Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

And The Torture Begins...


Georgia-guy

Recommended Posts

Georgia-guy Enthusiast

1 week in, and people are already torturing me. :-( Today I had a customer offer me some fresh (I could see the steam and smell them from a mile away) cookies! It was torture to say "no, thank you. I can't have them." Then, of course, she responded "the other mail man says y'all are allowed to have treats from customers." :-/ True story, we are allowed to at our discretion (if we trust them) but these people are in a neighborhood you don't move out of. Most of them have been there in the same houses since the 1950's. Made me feel bad turning them down, but I *think* she understood my explanation that it wasn't I didn't want them, it was that I couldn't have them for medical reasons. (She told me to keep an eye on my sugar, but at least she got the medical reasons part. Lol) I know it will get easier, but I've been thinking about them all day, and everything smells like them to me. :-(

But on the bright side, I did find a fresh fruit farm today, one of the pick your own places. :-)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



beth01 Enthusiast

It's hard being a celiac, especially when there is food involved ( family get togethers, bars, restaurants, parties).  I only feel a 100% safe at home, and even here I have managed to gluten myself. I think I said the other day, " I would rather be agoraphobic rather than celiac". lol

mamaw Community Regular

You  probably already know  the drill:   When  life  hands you lemons  make  lemonade"..... when I see  , smell or  hear  of  something that  puts  me  over  the top, I  either  go home  &  make  a copycat  or  order  it  gluten-free  & treat  myself...  And  after you have been gluten-free  for  a  period  of  time  your  taste & desires  will change.. It  becomes  easier  to  say  wow  that  looked  yummy  but  I  don't  need  it....

I  think the  key  is  make  sure  you never  feel food  deprived.......

People  mean well  they  just  don't know  about  this  crazy  disease....

Nikki2777 Community Regular

ITA - it gets easier.  

 

I look at it this way, there have always been restaurants in our neighborhood I go to and those I didn't for one reason or another -- too pricey, too fancy, not fancy enough, too much seafood on the menu (don't like that), etc.  I just look at this now as one more reason and I pass by those restaurants without even noticing.  With a few exceptions (and maybe a good pout every four months or so) it's the same way with foods I can't have.  I don't even notice them, just look past them for the thing I can have.  It's not worth it to be sick, so I don't even put them in the bucket of options.

cyclinglady Grand Master

Go buy a bag of Nestle chocolate chips and follow the cookie recipe. Sub out the flour for Pamela's gluten-free cup-for-cup. You will not miss gluten cookies after eating a hot batch of these cookies. If Pamela's is not available try a flour blend that contains a gum (Xanthan or guar). avoid flours with garbanzo beans. In my opinion, it tastes odd.

It will get better!

Questore Rookie

I haven't been having as much trouble as I thought I would...then I remembered, I had had intensive training for this years ago...with just oatmeal and potatoes!

 

I did however need to go shopping this week at a normal market...you know, where they put all the pastries just inside the entrance door!  Talk about wanting to holler at someone for being so insensitive!!!  I put my nose in the air, and tried hard to feel as nauseated as if I had eaten them.

 

My real problem right now is finding a good bread recipe...I want to use all the grains and seeds I can, attempting to replace my beloved Orowheat Honey Wheat Berry that I could scarcely find in the stores when I was eaten food with gluten in it!  I tried both of the RedHill mixes...one is a bit corn flavored, but okay...the other a lot buckwheat flavored, and not so okay...I had to put butter and Maple Syrup on it to eat it at all.

 

Now begins the experimentation...and lab notes!

C-Girl Contributor

I haven't been having as much trouble as I thought I would...then I remembered, I had had intensive training for this years ago...with just oatmeal and potatoes!

 

I did however need to go shopping this week at a normal market...you know, where they put all the pastries just inside the entrance door!  Talk about wanting to holler at someone for being so insensitive!!!  I put my nose in the air, and tried hard to feel as nauseated as if I had eaten them.

 

My real problem right now is finding a good bread recipe...I want to use all the grains and seeds I can, attempting to replace my beloved Orowheat Honey Wheat Berry that I could scarcely find in the stores when I was eaten food with gluten in it!  I tried both of the RedHill mixes...one is a bit corn flavored, but okay...the other a lot buckwheat flavored, and not so okay...I had to put butter and Maple Syrup on it to eat it at all.

 

Now begins the experimentation...and lab notes!

I may have one for you Questor Open Original Shared Link


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



JodyM75 Apprentice

I did however need to go shopping this week at a normal market...you know, where they put all the pastries just inside the entrance door!  Talk about wanting to holler at someone for being so insensitive!!!  I put my nose in the air, and tried hard to feel as nauseated as if I had eaten them.

 

My real problem right now is finding a good bread recipe...I want to use all the grains and seeds I can, attempting to replace my beloved Orowheat Honey Wheat Berry that I could scarcely find in the stores when I was eaten food with gluten in it!  I tried both of the RedHill mixes...one is a bit corn flavored, but okay...the other a lot buckwheat flavored, and not so okay...I had to put butter and Maple Syrup on it to eat it at all.

 

Now begins the experimentation...and lab notes!

 

The grocery store I frequent the most puts the gluten-free section RIGHT NEXT TO THEIR BAKERY!!!!

 

My dear friend made the gluten-free bread from "5-Minutes a Day for Healthy Bread" book, and it was very good!

sweetsailing Apprentice

Ahhh...the grocery store.  I walked in yesterday and seemed to be assaulted by gluten.  They had it all stacked up right as you enter the store.  I felt like someone was doing this deliberately to taunt me.  Once you really take note of where the gluten items are in the store, it is amazing to me how I can now skip about 50% of the store entirely.  I am liking the produce section lately, it looks very pretty with all the fresh multi-colored veggies right now. 

notme Experienced

1 week in, and people are already torturing me. :-( Today I had a customer offer me some fresh (I could see the steam and smell them from a mile away) cookies! It was torture to say "no, thank you. I can't have them." Then, of course, she responded "the other mail man says y'all are allowed to have treats from customers." :-/ True story, we are allowed to at our discretion (if we trust them) but these people are in a neighborhood you don't move out of. Most of them have been there in the same houses since the 1950's. Made me feel bad turning them down, but I *think* she understood my explanation that it wasn't I didn't want them, it was that I couldn't have them for medical reasons. (She told me to keep an eye on my sugar, but at least she got the medical reasons part. Lol) I know it will get easier, but I've been thinking about them all day, and everything smells like them to me. :-(

But on the bright side, I did find a fresh fruit farm today, one of the pick your own places. :-)

 

if you really want to be sweet, you could just take the cookies, say 'thank you' and give them to your friends :)  that's what i do when the church ladies forget (i feed them to my husband - he is so tortured lolz)

 

(and as i was just disappointed by a nectarine <the texture of a golf ball> i was lamenting the last time i had a *good* peach.  i bought the nectarine in hopes it would be peach-like :( any peaches down there yet?  there used to be a farmer who would come up to spring city with delicious georgia peaches.  mmmmmmmm.............. )

mamaw Community Regular

Questore;;;;;;   I like to make  my own  healthy  multigrain bread too... but  life  gets  so busy  that  I need  a  good  ready  made  one too.. We  love  the three  bakers: 7 ancient  grain bread"   it  can be  found  in health food  stores  &  some  major  grocery stores  or  always  online....

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,991
    • Most Online (within 30 mins)
      7,748

    ZENken
    Newest Member
    ZENken
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wheatwacked
      Have faith, you will survive. I get mine from Pipingrock.com.  500 capsules of 10,000 IU for $22.  That is almost two years worth for me.  250 caps 5000 IU for $6.69 if you only take 5,000 a day.  It's like half the price of Walmart.
    • Wheatwacked
      Testing can't alone be trusted.  Else why would it take so many years of testing and retesting and misdiagnosis to finally be told, yes you have Celiac Disease. As to what to eat, I like pre 1950 style food.  Before the advent of TV dinners.  Fresh food is better for you, and cooking from scratch is cheaper.  Watch Rachel Ray's 30 Minute Meals for how to cook.  Keep in mind that she is not gluten free, but her techniques are awesome.  Just use something else instead of wheat, barley, rye. Dr Fuhrman is a ex cardiologist.  His book Eat to Live and Dr Davis' book Wheatbelly were instrumental in my survival.
    • Scott Adams
      If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch--thanks for the tip about Dupixent, and I've added it to the article:  
    • Scott Adams
      I just want to clarify that what I posted is a category of research summaries we've done over the years, and nearly each one shows that there is definitely a connection to celiac disease and migraine headaches. The latest study said: "the study did indicate some potential causal associations between celiac disease and migraine with or without aura, as well as between migraine without aura and ulcerative colitis...this study did not find evidence of a shared genetic basis..." Anyway, there is definitely a connection, and you can go through more of the articles here if you're interested: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/migraine-headaches-and-celiac-disease/
    • SusanJ
      Two months ago, I started taking Dupixent for dermatitis herpetiformis and it has completely cleared it up. I can't believe it! I have had a terrible painful, intensely itchy rash for over a year despite going fully gluten-free. See if your doctor will prescribe Dupixent. It can be expensive but I am getting it free. When the dermatitis herpetiformis was bad I could not do anything. I just lay in bed covered in ice packs to ease the pain/itching and using way too Clobetasol. Dapsone is also very good for dermatitis herpetiformis (and it is generic). It helped me and the results were immediate but it gave me severe anemia so the Dupixent is better for me. Not sure if it works for everyone. I cannot help with the cause of your stress but from experience I am sure the severe stress is making the celiac and dermatitis herpetiformis worse. Very difficult for you with having children to care for and you being so sick. Would this man be willing to see a family therapist with you? He may be angry at you or imagine that your illness is a psychosomatic excuse not to take care of him. A therapist might help even if he won't go with you. Also do you have any family that you could move in with (with the kids) for a short time to get away? A break may be good for you both.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.