Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Testing For Kids

ashleyld

Recommended Posts

ashleyld Rookie
ashleyld
Posted

We just got the blood results and next is the endoscopy. Anyone taken their small child before (my little is 3)? to be honest i am freaking out a little bit about her being sedated.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Fenrir Community Regular
Fenrir
Posted

I have not had to have this particular procedure done on my daughter (she's 6) but she's have several other's. 

 

When she was 8 months old she had to have a cranioplasty (Basically rebuild of the skull from the eye sockets up) because her plates fused too early. 

When she was about a year old she had tubes in her ears, then they came out so they went in and took out the adenoides and put a second set of tubes. 

Finally, last year she had to have a second surgery on her head. 

 

So, she's been put under 4 times, came out perfectly fine each time. 

 

There are always risks with sedation but it is a relatively low risk. Doesn't make it easier for parents though.

greenbeanie Enthusiast
greenbeanie
Posted

My daughter had her endoscopy just after turning 4, and it went totally smoothly. The nurses were wonderful and even gave her stuffed animal a gas mask and band-aid, and tucked him under a blanket too. I'd highly recommend bringing a favorite toy! I was nervous about the anesthesia too, but it was fine. They sedated her with gas before putting the IV in, so that wasn't traumatic. They also drew blood for more lab work while she was asleep. I was able to go into the procedure room with her and hold her hand until she fell asleep, and they called me into the recovery area before she woke up again.

The only other thing I wish we'd known beforehand is that the procedure room was very noisy, with banging equipment and lots of nurses and assistants all chatting. My daughter was a bit freaked out by all the sudden noise (the prep area had been quiet), and I hadn't realized there'd be so many people in the room. There were at least five or six people there, in addition to us. But otherwise it was really an easy process, and my daughter was thrilled that she got a ride to the hospital door in a wheelchair after! I think it's a lot more stressful for the parents than for the kids.

ashleyld Rookie
ashleyld
Posted
  • Author

My daughter had her endoscopy just after turning 4, and it went totally smoothly. The nurses were wonderful and even gave her stuffed animal a gas mask and band-aid, and tucked him under a blanket too. I'd highly recommend bringing a favorite toy! I was nervous about the anesthesia too, but it was fine. They sedated her with gas before putting the IV in, so that wasn't traumatic. They also drew blood for more lab work while she was asleep. I was able to go into the procedure room with her and hold her hand until she fell asleep, and they called me into the recovery area before she woke up again.

The only other thing I wish we'd known beforehand is that the procedure room was very noisy, with banging equipment and lots of nurses and assistants all chatting. My daughter was a bit freaked out by all the sudden noise (the prep area had been quiet), and I hadn't realized there'd be so many people in the room. There were at least five or six people there, in addition to us. But otherwise it was really an easy process, and my daughter was thrilled that she got a ride to the hospital door in a wheelchair after! I think it's a lot more stressful for the parents than for the kids.

Thank you so very much for yur reply!

frieze Community Regular
frieze
Posted

yeah, noise is one of the bigger complaints in health care.  We, HCW, sometimes just don't hear it....

africanqueen99 Contributor
africanqueen99
Posted

My middle kid was scoped at 3.5 years.  Child Life came in to help him prepare (put stickers on gas mask, etc) then he was taken and gassed before his IV.  Because he was gassed he had so much medication in his system that it took him quite a bit to wake up.  I was promised a huge nap that day - he slept not one minute!!

 

Overall, the experience was fine, but it was so much easier for my oldest to have the same procedure since she didn't need a valium and gas - she woke quickly and was ready to roll.

JennyW Newbie
JennyW
Posted

It is scary to put your little one under for the procedure, but it is worth it.  My little girl was barely 14 months when she had hers done and it all went perfectly.  And it is a relatively quick procedure so you don't have to worry for too long.  More importantly we got the confirmed positive result that gave us a real diagnosis and we were able to make a very, very sick girl so very happy again :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ashleyld Rookie
ashleyld
Posted
  • Author

It is scary to put your little one under for the procedure, but it is worth it.  My little girl was barely 14 months when she had hers done and it all went perfectly.  And it is a relatively quick procedure so you don't have to worry for too long.  More importantly we got the confirmed positive result that gave us a real diagnosis and we were able to make a very, very sick girl so very happy again :)

Thank you! This is what i need. I need the confirmed positive diagnosis before i throw my family for a loop. I have 4 kids who will have to deal with this as well. Im just anxious now.

Cara in Boston Enthusiast
Cara in Boston
Posted

My youngest had it done at age 6.  I was a nervous wreck - had to send my husband with him.  He actually had a great time.  The staff at Children's was wonderful.  He got to play video games and joke around with the doctors and nurses.  He doesn't remember anything after picking a "flavor" for the gas.  He was up and about within an hour and seemed to have zero side effects once he got home.  

 

I wish they could have cleaned his teeth, cut his hair, done his nails, and all that other stuff while he was under as he is rarely sitting still.

 

My older son was actually jealous that he didn't get to have one.

JennyW Newbie
JennyW
Posted

Thank you! This is what i need. I need the confirmed positive diagnosis before i throw my family for a loop. I have 4 kids who will have to deal with this as well. Im just anxious now.

I hear ya.  I have 3 kids and only one with celiac....at the moment that is, since I know it could potentially trigger in the other 2 at any time.  At home, we have all the kids eat gluten free, and at school we just have my celiac one eat gluten free.  It was the easiest way to not have to prepare so many separate meals and then the other kiddos can still eat the standard food at school.

ashleyld Rookie
ashleyld
Posted
  • Author

I hear ya.  I have 3 kids and only one with celiac....at the moment that is, since I know it could potentially trigger in the other 2 at any time.  At home, we have all the kids eat gluten free, and at school we just have my celiac one eat gluten free.  It was the easiest way to not have to prepare so many separate meals and then the other kiddos can still eat the standard food at school.

Do they buy lunch or do you prepare their lunch? I'm worried about cross contamination. (we make our lunches here)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,032
    • Most Online (within 30 mins)
      7,748
    CE1963
    Newest Member
    CE1963
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Celiac getting dentures

      By Scott Adams · Posted

      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
    • Scott Adams
      Dedicated gluten-free Restaurants in East Bay (near San Francisco):

      By Scott Adams · Posted

      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      Fighting for a name

      By Scott Adams · Posted

      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
    • NanCel
      Celiac getting dentures

      By NanCel · Posted

      Hello, no I had to have them re done and then used a liner over the top.  Many dentists are not aware of the celiac effects.  Best of luck.   There is other material, yet, very expensive.
    • sleuth
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By sleuth · Posted

      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.