Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Shelf Diagnosed

Catherine180

Recommended Posts

Catherine180 Newbie
Catherine180
Posted

Hello my name.is Catherine I guess I have had pretty ba symptoms for two years, December d not inow why sonpushed my primary care doctor.to.look into it. He diagnosed me with ibs.and gave me bentyl which did not.help. I had another year and a half of.dr. appointments when my ex sister in law described

the.symptoms.then I went thru my husbands insurance and was diagnosed by biopsy and blood antbodies. I.now feel.alone my husband.and two kids eat.whatever they wNt. It was bad enough no.one believed me until.I had a.positive biopsy.including my husband, but now.I.feel stuck sucking it up with everyone around me.eating.what thay want. And my husband ate.my.gluten.free macaroni and cheese for me.and the kids on movie night.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kareng Grand Master
kareng
Posted

Hello my name.is Catherine I guess I have had pretty ba symptoms for two years, December d not inow why sonpushed my primary care doctor.to.look into it. He diagnosed me with ibs.and gave me bentyl which did not.help. I had another year and a half of.dr. appointments when my ex sister in law described

the.symptoms.then I went thru my husbands insurance and was diagnosed by biopsy and blood antbodies. I.now feel.alone my husband.and two kids eat.whatever they wNt. It was bad enough no.one believed me until.I had a.positive biopsy.including my husband, but now.I.feel stuck sucking it up with everyone around me.eating.what thay want. And my husband ate.my.gluten.free macaroni and cheese for me.and the kids on movie night.

I'm not certain but if you were saying you are self diagnosed - I don't think so. You were medically diagnosed by blood and biopsy. I am sorry your family are being such jerks. Maybe if you told them how you feel? Maybe if you reminded the hub about how much gluten-free Mac and cheese costs? I cook what I want to eat so they usually eat gluten-free. Last night we had burgers, Ore Ida oven fries and cantelope. They had their burgers on Wheat buns. I don't care about a bun, so I ate mine with a fork.

Catherine180 Newbie
Catherine180
Posted
  • Author

No I self diagnosed first and had to fight severa doctors to do.the required testing to confirm

Catherine180 Newbie
Catherine180
Posted
  • Author

Sorry fornmy.bad grammar. I am a surgical nurse

cyclinglady Grand Master
cyclinglady
Posted

Maybe a family meeting is in order? Armed with copies of your test results and some articles on Celiac Disease? With a friend or Pastor there for support? Get them to come up with ideas on how to keep you safe?

nvsmom Community Regular
nvsmom
Posted

I'm sorry you have no support.  :(  Perhaps start doing the grocery shopping and only buy gluten-free foods?  If it is not in the house it will be harder for them to eat it around you.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,071
    • Most Online (within 30 mins)
      7,748
    Gigic
    Newest Member
    Gigic
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Russ H
      KAN-101 Treatment for Coeliac Disease

      By Russ H · Posted

      This treatment looks promising. Its aim is to provoke immune tolerance of gluten, possibly curing the disease. It passed the phase 2 trial with flying colours, and I came across a post on Reddit by one of the study volunteers. Apparently, the results were good enough that the company is applying for fast track approval.  Anokion Announces Positive Symptom Data from its Phase 2 Trial Evaluating KAN-101 for the Treatment of Celiac Disease https://www.reddit.com/r/Celiac/comments/1krx2wh/kan_101_trial_put_on_hold/
    • Scott Adams
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By Scott Adams · Posted

      BTW, we've done other articles on this topic that I wanted to share here (not to condone smoking!):    
    • Colleen H
      Gluten related ??

      By Colleen H · Posted

      Hi everyone  This has been a crazy year so far... How many people actually get entire sensory overload from gluten or something similar ?  My jaw is going nuts ..and that nerve is affecting my upper back and so on ...  Bones even hurt.  Brain fog. Etc  I had eggs seemed fine.   Then my aid cooked a chicken stir fry in the microwave because my food order shorted a couple key items .   I was so hungry but I noticed light breading and some ingredients with SOY !!! Why are we suffering with soy ? This triggered a sensitivity to bananas and gluten-free yogurt it seems like it's a cycle that it goes on.  The tiniest amount of something gets me I'm guessing the tiny bit of breading that I took one tiny nibble of ...yikes ..im cringing from it .. Feels like my stomach is going to explode yet still very hungry 😔  How long does this last?! Thank you so much 
    • Scott Adams
      Celiac getting dentures

      By Scott Adams · Posted

      This is an older article, but may be helpful.  
    • gfmom06
      Celiac getting dentures

      By gfmom06 · Posted

      I have had orthodontic work done. The 3M invisalign material was no problem. BUT my retainers are another matter. They seemed okay for a few months. Now, however, they cause a burning sensation on my tongue, gums and insides of my lips. The burning sensation is now spreading to my throat. I notice it when I breathe. This is annoying and interferes with my enjoyment of eating. I am visiting with my provider tomorrow. We'll see where this goes from here.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.