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Negative Blood Test But Many Symptoms

Kat123

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Kat123 Newbie
Kat123
Posted

I have just got my blood test back for celiac and they were negative. My brother has celiac disease and my father had ulcerative colitis and my sister has rheumatoid arthritis. I have many symptoms; diarrhea everyday for months, headaches (sometimes migraines sometimes just dull headache), brain fog, overwhelming tiredness, joint pain especially in toes and fingers, ringing in the ears. I was diagnosed with Hashimoto's 20 years ago and have been taking levothyroxine ever since. I was also diagnosed with a b12 deficiency 10 years ago, sometimes I have shots, I take sublingual everyday.

 

As I said the celiac blood tests were negative but they did show a vitamin d deficiency, low sodium, low white blood count, and slightly low b12 despite supplements. They didn't test for any other vitamins, only d and b12. Thyroid numbers were all ok (I take 150mcg levothyroxine everyday) except T3 uptake which was low. They also repeated the thyroid antibody test which also came back negative. This is very surprising as 20 years ago they were very highly positive. I am wondering if because my immune system is depressed (i.e. low wbc) could this produce a false negative in the antibody test because you are not producing enough of any antibodies? Also I was eating gluten but only a slice or two of bread a day, is this enough?

 

Thanks so much for any input! 

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kareng Grand Master
kareng
Posted

Get a copy of the blood tests and see what they actually tested. Sometimes, they don't do the correct tests. So I would check all that first. Were you gluten free for any time period?

Kat123 Newbie
Kat123
Posted
  • Author

Get a copy of the blood tests and see what they actually tested. Sometimes, they don't do the correct tests. So I would check all that first. Were you gluten free for any time period?

I was gluten free for only a few days when tests were done. I feel terrible in the first 2 weeks of being gluten free, by the way. Bloated and awful heartburn!

GFinDC Veteran
GFinDC
Posted

Hi,

 

Well, regardless of medical testing, you know your body is reacting to gluten in some way.  People without a gluten intolerance shouldn't have any symptom changes on going gluten-free.

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