Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Calming Intestines?

BeckyW

By BeckyW
in Coping with Celiac Disease

Recommended Posts

BeckyW Contributor
BeckyW
Posted

I have Celiac disease and 2 other auto immune diseases.  I never eat gluten but my intestines still have absorption issues.  I have trouble sometimes where my body absorbs meds too much and other times it doesn't absorb enough.  Making my TSH level and calcium levels fluctuate.  Does anyone else have issues with this?

 

Also, has anyone found anything to take to keep the intestines "calm".  Something to keep it healthy feeling and not feeling like you always have a stomach ache?

 

Thank you for any help you can provide.  This is a constant battle.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Waitingindreams Enthusiast
Waitingindreams
Posted

Do you possibly have issues with other foods? I was avoiding gluten and lactose, but every now and then I would still get stomach cramps, bloating, gas, diarrhea, etc. It didn't make sense! I started doing elimination diets and found I had an issue with yeast, and all legumes (soy, lentils, chickpeas - etc) maybe you are eating something else that is causing you these issues?

BeckyW Contributor
BeckyW
Posted
  • Author

I do have alot of other food issues. Soy is the biggest offender and then dairy.  I just can't always avoid them all but try my best to.  Sure isn't easy, is it?

Waitingindreams Enthusiast
Waitingindreams
Posted

Avoiding soy is definitely tricky. I'm lactose intolerant, so although I knew I'd miss dairy, it was time I gave it a rest. I eat lactose free dairy sometimes and I have no issues. (At least none that I can tell)  if soy is an offender, you might possibly be sensitive to other legumes as well..such as peanuts. Do you eat a lot of peanut butter,or hummus? What are you eating that contains soy? Soybean oil is in a lot of canned soups, and I found out there was soy lecithin in my minute brown/wild rice. Ugh! I ate that all the time! I switched to buying steamfresh frozen brown rice, the only ingredients are rice and water. I've been avoiding all canned soup - I can't find any that are gluten, yeast, dairy AND soy free. UGH!

cyclinglady Grand Master
cyclinglady
Posted

I have Hashimoto's Thyroiditis (dx 20 years). It really went crazy the two years prior to menopause and my celiac disease diagnosis. I would swing from hypo to hyper within days. Trying to figure out my Armour thyroid replacement was probably driving my doctor crazy. I worried more when I hit the hyper stage as it affected my eyes and my mom (Graves) has permanent damage from all the years she ran hyper. It did not help my osteopenia either!

I think the gluten-free diet, going through menopause with the help of HRT and avoiding foods that triggered symptoms helped calm down my system. I take my Armour sublingually even though it probably does not absorb (can not find enough studies to support) but at least it is well dissolved and can be absorbed easier.

My dosage, though high, is stable for the past six months, but going gluten-free has not improved my thyroid. Antibodies have come down and I am no longer swinging, so I can not complain.

1desperateladysaved Proficient
1desperateladysaved
Posted

When I have cramping, a warm water bottle on my belly can help sooth it.  I also use helichrysum essential oil a couple of drops rubbed in over the area.

 

Dee

BeckyW Contributor
BeckyW
Posted
  • Author

I do use a warm rice bag on my tummy when it is upset. I wish I could find something to just soothe it quickly rid of discomfort.  What is the helichrysum essential oil?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


1desperateladysaved Proficient
1desperateladysaved
Posted

It is used in natural medicine.  It is an oil derived from a helichrysum plant.  My essential oil book says that a couple of drops  can be rubbed on the skin above the cramps to help ease them.  I use this with a hot water bottle.  I purchase these at local health food stores and even my local grocery store sells some common oils.

 

Dee

CathyO Rookie
CathyO
Posted

I started drinking Aloe Vera about 2 months ago.  It has made a huge difference for me.  We went on a camping trip and I forgot to take any with me, and I sure could tell the difference after 2 days without.

 

This is what I drink: 

 

http://images.iherb.com/l/GAV-10064-1.webp

BeckyW Contributor
BeckyW
Posted
  • Author

Thank you for the suggestions on the oils.  I will make a trip to the health food store this week and see what is available.

GF Lover Rising Star
GF Lover
Posted

I started drinking Aloe Vera about 2 months ago.  It has made a huge difference for me.  We went on a camping trip and I forgot to take any with me, and I sure could tell the difference after 2 days without.

 

This is what I drink: 

 

http://images.iherb.com/l/GAV-10064-1.webp

 

Hi Cathy,.

 

I remember watching a TV show, I think it was Anthony Bourdain or that other guy.  Anyway, I can't remember what city it was (Aisa) and the populus swore that by drinking Aloe Vera everyday it would manage all types of ailments.  This stuff was fresh and very thick and it tasted awful.  Otherwise I don't know anything else about it.  

 

I hope it continues to help you even tho I don't know how you can get it down...lol

 

Colleen

CathyO Rookie
CathyO
Posted

Hi Cathy,.

 

I remember watching a TV show, I think it was Anthony Bourdain or that other guy.  Anyway, I can't remember what city it was (Aisa) and the populus swore that by drinking Aloe Vera everyday it would manage all types of ailments.  This stuff was fresh and very thick and it tasted awful.  Otherwise I don't know anything else about it.  

 

I hope it continues to help you even tho I don't know how you can get it down...lol

 

Colleen

What I use is like drinking water. Clear, odorless, colorless and tasteless.

I wouldn't be able to drink the other stuff.

GF Lover Rising Star
GF Lover
Posted

What I use is like drinking water. Clear, odorless, colorless and tasteless.

I wouldn't be able to drink the other stuff.

 

Ah....cool.  Much more palatable.  The fresh stuff was like goo....and stringy.  

 

Colleen

cyclinglady Grand Master
cyclinglady
Posted

I was looking at my previous posting today and thought I must addressed a different topic! But I did not. Though it is clear now that I was rambling!

Becky, is your doc trying to address your fluctuating TSH levels? Going into a hyper stage can wreak having on your intestinal system by speeding thing up. Going hypo can slow things.

BeckyW Contributor
BeckyW
Posted
  • Author

Cyclinglady - I have an appt with a new Endocrinologist on June 9th.  For now my family doctor is treating my thyroid.  No one really knows how to treat it. When it is hyper they lower the synthryoid, when it is hypo they raise it.  I can't seem to find a dose that maintains.  My body is like swinging all over the place.  I am moody, shedding hair, weight loss then gain, and the symptoms just go on and on.  I just don't know how to regulate it and neither do the doctors.  It is really making life difficult.

cyclinglady Grand Master
cyclinglady
Posted

Becky, I can relate. I had been having swings the two years prior to my celiac disease dx and almost a year after. It was crazy. I really worried about the hyper times as my mom has Graves and has permanent eye damage. Luckily, I have not changed my thyroid dosage in months! Yeah!

I think it was really related to hormonal changes. I blame it on perimenopause. Now that I am on the other side (menopause), and maintaining a gluten-free diet, I think my thyroid has been able to calm down. It helps that my body is probably absorbing my Armour Thyroid now. Just a few years ago, it was formulated so that you could take it sublingually if you wanted. Now, I keep it under tongue after chewing it and then swallowing it with water. I have no evidence that this works, but it makes my brain happy and that is always your first line in defense when healing!

I have no solutions for you. Sorry! Good luck on your doctor's appt.!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. xxnonamexx
      - xxnonamexx replied to xxnonamexx's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Healthy Gluten Free Foods low sugar that you found?

      I know gluten free proteins like eggs and yogurt but nuts especially trail mixes are tricky as they are hard to find certified gluten free trail mixes especially w/o added sugars. I agree subscription boxes are hit or miss I think I have found RXBar with simple ingredients no added sugars gluten-free might be a great protein bar.
    2. McKinleyWY
      - McKinleyWY replied to McKinleyWY's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Accuracy of testing concerns

      I sure appreciate the information. I knew there had to be gluten consumption for the blood test, but I did not realize that also applied to biopsies. Thank you so much for that nugget of knowledge. I look forward to learning more as I dive into this website and the collective knowledge, experience, and wisdom from those who have gone before and/or those...
    3. Scott Adams
      - Scott Adams replied to xxnonamexx's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

      Thank you for sharing this — it’s really important. The FDA is actively seeking public input on improving gluten and ingredient labeling, which could directly impact how people with celiac disease and gluten sensitivity shop and stay safe. Clearer labeling would help reduce accidental gluten exposure and make it easier to identify hidden sources of gluten in ...
    4. Scott Adams
      - Scott Adams replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Low iron and vitamin d

      A low tTG is great news, but it doesn’t always mean the small intestine has fully healed yet—iron and vitamin D absorption can lag behind for months or even years, especially in young children. Many kids need supplements for a period of time while the gut repairs itself, and that doesn’t necessarily mean it will be lifelong. Morning stomach pain is also ...
    5. Scott Adams
      - Scott Adams replied to xxnonamexx's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Healthy Gluten Free Foods low sugar that you found?

      A lot of gluten-free packaged foods do rely on extra sugar, starches, or sodium to replace texture and flavor, so focusing on simpler options makes sense. Many people do better with naturally gluten-free proteins like eggs, plain yogurt, nuts, seeds, hummus, beans, and minimally processed protein bars with lower added sugar and higher fiber. Pairing those...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,245
    • Most Online (within 30 mins)
      7,748
    Christine Ranalli
    Newest Member
    Christine Ranalli
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • xxnonamexx
      Healthy Gluten Free Foods low sugar that you found?

      By xxnonamexx · Posted

      I know gluten free proteins like eggs and yogurt but nuts especially trail mixes are tricky as they are hard to find certified gluten free trail mixes especially w/o added sugars. I agree subscription boxes are hit or miss I think I have found RXBar with simple ingredients no added sugars gluten-free might be a great protein bar.
    • McKinleyWY
      Accuracy of testing concerns

      By McKinleyWY · Posted

      I sure appreciate the information. I knew there had to be gluten consumption for the blood test, but I did not realize that also applied to biopsies. Thank you so much for that nugget of knowledge. I look forward to learning more as I dive into this website and the collective knowledge, experience, and wisdom from those who have gone before and/or those who are just beginning the journey like me. Marilyn 
    • Scott Adams
      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

      By Scott Adams · Posted

      Thank you for sharing this — it’s really important. The FDA is actively seeking public input on improving gluten and ingredient labeling, which could directly impact how people with celiac disease and gluten sensitivity shop and stay safe. Clearer labeling would help reduce accidental gluten exposure and make it easier to identify hidden sources of gluten in foods. I encourage everyone here who is affected by celiac or gluten sensitivity to read the announcement and submit their own suggestions — real lived experience matters and can influence policy changes that benefit the whole community.
    • Scott Adams
      Low iron and vitamin d

      By Scott Adams · Posted

      A low tTG is great news, but it doesn’t always mean the small intestine has fully healed yet—iron and vitamin D absorption can lag behind for months or even years, especially in young children. Many kids need supplements for a period of time while the gut repairs itself, and that doesn’t necessarily mean it will be lifelong. Morning stomach pain is also commonly reported in celiac kids and can be related to slow healing, reflux, motility, or even low iron itself. It sounds like the supplements are clearly helping, which is reassuring, and ongoing monitoring with her doctor can help determine when (or if) doses can be reduced as absorption improves. The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. This article has more info:    
    • Scott Adams
      Healthy Gluten Free Foods low sugar that you found?

      By Scott Adams · Posted

      A lot of gluten-free packaged foods do rely on extra sugar, starches, or sodium to replace texture and flavor, so focusing on simpler options makes sense. Many people do better with naturally gluten-free proteins like eggs, plain yogurt, nuts, seeds, hummus, beans, and minimally processed protein bars with lower added sugar and higher fiber. Pairing those with whole foods can help you feel more “normal” without triggering symptoms. Subscription boxes can be hit or miss, so checking labels carefully and using them as an occasional supplement—rather than a staple—often works best.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.