Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Supplementation


AmandaD

Recommended Posts

AmandaD Community Regular

Hi there - got my blood test results back and found out I have a very mild Vitamin D deficiency; also had my bone scan and had a normal reading.

I'm wondering how you all get your extra vitamin D -- I'm not a big milk drinker. My doc wrote on my report that I should take 2 400IU tablets of D a day...any recommendation on a brand..?

And, did any of you have D deficiencies?

Thanks so much, again!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor

Me... Dr. said low in D, daugher (chemist) says go out and get some sunshine -- full of vit. D. Try a cal. suppliment with V-D. That might help. Caltrate with D, I THINK is gluten-free, or Centrum with D is gluten-free. ---will have to check on that, with the Delfi Product List....but I do think it's ok. But, please verify.

Rachel--24 Collaborator

I don't know if I was deficient or not because my HMO doesnt test for these types of things....they are the worst and also employ the worst doctors around. I was seeing an ND for awhile....she asked me if I felt better when I'm in the sun. I was amazed she was asking me this and I told her I did...I told her I always felt tons better immediately after going outside. I asked her how she knew this. :huh:

She told me I probably had vitamin deficiencies (based on my symptoms) and improvement of symptoms in the sunlight indicates Vit D deficiency. I never knew that...but if I stayed indoors all day I felt tons worse...I *needed* the sunlight.

Carriefaith Enthusiast
I'm wondering how you all get your extra vitamin D
I take a multivitamin plus I drink blueberry smoothies made with soy milk.
jpsych Newbie

My doctor recommended OsCal with vitamin D. Does anyone know if its gluten free?

Blueberry smoothies rock!

AmandaD Community Regular

Thanks for all of your suggestions - I'm going to check and see if Oscal is gluten-free. RACHEL- it's absurd that your doctor does not check for vitamin deficiencies - that practice should totally be ashamed of themselves!!!! HMO's, I've heard, can really be crappy!!!

My doctor recommended OsCal with vitamin D. Does anyone know if its gluten free?

Blueberry smoothies rock!

<{POST_SNAPBACK}>

Rachel--24 Collaborator
  HMO's, I've heard, can really be crappy!!!

<{POST_SNAPBACK}>

Yes, I learned the hard way. :(

I'm going to switch plans when it comes up in November. I need to find a good doctor though. If anyone knows of a good doc in Bay Area CA....let me know. :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

I get my vit D through:

* fortified beverages (soy milk/orange juice)

* vitamin supplement (Rainbow Light Food Based Calcium - 100IU D3 (25% of DV, and D3 is the more absorbably form, 500mg calcium (50% DV), 250mg magnesium (63% DV, the appropriate ratio with calcium for better absorption, and one of the minerals that often lacking in celiacs when it comes to bone health)

* daily, unprotected sun exposure (no sunblock for the 10-15 minutes (summer, length varies on skin color))

* a varied, healthy diet

WRowland Newbie

In general, food based is best, with supplementation as needed. It may be more than Calcium/Vitamin D.

Check out www.nutritiondata.com. Start with ND Quick Start and go from there.

I was already taking supplements for my bones, but realized that I was doing well for some things, but really needed a vitamin E supplement after using this site.

Jenn2005 Contributor

CarrieFaith

Would you mind sharing your Blueberry Smoothie recipie? I would like to try something like that for my husband. He is also casein intolerant so when you said you used soy milk it got me thinking.

Thanks,

Jennifer

Siobhan Rookie

My Dr suggested Ostelin 1-2 a day to boost my low Vit D levels.

kevsmom Contributor

Currently I am taking Spring Valley Natural Calcium with Vitamin D. The dosage I take is only 125 I.U. I don't know if they make a higher dosage, or maybe they have just Vitamin D in a higher dosage without Calcium. If not you could make a whole meal out of it to get 800 I.U. :D That sure sounds like a lot of Vitamin D!

Before that I was taking CVS brand. I don't remember what the dosage was.

lizzy Apprentice

hi all i teke vit b12 and multivits too gluten free of course but am not certain if i need to take more b12 as i have a neurolical problem and this vit does help me but i take too one more than the recommended doses but dont know if am over taking it, i read that healthy people should take just one but am not healthy so i am taking too to make sure i get enough to my nerve cells , does anyone else take alot of b12 liz

elisabet Contributor
hi all i teke vit b12 and multivits too gluten free of course but am not certain if i need to take more b12 as i have a neurolical problem and this vit does help me but i take too one more than the recommended doses but dont know if am over taking it, i read that healthy people should take just one but am not healthy so i am taking too to make sure i get enough to my nerve cells , does anyone else take alot of b12 liz

<{POST_SNAPBACK}>

Hi Liz,

What type of vit b12 do you take?

lizzy Apprentice

hi all the vits i take are made by nature made and are gluten free i get them from the local supermarket and they not too expensive on your pocket liz

Jnkmnky Collaborator

Sunlight. Get out more. It's great. Also, there's been some studies linking MS to vitamin D defs. They say that people living in more southly regions have WAY less MS and attribute it to the higher doses of Vit. D. Get out and bask in the sunlight. Now you can justify it as medically necessary!

lgleeson Newbie
hi all the vits i take are made by nature made and are gluten free i get them from the local supermarket and they not too expensive on your pocket liz

<{POST_SNAPBACK}>

lgleeson Newbie

I am taking B-12 by Country Life and they say on the label they are gluten-free. Right now I am taking 3000 mcg sublingually (under the tongue for better absorption). I am taking a high dose, because I, too, have neurological symptoms. It has helped immensely. You can't take too much Vitamin B-12. You will just pee out the extra. (not the case with all vitamins).

tarnalberry Community Regular
Sunlight.  Get out more.  It's great.  Also, there's been some studies linking MS to vitamin D defs.  They say that people living in more southly regions have WAY less MS and attribute it to the higher doses of Vit. D.  Get out and bask in the sunlight.  Now you can justify it as medically necessary!

<{POST_SNAPBACK}>

I definitely agree with that one! (Though, now that I moved somewhere where there isn't enough light to do this for a number of months out of the year, I can't 'practice what I preach' year round. :-( ) Sunlight, without sunblock, for a short time every day is good for many reasons, and D is just one of them. It's more problematic in winter, in the northern hemisphere, since many latitudes don't get enough sunlight for sufficient D production, but that's all the more reason to get in your sun-time during the summer! (D is stored in the body.)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,025
    • Most Online (within 30 mins)
      7,748

    Amari Love
    Newest Member
    Amari Love
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
    • Scott Adams
      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
    • NanCel
      Hello, no I had to have them re done and then used a liner over the top.  Many dentists are not aware of the celiac effects.  Best of luck.   There is other material, yet, very expensive.
    • sleuth
      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.