Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Ignorant Pharmacist


Eddierickles

Recommended Posts

Eddierickles Newbie

I picked up my prescription at Walgreens yesterday.  I informed the pharmacist that I have celiac disease and need to make sure the pills do not contain gluten.  She checked with the manufacturer and said that it DOES contain gluten, but "it is a small amount and a small pill", and that I "wouldn't even feel it."  (I have to take these pills up to 4x daily) She also said it is almost impossible to find a pill without a small amount of gluten. I was shocked.  This is coming from a professional pharmacist.

 

Needless to say I am reluctant to even try the pills to see if I will "feel" the gluten.

 

Please advise.  Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

Pharmacists have no idea. You should contact the manufacturer. A lot of them will not want to say they are gluten-free because they don't test them. I just make sure they have no obvious gluten ingredients. That said, there are very few meds that actually have gluten.

There is a website - glutenfreedrugs.com Which lists some meds. You might check there.

Eddierickles Newbie

Pharmacists have no idea. You should contact the manufacturer. A lot of them will not want to say they are gluten-free because they don't test them. I just make sure they have no obvious gluten ingredients. That said, there are very few meds that actually have gluten.

There is a website - glutenfreedrugs.com Which lists some meds. You might check there.

Thanks for the reply.  The pharmacist already contacted the manufacturer and they confirmed the pill does contain gluten.  My question is:  is it such a small amount (under 20 ppm?) that it won't cause symptoms or damage?

kareng Grand Master

Thanks for the reply. The pharmacist already contacted the manufacturer and they confirmed the pill does contain gluten. My question is: is it such a small amount (under 20 ppm?) that it won't cause symptoms or damage?

I wouldn't trust the pharmacist. I bet he got a CYA statement like I mentioned. You need to check these things yourself before you pick up the medications to be safe. But, that is my advice & how I do it... You may do as you wish.

Adalaide Mentor

I agree with Karen. The pharmacist is probably a complete moron and has no actual clue what the actual heck they are talking about. Call the manufacturer yourself on Tuesday and see what they say. It is extremely rare for a pill to contain gluten, but almost all manufacturers will say something along the lines of "we don't actually test for it so while it doesn't contain any gluten ingredients we won't say it's actually gluten free blah blah blah" which is what we all refer to as a CYA statement. These drugs are perfectly safe to take. Keep in mind, a significant number of people (pharmacists included, I've had one I dealt with) think gluten and glucose are the same thing. Don't ask me how a pharmacist could possibly think that, but I've seen it happen.

Wi11ow Apprentice

This is good info to know. I asked my pharmacist last week. He looked them all up. Told me there were no ingredients that contained gluten. That they were mostly found in the capsules. Mine are all tablets. He really seemed to understand. But he also gave me manufactures numbers. I'm taking enough I guess I really need to call and find out - thanks

Georgia-guy Enthusiast

He really seemed to understand. But he also gave me manufactures numbers. I'm taking enough I guess I really need to call and find out - thanks

Wi11ow, it's nice to know there are some medical professionals that do seem to know, and aren't too cocky to give you the manufacturer's numbers without you asking. I have a cocktail of drugs I cannot take, and recently moved all my Rx to a new pharmacy because they handed me a Rx that was straight up I couldn't take...then refused to do anything like give me my $25 copay back when I was still standing at the counter (I did not realize they switched it from brand name to generic when I signed and paid). Then I have had a doctor try to give me a shot that the last time I got that Rx he had to call 911 as I started having severe cardiac issues. That doc is no longer one I see or recommend, and the state medical board and the large practice he works for that has 8 hospitals got a nice letter from me which they appreciated. Which brings up the question, does anyone know if Tylenol's Rx Acetaminophen, Vimovo, or injected steroids contain gluten?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Wi11ow Apprentice

Wi11ow, it's nice to know there are some medical professionals that do seem to know, and aren't too cocky to give you the manufacturer's numbers without you asking. I have a cocktail of drugs I cannot take, and recently moved all my Rx to a new pharmacy because they handed me a Rx that was straight up I couldn't take...then refused to do anything like give me my $25 copay back when I was still standing at the counter (I did not realize they switched it from brand name to generic when I signed and paid). Then I have had a doctor try to give me a shot that the last time I got that Rx he had to call 911 as I started having severe cardiac issues. That doc is no longer one I see or recommend, and the state medical board and the large practice he works for that has 8 hospitals got a nice letter from me which they appreciated. Which brings up the question, does anyone know if Tylenol's Rx Acetaminophen, Vimovo, or injected steroids contain gluten?

Holy Cow!! How do you ever trust anyone??!?

kareng Grand Master

Wi11ow, it's nice to know there are some medical professionals that do seem to know, and aren't too cocky to give you the manufacturer's numbers without you asking. I have a cocktail of drugs I cannot take, and recently moved all my Rx to a new pharmacy because they handed me a Rx that was straight up I couldn't take...then refused to do anything like give me my $25 copay back when I was still standing at the counter (I did not realize they switched it from brand name to generic when I signed and paid). Then I have had a doctor try to give me a shot that the last time I got that Rx he had to call 911 as I started having severe cardiac issues. That doc is no longer one I see or recommend, and the state medical board and the large practice he works for that has 8 hospitals got a nice letter from me which they appreciated. Which brings up the question, does anyone know if Tylenol's Rx Acetaminophen, Vimovo, or injected steroids contain gluten?

I can't find the link right now...but gluten is not used in injections, IVs etc.

Did you check the gluten-free drug site? I think the Rx Tylenol was gluten-free before. Your pharmacy may give you a generic. Before you pick it up, find out what company makes it. I have had some luck with googling companies and actually finding the info on line. But some have CYA statements because they don't test for gluten but use no gluten ingredients.

treesahope Newbie

I need to call the manufacturer every time I get a new RX.  I had to take a med, and investigated it down to the manufacturer, but the ingredients the manufacturer buys are processed at yet another place and from there I lost my trail of securing my pill was gluten free.  It was the anti-acid purple pill.  I was so ill with inflammation due to gluten from one of the two pills I was taking, I had pain in my joints for the first time ever.  It depends how badly you need the RX to take the risk, I am next going to a compounding Pharmacy to get a safer liquid form or injection of meds if I need them in the future.  Sorry, Pharmacists don't require a Celiac class (YET).  As more of "us" come out of the woodworks, newer measures will and should come to be.  Yes we have an interesting life checking for Gluten, have you made sure your shampoo is gluten free. ;)  uuugggh I know right!

africanqueen99 Contributor

Maybe I'm just lucky, but we use CVS for our pharmacy and the pharmacist hands me the box that the medication comes in (without the medication in it, of course) and I stand there and call the manufacturer with the appropriate codes.  My kids' notes say they can't have gluten and I just explain that our entire house is gluten-free.  It's never been an issue.

 

I own these decisions for myself and don't ask the pharmacist about a manufacturer's formulation - which changes.  I also don't think it's fair to call someone a moron or ignorant for not knowing something they're not trained to know.

Eddierickles Newbie

Everyone is saying to check with the manufacturer.  My pharmacist checked with the manufacturer. (OP)  The manufacturer admitted the pills contain gluten.  So, what the replies are saying, is, maybe the pharmacist and the manufacturer are wrong?

 

I will call the manufacturer on Tuesday myself and scrutinize each ingredient.

africanqueen99 Contributor

^^^ And I'm just saying that I wouldn't trust that information coming from anybody but the manufacturer TO ME.  If the manufacturer says there is gluten in it then find a different medication or have it made at a compounding pharmacy.  As mentioned earlier, they often have a CYA statement that won't say gluten free, but will say there are no gluten ingredients.  For me, that's good enough.

kareng Grand Master

^^^ And I'm just saying that I wouldn't trust that information coming from anybody but the manufacturer TO ME.  If the manufacturer says there is gluten in it then find a different medication or have it made at a compounding pharmacy.  As mentioned earlier, they often have a CYA statement that won't say gluten free, but will say there are no gluten ingredients.  For me, that's good enough.

 

 

Ditto   :)

Georgia-guy Enthusiast

I can't find the link right now...but gluten is not used in injections, IVs etc.

Did you check the gluten-free drug site? I think the Rx Tylenol was gluten-free before. Your pharmacy may give you a generic. Before you pick it up, find out what company makes it. I have had some luck with googling companies and actually finding the info on line. But some have CYA statements because they don't test for gluten but use no gluten ingredients.

I have checked, but it's been a few years and I can remember the exact pill info it was. I know that it was a straight acetaminophen pill (as in not mixed with Codeine etc) which is why the doc said it was the acetaminophen I was reacting to. The reaction to that has had me scared to take any painkillers. The funny thing is, I was given the Rx for pain I now believe is related to gluten.

kareng Grand Master

I have checked, but it's been a few years and I can remember the exact pill info it was. I know that it was a straight acetaminophen pill (as in not mixed with Codeine etc) which is why the doc said it was the acetaminophen I was reacting to. The reaction to that has had me scared to take any painkillers. The funny thing is, I was given the Rx for pain I now believe is related to gluten.

Tylenol with codeine is listed as gluten-free.

Georgia-guy Enthusiast

Tylenol with codeine is listed as gluten-free.

This one wasn't mixed, it was straight acetaminophen. I'm not thinking it was gluten though because my reaction was nothing like when I eat gluten.

Austin Guy Contributor

For drug info check out Open Original Shared Link.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

    2. - knitty kitty replied to Jordan Carlson's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Fruits & Veggies

    3. - knitty kitty replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

    4. - trents replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,019
    • Most Online (within 30 mins)
      7,748

    Nancy Adams
    Newest Member
    Nancy Adams
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • knitty kitty
      In the study linked above, the little girl switched to a gluten free diet and gained enough weight that that fat pad was replenished and surgery was not needed.   Here's the full article link... Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pmc.ncbi.nlm.nih.gov/articles/PMC6476019/
    • knitty kitty
      Hello, @Jordan Carlson, So glad you're feeling better.   Tecta is a proton pump inhibitor.  PPI's also interfere with the production of the intrinsic factor needed to absorb Vitamin B12.  Increasing the amount of B12 you supplement has helped overcome the lack of intrinsic factor needed to absorb B12. Proton pump inhibitors also reduce the production of digestive juices (stomach acids).  This results in foods not being digested thoroughly.  If foods are not digested sufficiently, the vitamins and other nutrients aren't released from the food, and the body cannot absorb them.  This sets up a vicious cycle. Acid reflux and Gerd are actually symptoms of producing too little stomach acid.  Insufficient stomach acid production is seen with Thiamine and Niacin deficiencies.  PPI's like Tecta also block the transporters that pull Thiamine into cells, preventing absorption of thiamine.  Other symptoms of Thiamine deficiency are difficulty swallowing, gagging, problems with food texture, dysphagia. Other symptoms of Thiamine deficiency are symptoms of ADHD and anxiety.  Vyvanse also blocks thiamine transporters contributing further to Thiamine deficiency.  Pristiq has been shown to work better if thiamine is supplemented at the same time because thiamine is needed to make serotonin.  Doctors don't recognize anxiety and depression and adult onset ADHD as early symptoms of Thiamine deficiency. Stomach acid is needed to digest Vitamin C (ascorbic acid) in fruits and vegetables.  Ascorbic acid left undigested can cause intestinal upsets, anxiety, and heart palpitations.   Yes, a child can be born with nutritional deficiencies if the parents were deficient.  Parents who are thiamine deficient have offspring with fewer thiamine transporters on cell surfaces, making thiamine deficiency easier to develop in the children.  A person can struggle along for years with subclinical vitamin deficiencies.  Been here, done this.  Please consider supplementing with Thiamine in the form TTFD (tetrahydrofurfuryl disulfide) which helps immensely with dysphagia and neurological symptoms like anxiety, depression, and ADHD symptoms.  Benfotiamine helps with improving intestinal health.  A B Complex and NeuroMag (a magnesium supplement), and Vitamin D are needed also.
    • knitty kitty
      @pothosqueen, Welcome to the tribe! You'll want to get checked for nutritional deficiencies and start on supplementation of B vitamins, especially Thiamine Vitamin B 1.   There's some scientific evidence that the fat pad that buffers the aorta which disappears in SMA is caused by deficiency in Thiamine.   In Thiamine deficiency, the body burns its stored fat as a source of fuel.  That fat pad between the aorta and digestive system gets used as fuel, too. Ask for an Erythrocyte Transketolace Activity test to look for thiamine deficiency.  Correction of thiamine deficiency can help restore that fat pad.   Best wishes for your recovery!   Interesting Reading: Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pubmed.ncbi.nlm.nih.gov/31089433/#:~:text=Affiliations,tissue and results in SMAS.  
    • trents
      Wow! You're pretty young to have a diagnosis of SMA syndrome. But youth also has its advantages when it comes to healing, without a doubt. You might be surprised to find out how your health improves and how much better you feel once you eliminate gluten from your diet. Celiac disease is an autoimmune disorder that, when gluten is consumed, triggers an attack on the villous lining of the small bowel. This is the section of the intestines where all our nutrition is absorbed. It is made up of billions of tiny finger-like projections that create a tremendous surface area for absorbing nutrients. For the person with celiac disease, unchecked gluten consumption generates inflammation that wears down these fingers and, over time, greatly reduces the nutrient absorbing efficiency of the small bowel lining. This can generate a whole host of other nutrient deficiency related medical problems. We also now know that the autoimmune reaction to gluten is not necessarily limited to the lining of the small bowel such that celiac disease can damage other body systems and organs such as the liver and the joints and cause neurological problems.  It can take around two years for the villous lining to completely heal but most people start feeling better well before then. It's also important to realize that celiac disease can cause intolerance to some other foods whose protein structures are similar to gluten. Chief among them are dairy and oats but also eggs, corn and soy. Just keep that in mind.
    • pothosqueen
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.