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Question For The Ladies!


Celiacandme

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Celiacandme Apprentice

Currently just over 5 months gluten free with some symptoms getting worse during healing process. Also new symptoms which might be related to rheumatology.

 

 

Out of curiosity, did anyone else notice symptoms being much worse just before your monthly cycle arrived or also perhaps around the time your body was trying to ovulate? If so, did that get better with time? Did this happen to you after going gluten free? Which kind of symptoms were worse for you during that time?


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VASpider Newbie

I actually always had really bad GI symptoms around the time my period would start. I just chalked this up to 'hormone changes' but now I know the gas & constipation (ugh) were due to celiac and somehow just got worse around that time. 

LauraTX Rising Star

I have celiac and lupus and mentioned to my rheumatologist that when I an PMSing everything just gets a little worse.  He said inflammation increases at that time and especially with lupus patients (lupus is an inflammatory disease) that is not uncommon.

nvsmom Community Regular

Every month I get back pain (often sciatic), migraines, fatigue, and some D. It's a bit better than it used to be, but not by a huge amount. I get the same symptoms, minus D but with cramping around ovulation... on the bright side it made timing trying to conceive pretty easy.  LOL ;)

 

I did not notice any monthly effect on my arthralgias.

kirstenB Newbie

Let me say that the first year is the roughest. The first year after going GlutenFree I glutened myself a lot & reactions were tenfold compared to before diagnosis. I also started to get cold sores on a regular basis near my period that I always had to stave off, which didn't happen previous. Have you been tested for vitamin & mineral deficiencies? That's a huge problem during the healing process cause body may not be absorbing from food or of you are taking supplements. I started getting vitamin B shots and taking rest of what I needed with dropper vitamins underneath my tongue. Also make sure you're getting enough zinc n vitamin D as well. Plus there are a wealth of fruits, veggies and herbs that help w/inflammation & the arthritis. Walnuts, lemon, asparagus, garlic & cauliflower are just a few. Have you tried an elimination diet? Sugar, dairy, soy, corn, etc...

Celiacandme Apprentice

Kirsten - I'm pretty much down to plain meat, fruits and vegetables. I was told tonight that recent blood work confirms that I also have lupus. So this could be why. I've been beyond diligent with my diet. I have been tested for deficiencies and was tested for more earlier this week. We'll see how they look. My Vit D was real low in the fall as well as my iron. Both have improved.

NoGlutenCooties Contributor

My entire digestive system has always cleaned itself out during the first two days of my period.  I always figured it had to do with all the muscle contractions going on in the area and being that everything is sort of connected... the bowels just kinda got in on the action too.  (Almost like a monthly spring cleaning.)  My sister is the same way and she doesn't have Celiac (that she knows of anyhow).  My OBGYN (a few different ones actually) have always said that this is normal and very common.  But then again... doctors say that about a lot of things that may be common but aren't in fact "normal".


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    • Mari
      There is much helpful 'truth' posted on this forum. Truths about Celiac Disease are based on scientific research and people's experience. Celiac disease is inherited. There are 2 main Celiac 'genes' but they are variations of one gene called HLa - DQ What is inherited when a person inherits one or both of the DQ2 or the DQ8 is a predisposition to develop celiac disease after exposure to a environmental trigger. These 2 versions of the DQ gene are useful in diagnosing  celiac disease but there are about 25 other genes that are known to influence celiac disease so this food intolerance is a multigenic autoimmune disease. So with so many genes involved and each person inheriting a different array of these other genes one person's symptoms may be different than another's symptoms.  so many of these other genes.  I don't think that much research on these other genes as yet. So first I wrote something that seem to tie together celiac disease and migraines.  Then you posted that you had migraines and since you went gluten free they only come back when you are glutened. Then Scott showed an article that reported no connection between migraines and celiac disease, Then Trents wrote that it was possible that celiacs had more migraines  and some believed there was a causal effect. You are each telling the truth as you know it or experienced it.   
    • tiffanygosci
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    • tiffanygosci
      Thank you all for sharing your experiences! And I am very thankful for that Thanksgiving article, Scott! I will look into it more as I plan my little dinner to bring with on the Holiday I'm also glad a lot of research has been done for Celiac. There's still a lot to learn and discover. And everyone has different symptoms. For me, I get a bad headache right away after eating gluten. Reoccurring migraines and visual disturbances were actually what got my PCP to order a Celiac Panel. I'm glad he did! I feel like when the inflammation hits my body it targets my head, gut, and lower back. I'm still figuring things out but that's what I've noticed after eating gluten! I have been eating gluten-free for almost two months now and haven't had such severe symptoms. I ate a couple accidents along the way but I'm doing a lot better
    • trents
      @Mari, did you read that second article that Scott linked? It is the most recently date one. "Researchers comparing rates of headaches, including migraines, among celiac patients and a healthy control group showed that celiac subjects experienced higher rates of headaches than control subjects, with the greatest rates of migraines found in celiac women.  Additionally, celiacs had higher rates of migraine than control subjects, especially in women. In fact, four out of five women with celiac disease suffered from migraines, and without aura nearly three-quarters of the time."
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      As far as I know and I have made severalonline searches, celiac disease disease has not been recognized as a cause of migraines or any eye problems. What I wrote must have been confusing.
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