Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

504 Plan For Pre-K/kindergarten


Fourmonkeysjumping

Recommended Posts

Fourmonkeysjumping Rookie

Hi everyone,

My daughter is currently in preK (she's a peer model in an integrated public program) and currently does not have a 504.  We have never needed it with our son (3rd grade), because he has an amazing elementary school nurse who goes above and beyond.  Alas, we are now having to look into it for our daughter, because her teacher just really isn't getting it.  The final straw was an email we received yesterday asking if she could help make papier-mache as long as she wore gloves or should she just watch.  I explained the dangers of being in a class with flour (AGAIN) and sent some links along as well as alternatives (making it with watered down glue), but I'm now just feeling like it's time to move forward.

 

I would love to know ideas of what you have in your plans for young ones.  I know that the challenges they face are different than kids in an elementary class, so I don't want to miss anything.

Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



StephanieL Enthusiast

1) No food unless it's from home.

2) All art products are vetted by me.

3) If the school is archaic enough that they allow outside foods treats for birthdays, you get 48 hours notice.

4) Being there to monitor class parties. 

5) Access to bathroom as needed.

frieze Community Regular

at least the teacher is asking.....

dilettantesteph Collaborator

Good luck.  Some schools are better than others.  You must read things about it being a fad.  When it is people who deal with our children who have that opinion, it can be very difficult.  It is amazing to me that school administrators can believe that they know more about your child's health than your child's own doctors. 

africanqueen99 Contributor

We have an "agreement" with our Early Childhood Center because my youngest is currently only in Mom & Me classes (so I'm there).  She starts Kids Morning Out in the fall so we are putting her 504 in place this Spring.

 

Things we are addressing:

- only food from home and either NOT touched by any adult or served first

- her eating space needs to be clean before she sits

- she should eat at the end of the table (sandwiching the celiac preschooler between other gluten eaters is a bad idea)

- have a "birthday box" that she can have a treat from there when others bring in cupcakes/cookies for their day

- unrestricted access to bathroom and handwashing station (NO use of hand santizer)

- safe sensory table contents

- safe art supplies

Fourmonkeysjumping Rookie

Thankfully, at this point, she brings her own snack and the school requires all kids to wash their hands before and after eating (they started that just for her).  I send in all playdoh (the gluten-free kind from discount school supply) and she has a sink in her classroom.  So, on the whole, things have been okay.  Unfortunately, her teacher went out on maternity leave and the new teacher is pretty old school and likes things her way.  There are no class parties and no outside treats allowed at all in our district, so that makes life a LOT easier.  The art supplies issue is really the only one we have had (we had it with our oldest's kindergarten teacher, but she was just an idiot anyway).  I just want to make sure I don't miss anything.  I'm going to get moving on this ASAP.  I'll put in a call to the district nurse (I'm fortunate there, because her daughter is a Celiac!) and see where to go.  I've already dropped the word "504" in relation to this, so I"m hoping that scares them out of doing it tomorrow.  Frustrating!

africanqueen99 Contributor

Oh, I should have mentioned this above, but our ECC is through our school district and they bought all new playdoh tools for my kid in a box labeled "Gluten Free/Celiac".  They are prepared to move the box up with my youngest as she moves, but if another Celiac shows up we will share.  The alternative is for me to purchase all tools, playdoh making equipment (bowl, spoon, etc) and it becomes owned by my kid so no other teacher but hers will use it.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,915
    • Most Online (within 30 mins)
      7,748

    marcusdarrell1
    Newest Member
    marcusdarrell1
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      I followed the Autoimmune Protocol Diet which is really strict for a while, but later other foods can be added back into your diet.  Following the AIP diet strictly allows you digestive system to heal and the inflammation to calm down.  Sort of like feeding a sick baby easy to digest food instead of spicy pizza.   It's important to get the inflammation down because chronic inflammation leads to other health problems.  Histamine is released as part of the autoimmune response to gluten.  High histamine levels make you feel bad and can cause breathing problems (worsening asthma), cardiovascular problems (tachycardia), and other autoimmune diseases (Hashimoto's thyroiditis, diabetes) and even mental health problems. Following the low histamine version of the AIP diet allows the body to clear the histamine from our bodies.  Some foods are high in histamine.  Avoiding these makes it easier for our bodies to clear the histamine released after a gluten exposure.   Vitamin D helps regulate the immune system and calm it down.  Vitamin D is frequently low in Celiacs.  The B Complex vitamins and Vitamin C are needed to clear histamine.   Supplementing with essential vitamins and minerals boosts your intestines' ability to absorb them while healing.   Keep in mind that gluten-free facsimile foods, like gluten-free bread, are not enriched with added vitamins like their gluten containing counterparts are.   They are empty calories, no nutritional value, which use up your B vitamins in order to turn the calories into fuel for the body to function.   Talk to your doctor or nutritionist about supplementing while healing.  Take a good B Complex and extra Thiamine in the form Benfotiamine (shown to promote gut health).  Most B Complex vitamins contain thiamine mononitrate which the body cannot utilize.  Meats and liver are good sources of B vitamins.   Dr. Sarah Ballantyne wrote the book, the Paleo Approach.  She's a Celiac herself.  Her book explains a lot.   I'm so glad you're feeling better and finding your balance!
    • klmgarland
      So I should not eat my gluten free bread?  I will try the vitamins.  Thank you all so very much for your ideas and understanding.  I'm feeling better today and have gathered back my composure!
    • knitty kitty
      Some people prefer eating gluten before bed, then sleeping through the worst symptoms at night.  You might want to try that and see if that makes any difference.   Several slices of toast for breakfast sounds okay.  Just try to work up to the Ten grams of gluten.  Cookies might only have a half of a gram of gluten.  The weight of the whole cookie is not the same as the amount of gluten in it.  So do try to eat bread things with big bubbles, like cinnamon rolls.   Yeah, I'm familiar with the "death warmed over" feeling.  I hope you get the genetic test results quickly.  I despise how we have to make ourselves sick to get a diagnosis.  Hang in there, sweetie, the tribe is supporting you.  
    • Clear2me
      Thank you, a little expensive but glad to have this source. 
    • Xravith
      @knitty kitty  Thank you very much for the advice. I did the exam this morning, my doctor actually suggested me to take something called "Celiac duo test" in which I first do the genetic test and if it's positive, then I'll have to do the antigen blood test. I have to attend 1 month until my results are ready, so I have some weeks to increase the amount of gluten I eat daily. It will be hard because my health is not the best right now, but I also did a blood test to cheek my nutritional deficiencies. The results will arrive on Tuesday, so I can ask my doctor what should I do to control my symptoms and blood levels during this month. For now I'm resting and paying attention to what I eat— at least I don’t look like a vampire who just woke up, like I did yesterday. I'm still scared because is the first time I've felt this sick, but this is the right moment to turn things around for the better.  I realized that if I eat gluten at lunch I cannot finish the day properly, I become severely tired and sometimes my stomach hurts a lot - let's not talk about the bloating that starts later. Do you think is it ok to eat gluten just in the morning, like some cookies and slices of bread for breakfast? 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.