Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Non-Diabetic Reactive Hypo


robinamicrowave

Recommended Posts

robinamicrowave Newbie

Had two very severe non-diabetic hypos over the past two months after doing exercise. 

It's getting to the point where I'm quite scared now. Can anyone help?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



LauraTX Rising Star

Can you give a little more detail about what happened?  Your first step should probably be to make an appointment with your primary care doctor to get their opinion first.

1desperateladysaved Proficient

You can help keep your blood sugar as stable as possible by avoiding sweets.  Even fruit juice has a great deal of natural sugar, so I avoid it.  Have bites of fruit rather than whole fruits.  Have protein and good fat (olive oil, coconut oil, or butter if tolerated) with every meal.  These things I have used to help stabilize my blood sugar.  I would get help also.  If you have celiac it will help to follow the diet and get generally healthy.  Oh, also make your exercise sessions have a time limit, so you don't stress the body too much at a time..

 

Dee

Adalaide Mentor

I've been thinking on this and wondered if you know you were hypo because you tested yourself, or only assume you were because of how you felt. Because I can become hypo if I'm not careful with how I eat, and suffer from low blood pressure, I can tell you that both can feel very similar to each other. Cooling off after exercise could cause a dip, it's happened to me. I agree that you should definitely see a doctor in case something serious is going on.

  • 4 weeks later...
Sammykins Newbie

Had two very severe non-diabetic hypos over the past two months after doing exercise.

It's getting to the point where I'm quite scared now. Can anyone help?

Hi there,

I too have reactive (postprandial) hypoglycemia, and have also had serious episodes where I've blacked out and had massive convulsions. Have you been diagnosed by a doctor? It is very important to have it properly diagnosed, as it can be caused by tumor (insulinoma) or be something like Addison's Disease.

Assuming you have been diagnosed with RH, these where the instructions from my endocrinologist and/or things that I've discovered help me:

1. Switch to a low carbohydrate, high fat, moderate protein diet. She wanted me to go to 30% carbohydrate, but I found I do better around 40-45%.

2. Any carbohydrate/meal/snack should preferably be low-GI. The aim is to avoid your blood glucose SPIKING, since that's what causes it to crash after eating.

3. Any carbohydrate should be part of a mixed meal or snack.

4. Don't have too much carbohydrate at one time, even if it is part of a properly balanced meal.

5. Eat smaller meals but more frequently, say every 3 hours. Don't go too long without eating.

6. Get yourself a glucose monitor and start testing yourself before eating, and about two after after eating to see how that particular meal/snack effected you.

7. Check for added/hidden sugar in any processed foods that you buy!

8. Avoid caffeine.

9. Try to find what I all your 'magic' or 'rescue' meal. It's the one that stops your glucose from falling without making it shoot up again only to crash even more afterwards. For me that's peanut butter on a bit of carbohydrate (half a slice of bread or a couple of brown rice cakes, though I suspect the rice cakes don't work for everyone).

I too am an athlete, exercising up to 90 mins at a time. This is what I do:

1. I took a break from training while I stabilized

my blood sugar. It's too risky to workout when you don't know how a meal/snack is effecting you.

2. I make sure I have eaten beforehand, and not too long beforehand. I tend to eat about an hour before exercise, that way I'm not too close to my next meal nor too close to my workout that I may have GI issues.

3. Experiment with what works before exercise. I can't have too much protein beforehand or I'll be sick, so my carbohydrate is paired with a good amount of fat instead. My endo wanted me to split a protein bar in half to have before and after exercise. Obviously this didn't work for me, but it may work for you.

4. Depending on how long you're there, you may have to eat a bit while you're exercising. Just don't follow the usual sports diet approach of having high GI carbs, this is not for you!

5. Always, ALWAYS have something with you to eat immediately after you stop exercising. This is good advice for anyone, because eating after exercise helps you recover better from your training! But make sure it is the type of meal/snack that works for you - not the high-GI, high carbohydrate foods that sports dietitians recommend for most people! Get some protein into you in particular.

Let me know how you get on! There are so few of us out there it seems, and most doctors have never encountered it or know what to do. Have a hypo and they want to stick some pure glucose into you. No no no! You don't treat an episode of reactive hypoglycemia like regular hypoglycemia unless you want the person to continue dropping further after you spike their blood glucose!

Good luck!

PS: I found a YouTube channel 'blogsoidontforget' by someone with RH. You might find it helpful.

NatureChick Rookie

Presuming that you're already eating enough calories, I'd research what vitamins exercise tends to drain from your body and the vitamins needed for your liver to metabolize some foods. Many of them overlap. Not only that, but many of them are also the vitamins that one finds in fortified wheat flour - which celiacs don't eat, making it more difficult to make up the losses.

If you get tested for vitamin deficiencies, get your results from your doctor because just being within normal ranges doesn't mean that you are at ideal levels. Research the maximum recommended doses before buying gluten-free supplements, and research the side effects so that you can tell if your body is trying to tell you that you're overdoing it.

If you do have deficiencies, you won't be able to correct them through diet or multivitamins alone, despite what many people think. But I personally despise supplements and their side effects, so I'd also recommend researching natural sources for the vitamins that exercise tends to drain away and try to get more of them in your diet as well. I'm also not keen on the idea of just taking a multivitamin because supplementing vitamins that you don't need can have negative consequences as well.

Next, do some research into the enzymes. There are several that come into play when it comes to keeping blood sugar levels normal and exercise can deplete them. I wouldn't take the easy way out and just drink a sports drink that is supposed to replace enzymes because most of them contain ingredients I wouldn't want to put in my body, even if it is just a matter of getting too much of a good thing.

Foods that are high in enzymes generally include raw fruits and veggies, nuts, and seeds and some have more than others. (Note that many nuts sold as unroasted aren't actually raw because in today's world of processing, they do get hit with a dose of high heat to kill off fungus or other pathogens. For many types of nuts, finding truly raw products in a store is almost impossible these days.)

But I might also add that there are a lot of myths out there concerning enzymes and raw foods so you have to pick and choose what to believe. Don't fall prey to those who try to sell the idea that 100% raw diets are healthy. They are not. And at the other end of the spectrum, don't believe people that say you don't need enzymes from food sources because your body will make all that it needs. And in the case of those with digestive problems, damage can inhibit enzyme production.

I'm less familiar with enzyme supplements because I've never taken them. But enzymes and vitamins work together to keep your bodies' processes running smoothly, and lots of exercise is a good way to deplete both.

I do recommend not consuming fewer calories per day than your basal metabolic rate. And if you aren't trying to lose weight, add on the number of calories that your exercise burns. 

I do agree with the previous comment about eating after exercise. Protein after is also supposed to help build muscle.

  • 3 weeks later...
robinamicrowave Newbie

Presuming that you're already eating enough calories, I'd research what vitamins exercise tends to drain from your body and the vitamins needed for your liver to metabolize some foods. Many of them overlap. Not only that, but many of them are also the vitamins that one finds in fortified wheat flour - which celiacs don't eat, making it more difficult to make up the losses.

If you get tested for vitamin deficiencies, get your results from your doctor because just being within normal ranges doesn't mean that you are at ideal levels. Research the maximum recommended doses before buying gluten-free supplements, and research the side effects so that you can tell if your body is trying to tell you that you're overdoing it.

If you do have deficiencies, you won't be able to correct them through diet or multivitamins alone, despite what many people think. But I personally despise supplements and their side effects, so I'd also recommend researching natural sources for the vitamins that exercise tends to drain away and try to get more of them in your diet as well. I'm also not keen on the idea of just taking a multivitamin because supplementing vitamins that you don't need can have negative consequences as well.

Next, do some research into the enzymes. There are several that come into play when it comes to keeping blood sugar levels normal and exercise can deplete them. I wouldn't take the easy way out and just drink a sports drink that is supposed to replace enzymes because most of them contain ingredients I wouldn't want to put in my body, even if it is just a matter of getting too much of a good thing.

Foods that are high in enzymes generally include raw fruits and veggies, nuts, and seeds and some have more than others. (Note that many nuts sold as unroasted aren't actually raw because in today's world of processing, they do get hit with a dose of high heat to kill off fungus or other pathogens. For many types of nuts, finding truly raw products in a store is almost impossible these days.)

But I might also add that there are a lot of myths out there concerning enzymes and raw foods so you have to pick and choose what to believe. Don't fall prey to those who try to sell the idea that 100% raw diets are healthy. They are not. And at the other end of the spectrum, don't believe people that say you don't need enzymes from food sources because your body will make all that it needs. And in the case of those with digestive problems, damage can inhibit enzyme production.

I'm less familiar with enzyme supplements because I've never taken them. But enzymes and vitamins work together to keep your bodies' processes running smoothly, and lots of exercise is a good way to deplete both.

I do recommend not consuming fewer calories per day than your basal metabolic rate. And if you aren't trying to lose weight, add on the number of calories that your exercise burns. 

I do agree with the previous comment about eating after exercise. Protein after is also supposed to help build muscle.

Thank you to those who replied, but I think this may have answered my question. Since I posted this story I have had other episodes of feeling severely fatigued for a number of days after minimal exercise (I played bat and ball on a beach for 10 minutes and was almost on my back for days afterwards) and I'm starting to think it's down to a Vitamin D deficiency. I was told I had a Vitamin D deficiency many months ago but didn't know it would become this serious.

My episodes feel very unusual and tend to begin within an hour after I "exercise". I start by feeling very weak, sometimes needing to sit down. But when I sit down I still feel as though something is washing over me: I feel incredibly exhausted, short of breath and feel like sitting down in a chair is still too much effort. I also feel short of breath and sometimes have to take a lung full to feel satisfied. When I lie down my heart beat feels very strong in my chest and ears and I often have to breathe deeply to feel comfortable. Even doing things such as moving slowly around my house feel difficult and draining. My memory and concentration also feel very cloudy when I'm on a downer.

This can last anywhere between 5 hours and 7 days and often feels very similar to chronic fatigue syndrome. 

Sometimes I crash completely and have to rush to the bathroom so that my bowels can relieve themselves - in extreme cases this normally triggers vomiting, but that has happened only once so far. I normally feel comfortable for 5 minutes after I've been to the toilet but the symptoms I've described above soon return. I'm getting quite worried about this now because I'm starting college again in two months and I may not be well enough to concentrate or even wake up in the morning and feel like going. 

Has anyone else has this problem?

 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



beth01 Enthusiast

Get your thyroid checked

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

    2. - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

    3. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      how much gluten do I need to eat before blood tests?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,321
    • Most Online (within 30 mins)
      7,748

    James Minton
    Newest Member
    James Minton
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    • trents
      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in hospitals or institutional care and I'm guessing your physician would be willing to grant you a diagnosis of gluten sensitivity (NCGS) even if your celiac testing comes up negative. Also, you need to be aware that oats (even gluten free oats) is a common cross reactor in the celiac community. Oat protein (avenin) is similar to gluten. You might want to look at some other gluten free hot  breakfast cereal alternatives.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.