Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

No Symptoms But Please Bend Over Backwards Hosts!


GFAnnie

Recommended Posts

GFAnnie Explorer

I know there are 1000 posts about this in varying forms but here we go - my family is making their first road trip to visit family and stay with them post celiac diagnosis. My MIL has asked virtually no questions about our diet or food prep and she's usually a question asker.  My husband feels sheepish about saying much, other than, yes, food needs to be gluten free, because here's the thing... we were an odd bunch to be diagnosed because myself, my three year old and my one year old were basically symptomless.  As it turns out, I have DH, so now I know what those annyoing rashes were all about, but I still have them, even though I've been gluten free since late January. My three year old had no symptoms but his growth might have been a little slow.  And my one year old was also probably having issues with weight gain. But how do you tell an host about all of the special considerations they need to make when I don't have the "we'll be sick all weekend" line that most can use? I fear that if we did tell her all the special considerations and she didn't follow them she'd see that we ate her food and were fine so the whole celiac thing is silly.  You know?  In a way I wish I would get horribly sick so she could SEE the effect of gluten, but if anything, I guess my rash might get a little worse  a few days after we get home.  Not sure anyone can help me with this.  Maybe I  just needed to vent!  I know the best solution would have been to prepare all of our food and bring it but I just did not have time for anything like that.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master

She is family and the grandmother of your grandchildren. You need to sit down and have a heart-to -heart and really explain your needs. It may help to show a copy of the test results.

I usually get off the plane and hit the grocery store purchasing some gluten-free goodies, cereal and fruit and veggies and all the others items I will need during my stay. Now my mom recognizes brands and will stock up which is nice.

Pack a few things that you will need to prepare food. I go often enough to keep a bin full of kitchen tools that I store there.

I hope this helps!

BlessedMommy Rising Star

Well, first of all you DO have a severe reaction to gluten. It's just not one that can be measured by getting visibly sick. Villi damage can lead to cancer and other difficulties. And if you're celiac, then each and every time you get glutened, you're getting damaged, regardless of the amount of symptoms. Perhaps sharing literature with celiac on family would help them to understand that "no symptoms does not equal no problems."

 

2ndly, I would avoid having other people prepare your food as much as possible. If you have little time, there's casseroles that can be thrown together in 5 minutes. I can give you a recipe for my tater tot taco bake. It's delicious and fast to throw to together and you could use a disposable foil pan.

 

If you don't have time to cook, I would strongly suggest just buying some gluten free frozen entrees and heating them up in the microwave. It's a little pricey but it's better than getting glutened. That way you won't be setting a precedent for your host that they are allowed to cook for you, because it's hard to start one way and then switch later on.

 

It is very, very difficult to prepare gluten free food in a gluten filled kitchen. Most people can't do it without some education.

 

Also, you could do ready made stuff for breakfast. I like to bring Kind brand gluten free granola on road trips along with a shelf stable container of non-dairy milk. Along with fruit and eggs, it makes a good breakfast.

 

GL!

mamaw Community Regular

You need  to make  time  for  your  health  & your  kids....that  is  the  most  important  thing in this  world.... Can't  be  any   ifs, ands  or  buts......

I  agree  to take  gluten-free food  with you  then  you can  explain  to  your  MIL that  you  wasn't  sure  she  would  have  any gluten-free  food since they do not  have  celiac....At  that  time  would be  a  good  chance  for  a gluten-free  discussion....take  some  literature  for  her as well.... Going  to the  grocery store  after  you arrive  for gluten-free  food... if  you plan  on dining  out  do the  research  &  find  restaurants  that  have  a gluten-free  menu in the  area...You  are the one  who needs  to be  prepared  for  yourself  & the kids.... yes, it  would  be great  if  she  would  jump  into  the  gluten-free  diet  but  that  doesn't  always  happen....

I  think that  is  what  I miss  at  times  is  someone  else  caring  for  me  &  the other  three  who are gluten-free with celiac...it  always  falls  on me  to take  care  of  us  four.... I  cart  gluten-free  food  to  every holiday.....

JosieToo Explorer

No symptoms doesn't mean no damage. It's up to you to be an advocate for yourself and your children. You need to clearly provide guidelines for her. Make it easy - if she's not willing to buy new cutting boards, etc. (my parents and in-laws keep a box of kitchen-ware especially for me), then bring your own. My husband and I have a "portable kitchen" box that we take with us when going to stay with others, on car vacations, etc.

BlessedMommy Rising Star

JosieToo, would you mind sharing what you put in your box and what type of container you carry it in?

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,692
    • Most Online (within 30 mins)
      7,748

    Linda M Rush
    Newest Member
    Linda M Rush
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)

    • There are no registered users currently online

  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Gigi2025
      Since 2015 we've spent extensive time in Italy and I've been able to eat their wheat products without incident. Initially, I was practically starving thinking foods in Sicily were not gluten-free.  An Italian friend who had lived in the US for over 20 years said she had celiac/gluten-free friends from the US who could eat Italian wheat products without problems. Hesitantly, I tried little by little without issues.  A few years later at a market, I asked a bread vendor if they had gluten-free loaves. Turns out she had lived in LA, said groups believe it's not the gluten that's causing our bodies harm, but potassium bromate; these groups have been trying to ban it.  Bromines and other halogens wreaks havoc to our endocrine system and, more specifically, our thyroids and immune systems. When bromines are ingested/absorbed into the body, it displaces iodine causing other health issues. Potassium bromate is a powerful oxidizing agent (dough 'conditioner') that chemically changes flour to enhance elasticity, bleaches the dough, and ages the flour much faster than open air.   Shortly thereafter while visiting friends in California, one family said they had gone gluten-free and the difference was incredible. The reason they choose this path was due them (a biologist/chemist/agriculturist scientist) having to write a portion of a paper about a certain product for the company he worked. Another company's scientist was directed to write the other portion. All was confidential, they weren't allowed to know the other company/employee.  After the research, they learned gluten was being removed from wheat, sent elsewhere, returned in large congealed blocks resembling tofu, and then added to wheat products. Potassium bromate has been banned for use in Europe, China, and other countries, but not in the US. Then we have the issues of shelf preservatives and stabilizers. What are we eating?  Why? We spend long periods of time in Italy and all has been good.  We just returned from an extended time in Greece;  no issues there either.  There is a man there we learned about on a travel show about Greece who walks the hills, picking herbs, pods, etc.  He is a very learned scholar, taught at the university level in Melbourne. It took a few days to locate him, but were finally successful. He too, is concerned about the additives and preservatives in American food (many of his customers are Americans, haven't been in the best of health, and have become healthier after visiting him). He suggested taking a food product from the US and the same product in Europe, and compare the different ingredients. Then ask why these things are being allowed in the US by the 'watch dog' of our foods and drugs. It would be amuzing if it weren't tragic. I'm presently looking for flour from Europe that I can make my own bread and pasta as the gluten-free bread is now $7.99 a (small) loaf.  BTW, studies are showing that many gluten-free individuals are becoming diabetic. My guess is because the gluten-free products are high in carbs. This is only my experience and opinion garnished by my personal research.  I hope it helps.  
    • knitty kitty
      Symptoms that get worse if you don't supplement is a sign of malabsorption, possibly due to Celiac disease. Blood tests for nutritional deficiencies are not very accurate, and should be done when you have been off of supplements for eight to twelve weeks, otherwise the vitamin supplements you've taken will be measured.  The blood circulation system is a transportation system.  It transports the vitamins you've absorbed around the body, but blood tests don't give an accurate picture of the vitamin and mineral stores inside organs and tissues where they are actually used.  You can have "normal" blood levels but still have deficiencies.  This is because the brain demands stored nutrients be put into the blood stream to supply important organs, like the brain and heart, while other organs do without.   If you are taking Thiamine Mononitrate in your supplements, you are probably low in thiamine.  Thiamine Mononitrate is used in many supplements because it won't break down sitting on a shelf.  This also means Thiamine Mononitrate is difficult for the body to utilize.  Only thirty percent of Thiamine Mononitrate on the label is absorbed and even less is able to be utilized by the body.  A different form of Thiamine called Benfotiamine has been shown to promote intestinal healing.   Talk to your doctor about doing a genetic test to look for Celiac markers.   I'm concerned that if you do a gluten challenge (10 grams of gluten per day for a minimum off two weeks) in your weakened state, the nutritional deficiencies will become worse and possibly life threatening.  
    • ElisaAllergiesgluten
      Hello, good afternoon!   I apologize, I didn’t see a notification and I’m just reading this. Thank you so much for sharing your thoughts and the link. Yes you are absolutely right, even so trying to get a response from them has been extremely difficult. They don’t answer but I will your practice of “guilty until proven innocent.”   I like and have a sense of trust here in this website, everyone is honest and thoughts are raw. The mutual understanding is amazing!   thank you Scott!
    • Scott Adams
    • Rejoicephd
      That and my nutritionist also said that drinking cider is one of the worst drink choices for me, given that I have candida overgrowth.  She said the combination of the alcohol and sugar would be very likely to worsen my candida problem.  She suggested that if I drink, I go for clear vodka, either neat or with a splash of cranberry.   So in summary, I am giving ciders a rest.  Whether it's a gluten risk or sugars and yeast overgrowth, its just not worth it.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.