc!

IrishHeart Veteran

Thanks for the responses.  I was sure he was wrong on those points, but I've never really heard a doctor on tv talk about gluten before,

 

 

As I understand it, Dr. Oz talks about it all the time and he is equally adept at giving wrong info. :) 

notme Experienced

As I understand it, Dr. Oz talks about it all the time and he is equally adept at giving wrong info. :)

the last time i was privy to his spew, he was working the angle that gluten free would miraculously make you lose weight.   lolz - i am sitting here at 119 lbs (up from 97 lbs 3 1/2 yrs ago when i was dx'd)  struggling to gain more.  what a load of crap..............  <_<

NoGlutenCooties Contributor

The way I look at it is if they were such great doctors then they would be way too busy to do a TV show.  They're there for entertainment value.  Once in awhile they may say something valuable, but I don't trust them to know much about much of anything important.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Gemini Experienced

the last time i was privy to his spew, he was working the angle that gluten free would miraculously make you lose weight.   lolz - i am sitting here at 119 lbs (up from 97 lbs 3 1/2 yrs ago when i was dx'd)  struggling to gain more.  what a load of crap..............  <_<

I hear ya on that one, Arlene!  I was 94 at diagnosis 9 years ago and now am 110 or 112....on a fat day.  I do weight training so that will account for some of the calorie burn but gain a lot of weight after diagnosis?  Not for some of us.  There are other factors at play also but I have to work it to gain.  Not so crazy about gaining anymore as I am sick and tired of replacing clothes that do not fit.  It's getting expensive!  <_< I've done that twice already.

Gemini Experienced

The way I look at it is if they were such great doctors then they would be way too busy to do a TV show.  They're there for entertainment value.  Once in awhile they may say something valuable, but I don't trust them to know much about much of anything important.

Well said!  :)

notme Experienced

(hm.  my quote button is acting up :(  ) 

 

gem, I hear ya!  I got a closet full of clothes, all different sizes (NONE too big, though)  pants are my biggest misery, namely jeans.  my daughters go shopping with me with one hand over their face in embarrassment.  they know, at some point, I am going to go up to the sales girl and accuse them of changing the sizes (size ONE?  that shouldn't even be a size - then I saw size ZERO :blink: )  I finally got a pretty good fit with the American Eagle artist jeans (and they were even long enough!  yay!) and now, since I am getting a little meatier, if I wear a belt with them, I get sciatica.  <_< LOLOLZ I can not win!.  I ripped the butt out of two pairs.  (WHAT??!)  the zippers broke on every single pair I owned (that fit, at the time) jeans are the bane of my existence.

 

and, yes, cooter, I agree with you.  I have only seen my doctor wear makeup one time, and that was for charity.  he also wore a dress <hilarious!)  entertainment is their game.  right up there with jerry springer, lolz. ^_^

 

although, <on the today show, dr fancy nancy reported a story about an outbreak of measles in southern California.  vaccinate your children, people!  this disease has been, what, two generations eradicated?   there is a reason it hasn't been killing children:  vaccination.  :mellow:

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - lizzie42 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Son's legs shaking

    2. - trents replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

    3. - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

    4. - Paulaannefthimiou posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

    5. - jenniber replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,849
    • Most Online (within 30 mins)
      7,748

    Jadelucia
    Newest Member
    Jadelucia
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • lizzie42
      My 5yo was diagnosed with celiac last year by being tested after his sister was diagnosed. We are very strict on the gluten-free diet, but unsure what his reactions are as he was diagnosed without many symptoms other than low ferritin.  He had a school party where his teacher made gluten-free gingerbread men. I almost said no because she made it in her kitchen but I thought it would be ok.  Next day and for a few after his behavior is awful. Hitting, rude, disrespectful. Mainly he kept saying his legs were shaking. Is this a gluten exposure symptom that anyone else gets? Also the bad behavior? 
    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Are Bobresmill gluten free oats ok for sensitive celiacs?
    • jenniber
      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.