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- knitty kitty replied to ehb's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease32Refractory Celiac disease - what to do
Being low in B12, Folate B9, ferritin, zinc and copper sounds consistent with anemia which can often occur with Celiac. What did your doctor recommend? What about your Vitamin D? It helps regulate the immune system. -
- ehb replied to ehb's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease32Refractory Celiac disease - what to do
@knitty kitty thank you I am exploring these options, I really appreciate all the suggestions and info. I am only slightly below the normal range for folate, zinc and copper. And in the low end of the normal range for B12, ferritin, and vitamin A. I’m good for carotene magnesium and iron, but I’ve been taking 400 mg magnesium daily -
- Alibu replied to Alibu's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms8Waiting on biopsy after positive bloodwork, but also not really believing this is real
I just had my endoscopy the other day and the doctor took 12 samples because he said if we're going to find something we're going to find it today LOL. But when he got down there, he said everything looked good. So I have it in my head again that it's going to be negative because everyone I've heard of who had a positive biopsy had their endoscopies where... -
- trents replied to Shining My Light's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms7Virus, celiac disease or both?
That's just it. When they are doing an EGD, even with biopsy, if they aren't thinking about celiac disease they may miss it. They should take several samples from both the duodenum and the duodenum bulb. Damage can be patchy and easily missed if sampling isn't through. And patch damage may explain lack of dramatic symptoms. Let me assure you that we...- 1
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- knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease36
Supplements for those Diagnosed with Celiac Disease
Blood tests are affected by what you've had to eat in the previous day or two and any vitamin supplements you've taken in the past month or two. If you have been taking vitamins before the time of the blood test, the vitamins supplements could mask a deficiency. So get the tests before supplementing, or allow eight to twelve weeks for the supplements to...
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By knitty kitty · Posted
Being low in B12, Folate B9, ferritin, zinc and copper sounds consistent with anemia which can often occur with Celiac. What did your doctor recommend? What about your Vitamin D? It helps regulate the immune system. -
@knitty kitty thank you I am exploring these options, I really appreciate all the suggestions and info. I am only slightly below the normal range for folate, zinc and copper. And in the low end of the normal range for B12, ferritin, and vitamin A. I’m good for carotene magnesium and iron, but I’ve been taking 400 mg magnesium daily
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I just had my endoscopy the other day and the doctor took 12 samples because he said if we're going to find something we're going to find it today LOL. But when he got down there, he said everything looked good. So I have it in my head again that it's going to be negative because everyone I've heard of who had a positive biopsy had their endoscopies where the doctor was like yep, I can see the damage. My tissues all look great apparently. So if they come back negative, I'm not sure where to go from here. Could it still be a non-celiac gluten sensitivity even with my blood work? I thought NCGS didn't show up on blood tests. Is it possible that the biopsy still comes back positive...
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That's just it. When they are doing an EGD, even with biopsy, if they aren't thinking about celiac disease they may miss it. They should take several samples from both the duodenum and the duodenum bulb. Damage can be patchy and easily missed if sampling isn't through. And patch damage may explain lack of dramatic symptoms. Let me assure you that we frequently have posters on this forum who were silent celiacs for years and were diagnosed incidentally with celiac disease when their docs were checking for other things. They developed other medical problems such as anemia or vitamin and mineral deficiencies, neurological deficits, Hashimodo's thyroid...
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By knitty kitty · Posted
Blood tests are affected by what you've had to eat in the previous day or two and any vitamin supplements you've taken in the past month or two. If you have been taking vitamins before the time of the blood test, the vitamins supplements could mask a deficiency. So get the tests before supplementing, or allow eight to twelve weeks for the supplements to wear off. The thing with blood tests is that they measure what is in the blood, not what is stored inside organs and tissues where vitamins are actually utilized, and may miss subclinical deficiencies. In times of shortages, the brain can order cells to release their stored vitamins into the blood stream in order to keep important...
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