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Starting To Wonder (List My Symptoms)

EverKiy

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EverKiy Rookie
EverKiy
Posted

Ok so I'd never heard of celiac disease until my oldest daughter was tested when she was 2.5 years old she's now 5, the doctor wanted to test her cause she's tiny like at 5 almost 6 shes now 38lbs and 40 inches tall, she also would get vomiting and diarrhea every time she ate any kind of breaded chicken... All the tests came back negative (wondering if she was just to young?) she's had a lot of issues the past 1.5 years (cronic constipation, bad abdominal pain, vomiting, fevers that pop up for no reason etc) donno if all that fits in but drs do bring up celiac often but seem stumped and we are waiting to get in at the children's hospital near here cause in fed up with the lack of answers and the she's just constipated I'm getting from local doctors.... But moving on to myself.

Ok so the past 2 ish years I've been dealing with issues of my own and I'm starting to wonder if I may have celiac myself... So what I've experienced myself is.. Flem build up in my throat (always feel like something it stuck in there), loose/floaty bm(tmi sorry), nausea, insomnia/inability to stay asleep (this ones been going on for many years), I'm tired 24/7 no matter what, I am b12 deficient, I have as my dr says mild reflux, heartburn, I also suffer from depression and 3 different anxiety disorders I also had an aunt who had celiac ..

I just want thoughts/ opinions on this before I head off to the drs about it, was also wanting to see if it's be better if it sounds like this could be celiac if I should go get the tests done or just try going gluten free? I know one thing that makes me lean towards the drs is my oldest who has issues and I also have a 2 year old so I'd know for sure that they both should be tested/watched.... Any input/advice would be more then welcome

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ravenwoodglass Mentor
ravenwoodglass
Posted

Do go get yourself tested as your symptoms do sound like they could be celiac. Do not go gluten free yourself or have your daughter go gluten free until all celiac related testing you want to have done is finished. After that go gluten free for a bit to see if it helps.

mamaw Community Regular
mamaw
Posted

I agree  with  Ravenwoodglass.... Call  around  your  area  to  try to find  a  doc  who  understands celiac.. A  hard  find  but  they are  around... If  you  would  post  your  area we  could  help you  find a  "special "doc.....Most  still know  next  to  nothing  about  celiac... and  another  thing  I would  check out  is  a  thyroid  panel  done..( not  just  the  TSH)...  

EverKiy Rookie
EverKiy
Posted
  • Author

I'm in ontario canada, my dr seems to have a bit of an understanding of it, she's the one who first brought it up for my daughter and explained it to me, and we were sent to a dietitian to go over food while waiting for the test results for her but then never needed her after being told it wasn't celiacs ... I'll make an appt with my dr and suggest testing myself for it, and depending how that goes get my daughter retested for it.

1desperateladysaved Proficient
1desperateladysaved
Posted

Look into it for sure!  I hope this will lead to a more energetic life for you and lifelong help for your daughter!  Make sure to get a full panel for the celiac test.  If you do the thyroid that needs to be a full panel also.  From memory(so I could miss something) Thyroid panel includes TSH, T3, T4, reverse T3 and Reverse T4 and also thyroid antibodies.

 

You may want to get started on a gluten free multi-vitamin and or vitamin B complex if you haven't already.  I like natural brands and not the cheapest.

 

Dee

EverKiy Rookie
EverKiy
Posted
  • Author

I will looking to gluten free multivitamin as have been taking multivitamins for years, I made a doctors appointment today for the 30th (next one available) so we shall see what the dr wants to look into, I'm also going to keep a food journal and how I feel/what happens so I can show her what all is going on and help me remember what all I need to talk with her about, last time I went I only brought up the upset tummy so she stuck me on an antacid cause I have reflux, which did help a bit but not as much as I feel it should have and once I was off them nothing had changed

mamaw Community Regular
mamaw
Posted

For  the  tummy  try Digestive  enzymes  & probiotics..... you will be  pleasantly surprised....

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EverKiy Rookie
EverKiy
Posted
  • Author

Any recommendations for enzymes and a probiotic

mamaw Community Regular
mamaw
Posted

there  are  many  but I use  digestive  enzymes    called  DIgest Gold......I use  several probiotics as  one  should switch  brands   occas.....And  everyone  has  to find  what  works for them... I use  Dr  O'hirra's  twelve  point  professional  formula,  align, pearls...floragen... Others  have  luck  with other  brands  so I'm sure  some  will also tell you what  they use...some  just  don't  work for me....  

Digestive  enzymes  before  meals.. Probiotics   without  food  in the gut  for several hours....

GFinDC Veteran
GFinDC
Posted

Hi,

 

You could have the gene tests done to see if celiac disease is a possibility.  The other testing they can do is an endoscopy to take biopsy samples of the lining of the small intestine.  They check  the biopsy samples under a microscope for damage to the villi.

 

Before you  go to the doctor it's a good idea to write down your symptoms to hand the doctor.  That makes it less likely to forget something.

  • 4 weeks later...
Nebraskamommy Rookie
Nebraskamommy
Posted

I would find a holestic dr to run additional testing, including looking for vitamin and mineral defincies. My 3 year old was dianosed by a holestic dr in Jan and we have since seen 2 Ped GI drs, and the holestic dr knew more about Celiac then the GI drs did. Just because her tests came back negative doesn't mean she's not sensitive to gluten. Poor girl.

DO NOT go Gluten Free until you've had your blood tests and a scope. I imagine you will feel a whole lot better after stopping the gluten, and therefore if you stop the gluten before finishing the testing you won't want to go back on gluten to get the tests done.

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