Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

It Is A Huge Deal! It Is Not A Big Deal? (My Plan)

afitgirl

Recommended Posts

afitgirl Rookie
afitgirl
Posted

Hi guys. 

I'm less of a spazzzz  about it now... I think.  I appreciate all the time and thought so many of you put into helping me cope one week into this diagnoses.     Now I found myself thinking, this is a huge deal!!  Wait, maybe this isn't a big deal after all.     I'm confused.   Is it what you make of it? 

The food at home is not a problem for me at all.  I'm super used to eating healthy and I'm the one that brings the veggie and fruit trays to picnics with friends.  No biggie.  My house is going gluten free and we are dumping all the cooking stuff that is plastic or wood and replacing the toaster and stuff like that.    The restaurant thing is what is making me nervous.   I've found some help with real life celiacs and they seem to tell me that you take the precautions at restaurants that you should, you don't eat food that is iffy but then you live your life.  Basically saying it was okay to order a salad and baked potato (bringing my own dressing in my purse--which I've done for years anyway) telling the wait staff your needs and then enjoy your meal.   Does that sound right?

Here is my plan.  Can I have some  thoughts on this?

Live day by day until I have:
-uterine ablation (what started this mess---scheduled June 11th)
-Meet with GI (still haven't seen her---sigh...waiting to be called with appt)
- Have endo for damage.

 

-After that, clean out kitchen and eat gluten-free 100%

-Trust labels on foods (this is a big issue for me.   So many scare me about that reading here/books and I don't want to be that way.  The real life celiac friends (2 of them) say I should trust labels)
-Find 5-6 restaurants that I feel like I can trust.  Tip well, get to know manager.

-Make it through beach trip with family/friends

-Make it through cruise in July with husband and friends (super scared of gluten-free on the carnival cruise)

-Test children

Continue this until 6-8 months from official gluten-free start.   Have new blood panel and check levels.  If negative or dropping decently continue on path.  If not, sink into deep depression.  (Not really....but I'm fearful of that).

If all goes well then I will look into another endo 12-18 months later.


Sorry for typos.   3 year old on lap.


Thoughts on any of this?
 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


BlessedMommy Rising Star
BlessedMommy
Posted

Sounds like a great plan!

 

I'm glad that you are relaxing a little bit. You got this, you can do it! :)

GF Lover Rising Star
GF Lover
Posted

Hi guys. 

I'm less of a spazzzz  about it now... I think.  I appreciate all the time and thought so many of you put into helping me cope one week into this diagnoses.     Now I found myself thinking, this is a huge deal!!  Wait, maybe this isn't a big deal after all.     I'm confused.   Is it what you make of it? 

The food at home is not a problem for me at all.  I'm super used to eating healthy and I'm the one that brings the veggie and fruit trays to picnics with friends.  No biggie.  My house is going gluten free and we are dumping all the cooking stuff that is plastic or wood and replacing the toaster and stuff like that.    The restaurant thing is what is making me nervous.   I've found some help with real life celiacs and they seem to tell me that you take the precautions at restaurants that you should, you don't eat food that is iffy but then you live your life.  Basically saying it was okay to order a salad and baked potato (bringing my own dressing in my purse--which I've done for years anyway) telling the wait staff your needs and then enjoy your meal.   Does that sound right?

Here is my plan.  Can I have some  thoughts on this?

Live day by day until I have:

-uterine ablation (what started this mess---scheduled June 11th)

-Meet with GI (still haven't seen her---sigh...waiting to be called with appt)

- Have endo for damage.

 

-After that, clean out kitchen and eat gluten-free 100%

-Trust labels on foods (this is a big issue for me.   So many scare me about that reading here/books and I don't want to be that way.  The real life celiac friends (2 of them) say I should trust labels)

-Find 5-6 restaurants that I feel like I can trust.  Tip well, get to know manager.

-Make it through beach trip with family/friends

-Make it through cruise in July with husband and friends (super scared of gluten-free on the carnival cruise)

-Test children

Continue this until 6-8 months from official gluten-free start.   Have new blood panel and check levels.  If negative or dropping decently continue on path.  If not, sink into deep depression.  (Not really....but I'm fearful of that).

If all goes well then I will look into another endo 12-18 months later.

Sorry for typos.   3 year old on lap.

Thoughts on any of this?

 

Sounds great.  Just remember:  No croutons on the salad (don't pick them off if they forgot) and request your baked potato UN-cut (you don't know where the knife has been).  Lastly, always let them know that you have a Medical Diet (they should write that on the order) and cannot have wheat, barley and rye so the Kitchen knows to be careful of contamination.  

 

It is a big deal and not such a big deal.  The big is this is a serious disease and should be treated as such.  The not so big is living a gluten free lifestyle.  It will become your new normal and become routine.  

 

Good Luck to you.

 

Colleen

cyclinglady Grand Master
cyclinglady
Posted

What a great plan!

I think your cruise will be fine. I notified my cruise line (RC) via email. They suggested meeting with the dining room manager as soon as we board ship. We plan on eating every meal in the dining room. We did that before we were diagnosed. I want someone to wait on me all the time! Bringing snacks with me for port stops just in case.

Heading out for the beach with 14 family and friends this weekend. We are the gluten-free family, but others have some picky eaters. Every family cooks for themselves and we share chips, ice cream, and drinks (I just put out enough and hold back some for us). With kids, it is not just CC, but sand contamination! Ugh!

It is not so bad! Glad you are feeling better.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Blood Test for Celiac wheat type matters?

      Wheatwacked, are you speaking of the use of potassium bromide and and azodicarbonamide as dough modifiers being controlling factor for what? Do you refer to celiac reactions to gluten or thyroid disease, kidney disease, GI cancers?
    2. Scott Adams
      - Scott Adams replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Blood Test for Celiac wheat type matters?

      Excess iodine supplements can cause significant health issues, primarily disrupting thyroid function. My daughter has issues with even small amounts of dietary iodine. While iodine is essential for thyroid hormone production, consistently consuming amounts far above the tolerable upper limit (1,100 mcg/day for adults) from high-dose supplements can trigger...
    3. Wheatwacked
      - Wheatwacked replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Blood Test for Celiac wheat type matters?

      In Europe they have banned several dough modifiers potassium bromide and and azodicarbonamide. Both linked to cancers. Studies have linked potassium bromide to kidney, thyroid, and gastrointestinal cancers. A ban on it in goes into effect in California in 2027. I suspect this, more than a specific strain of wheat to be controlling factor. Sourdough...
    4. jenniber
      - jenniber replied to tiffanygosci's topic in Introduce Yourself / Share Stuff
      5

      Celiac support is hard to find

      same! how amazing you have a friend who has celiac disease. i find myself wishing i had someone to talk about it with other than my partner (who has been so supportive regardless)
    5. RMJ
      - RMJ replied to TheDHhurts's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      need help understanding testing result for Naked Nutrition Creatine please

      They don’t give a sample size (serving size is different from sample size) so it is hard to tell just what the result means. However, the way the result is presented does look like it is below the limit of what their test can measure, so that is good.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,117
    • Most Online (within 30 mins)
      7,748
    rubyterrapin
    Newest Member
    rubyterrapin
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • trents
      Blood Test for Celiac wheat type matters?

      By trents · Posted

      Wheatwacked, are you speaking of the use of potassium bromide and and azodicarbonamide as dough modifiers being controlling factor for what? Do you refer to celiac reactions to gluten or thyroid disease, kidney disease, GI cancers? 
    • Scott Adams
      Blood Test for Celiac wheat type matters?

      By Scott Adams · Posted

      Excess iodine supplements can cause significant health issues, primarily disrupting thyroid function. My daughter has issues with even small amounts of dietary iodine. While iodine is essential for thyroid hormone production, consistently consuming amounts far above the tolerable upper limit (1,100 mcg/day for adults) from high-dose supplements can trigger both hyperthyroidism or hypothyroidism, worsen autoimmune thyroid diseases like Hashimoto's, and lead to goiter. Other side effects include gastrointestinal distress. The risk is highest for individuals with pre-existing thyroid conditions, and while dietary iodine rarely reaches toxic levels, unsupervised high-dose supplementation is dangerous and should only be undertaken with medical guidance to avoid serious complications. It's best to check with your doctor before supplementing iodine.
    • Wheatwacked
      Blood Test for Celiac wheat type matters?

      By Wheatwacked · Posted

      In Europe they have banned several dough modifiers potassium bromide and and azodicarbonamide.  Both linked to cancers.  Studies have linked potassium bromide to kidney, thyroid, and gastrointestinal cancers.  A ban on it in goes into effect in California in 2027. I suspect this, more than a specific strain of wheat to be controlling factor.  Sourdough natural fermentation conditions the dough without chemicals. Iodine was used in the US as a dough modifier until the 1970s. Since then iodine intake in the US dropped 50%.  Iodine is essential for thyroid hormones.  Thyroid hormone use for hypothyroidism has doubled in the United States from 1997 to 2016.   Clinical Thyroidology® for the Public In the UK, incidently, prescriptions for the thyroid hormone levothyroxine have increased by more than 12 million in a decade.  The Royal Pharmaceutical Society's official journal Standard thyroid tests will not show insufficient iodine intake.  Iodine 24 Hour Urine Test measures iodine excretion over a full day to evaluate iodine status and thyroid health. 75 year old male.  I tried adding seaweed into my diet and did get improvement in healing, muscle tone, skin; but in was not enough and I could not sustain it in my diet at the level intake I needed.  So I supplement 600 mcg Liquid Iodine (RDA 150 to 1000 mcg) per day.  It has turbocharged my recovery from 63 years of undiagnosed celiac disease.  Improvement in healing a non-healing sebaceous cyst. brain fog, vision, hair, skin, nails. Some with dermatitis herpetiformis celiac disease experience exacerbation of the rash with iodine. The Wolff-Chaikoff Effect Crying Wolf?
    • jenniber
      Celiac support is hard to find

      By jenniber · Posted

      same! how amazing you have a friend who has celiac disease. i find myself wishing i had someone to talk about it with other than my partner (who has been so supportive regardless)
    • RMJ
      need help understanding testing result for Naked Nutrition Creatine please

      By RMJ · Posted

      They don’t give a sample size (serving size is different from sample size) so it is hard to tell just what the result means.  However, the way the result is presented  does look like it is below the limit of what their test can measure, so that is good.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.