Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Blood Tests

Wi11ow

Recommended Posts

Wi11ow Apprentice
Wi11ow
Posted

I can't thank you all enough for the information and inspiration on this website. I haven't been able to get any blood tests done to this point.

 

I printed off information I got from people here. I wouldn't have found these websites without you! From the University of Chicago Celiac Disease Center and  NIH and the Wm K. Warren Medical Research Center for Celiac Disease at UC San Diego. and brought it all with me to my doctor. Symptoms, that the biopsy should have been 4-6 samples (not 1), which tests to do.....

 

I told him I had the biopsy but with only one sample and I wanted to have the C blood panel done. I was armed with the list many people have posted here.  He kept saying, wow, you have done your research. You have really done your homework. At one point he said he knew that C was in the top 10 most mis diagnosed diseases.

 

He did these and a couple others. CNA I think and I don't remember what else

  • tTG IgA and IgG
  • DGP IgA and IgG
  • EMA IgA 
  • total serum IgA
  • AGA IgA and AGA IgG

 

 

I just wanted to say thanks for the support and helpful information. I probably wouldn't have kept pushing for tests with out it... It will take about 10-14 days for results.

 

L

 

 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


nvsmom Community Regular
nvsmom
Posted

Good luck with the tests!  :)

Fenrir Community Regular
Fenrir
Posted

Glad you got the testing that will help determine if Celiac is the problem or not.

Wi11ow Apprentice
Wi11ow
Posted
  • Author

I had a dermatology appt this morning follow up from skin cancer biopsies 2 months ago. One was of some concern but non malignant. Got the all clear today! YEAh! And I don't have arthritis. (This is the short version) :)

 

While I was out, I stopped by my doc's office to get a print out of the exact blood tests that were run last week. I don't know why I am not smart enough to do this while I am there!!! Doc came out and said - great news! Your tests are negative. (bare with me there more) I had mixed feelings, I want to know what's wrong! They hand me a sheet of paper, it says

 

Anti Nuclear Antibody          Negative

Rheumatoid Factor Screen     Negative

 

Hmmm.  I said - Do you think I could get a print out of exactly what was tested? For my records? She tells me some information, but I said well, this doesn't say anything about what was done. What antibodies were tested? Then I get handed a brochure - This has everything that was tested. I start reading..... It's all about cholesterol. :angry:

 

I asked again - what exactly is Anti Nuclear Antibody? She asks nurse - it's testing for arthritis. 

I said - I thought you ran a full test for Celiac? What about Itt IgE, IgA? (I don't have any information with me, I just stopped in to get a print out!!)

Nurse comes back up to the front to talk to me

 

She says - your information hasn't been scanned in so i can't print it out, but here is a blank form of what would have been tested AND WE ADDED IN Miroalbumim (no idea what this is), magnesium and CELIAC.

 

A tiny little twisted light bulb goes on in my head... I said - so you haven't got the test results back yet. :blink:

She said NO! Ok - so my tests aren't all negative. You don't know yet!

 

I put a grin on my face - OK, I will just wait for your call.

 

 

WOW, that was painful!  <---------------beating head against wall laughing!!

 

New favorite saying George Bernard Shaw - "The single biggest problem in communication is the illusion that it has taken place." I need to put this in my sig line.

 

Day 9 gluten soy, etc free. New outlook - I didn't get mad, spooled up, upset. Just Kept asking what tests were run over and over. It's kind of funny really.

 

My new motto - When did I learn to speak Greek??!?

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      - Scott Adams commented on Scott Adams's article in Additional Concerns
      4

      Going Low-Gluten May Harm Good Gut Bacteria, Researchers Warn

      Researchers are working on T cell modification therapy that could one day let celiacs eat gluten.
    2. chrisinpa
      - chrisinpa commented on Scott Adams's article in Additional Concerns
      4

      Going Low-Gluten May Harm Good Gut Bacteria, Researchers Warn

      It's like a double edged sword.......we do one thing to improve a problem and cause another problem. I'd like to think the ultimate cure might be something that would train or modify the body to prevent the damage that gluten causes.
    3. Flash1970
      - Flash1970 replied to Ginger38's topic in Related Issues & Disorders
      7

      Shingles - Could It Be Related to Gluten/ Celiac

      You might try Heallix. It's a silver solution with fulvic acid. I just put the solution on with a cotton ball. It seemed to stop the nerve pain. Again, not in your eyes or ears. Go to heallix.com to read more about it and decide for yourself Also, I do think nerve and celiac combined have a lot to do with your susceptibility to shingles breaking out...
    4. trents
      - trents replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      GI DX celiac despite neg serology and no biopsy

      Celiac disease requires both genetic potential and a triggering stress event to activate the genes. Otherwise it remains dormant and only a potential problem. So having the genetic potential is not deterministic for celiac disease. Many more people have the genes than actually develop the disease. But if you don't have the genes, the symptoms are likely being...
    5. Roses8721
      - Roses8721 replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      GI DX celiac despite neg serology and no biopsy

      Yes, i pulled raw ancetry data and saw i have 2/3 markers for DQ2.2 but have heard from friends in genetics that this raw data can be wildly innacurate
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,497
    • Most Online (within 30 mins)
      7,748
    CrazyCatLady
    Newest Member
    CrazyCatLady
    Joined
  • Celiac.com Sponsor (A20):

  • Celiac.com Sponsor (A22):



  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Flash1970
      Shingles - Could It Be Related to Gluten/ Celiac

      By Flash1970 · Posted

      You might try Heallix.  It's a silver solution with fulvic acid. I just put the solution on with a cotton ball.  It seemed to stop the nerve pain. Again,  not in your eyes or ears.   Go to heallix.com to read more about it and decide for yourself Also,  I do think nerve and celiac combined have a lot to do with your susceptibility to shingles breaking out. 
    • trents
      GI DX celiac despite neg serology and no biopsy

      By trents · Posted

      Celiac disease requires both genetic potential and a triggering stress event to activate the genes. Otherwise it remains dormant and only a potential problem. So having the genetic potential is not deterministic for celiac disease. Many more people have the genes than actually develop the disease. But if you don't have the genes, the symptoms are likely being caused by something else.
    • Roses8721
      GI DX celiac despite neg serology and no biopsy

      By Roses8721 · Posted

      Yes, i pulled raw ancetry data and saw i have 2/3 markers for DQ2.2 but have heard from friends in genetics that this raw data can be wildly innacurate
    • Ginger38
      Shingles - Could It Be Related to Gluten/ Celiac

      By Ginger38 · Posted

      Thanks, I’m still dealing with the pain and tingling and itching and feeling like bugs or something crawling around on my face and scalp. It’s been a miserable experience. I saw my eye doc last week, the eye itself was okay, so they didn’t do anything. I did take a 7 day course of an antiviral. I’m hoping for a turnaround soon! My life is full of stress but I have been on / off the gluten free diet for the last year , after being talked into going back on gluten to have a biopsy, that looked okay. But I do have positive antibody levels that have been responsive  to a gluten free diet. I can’t help but wonder if the last year has caused all this. 
    • Scott Adams
      Help

      By Scott Adams · Posted

      I don't think any apps are up to date, which is exactly why this happened to you. Most of the data in such apps is years old, and it doesn't get updated in real time. Ultimately there is no substitution for learning to read labels. The following two lists are very helpful for anyone who is gluten sensitive and needs to avoid gluten when shopping. It's very important to learn to read labels and understand sources of hidden gluten, and to know some general information about product labelling--for example in the USA if wheat is a possible allergen it must be declared on a product's ingredient label like this: Allergens: Wheat.      
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.