Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Halloween Boo Boo


Bette

Recommended Posts

Bette Explorer

Okay I am trying to figure out why I am reacting to a Snickers bar, that I snuck out of my daughters candy last night. I had 2 of the minatures, plain (not the one with the crispies). That's it , I swear :huh: , I am having a definate gluten reaction starting with the big D, this morning, stomach cramping, nauseus, brain fog, and very thirsty.

Has anybody else had a problem with the Snickers bar?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



VydorScope Proficient
Okay I am trying to figure out why I am reacting to a Snickers bar, that I snuck out of my daughters candy last night. I had 2 of the minatures, plain (not the one with the crispies). That's it , I swear :huh: , I am having a definate gluten reaction starting with the big D, this morning, stomach cramping, nauseus, brain fog, and very thirsty.

Has anybody else had a problem with the Snickers bar?

<{POST_SNAPBACK}>

What else did you eat/drink that day? Have you tested for food allergies, esply egg?

2Boys4Me Enthusiast

I've heard that the mini Snickers are not gluten-free, but the big ones are. I have NO idea why there would be a difference, but I am quite certain the delphi list says mini snickers are chock-full of gluten. (in Canada, anyway)

VegasCeliacBuckeye Collaborator

Regular snickers bars are ok, the miniature snickers have gluten in them.

VydorScope Proficient
Regular snickers bars are ok, the miniature snickers have gluten in them.

<{POST_SNAPBACK}>

Errrrr does not mention it on the bag I have. Nothing on it suggested gluten... although the ones I have say "Fun Size" on them, is that different?

KaitiUSA Enthusiast

The following are gluten-free: Snickers (except mini's in Canada); Skittles; Starburst; Dove (milk & dark choc); Mars Almond Bar; 3Musketeers; MilkyWay Midnight (all other MilkyWay's are not gluten-free). All mini versions of the above are gluten-free except Snickers in Canada)

That is from the Delphi List

Last time I called the company they told me the mini ones are gluten free..

Vydor-the ones you have I believe to be safe

This is also said on the Delphi list:

M & M Mars will clearly list wheat and barley in the products. The rep said they did not use oats or rye in the candy products.

So unless it says on the package I believe you are safe...maybe you should check to see if you could have been contaminated any other way through products or foods etc.

skbird Contributor

We were at the Grocery Outlet (it's a store) the other day and they had a Snickers Fun Pack, that had about 6 different kinds of candy bar that company makes, including Milky Way Dark. I was tempted to try one of those, I don't usually eat sugar these days but have read the Milky Way Dark is gluten-free. The label on the bag though didn't break down ingredients for all the kinds of bars, just lumped them all in one list, and barley malt was one of the ingredients.

I know there wasn't a Milky Way regular (which has gluten) and all the other ones I'd seen on gluten-free lists so I was surprised, but wondered if it was a mini-bar thing?

Weird that in Canada Snickers Fun Size has gluten but full size does not.

Anyway, hope you figure it out.

STephanie


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest BERNESES

I've been eating the mini Snickers and not having a problem (USA). And as I just found out, I am sensitive down to 31 parts per million. I got glutened by an Amy's Kitchen Shepherd's Pie (gluten-free) and they sent it to the University of Nebraska for testing and that was the amount of gluten it contained. But.... could you be having a problem with lactose or eggs? I would call the company and let them know you suspect a reaction. Maybe there has been some sort of cross-contamination problem at the plant? Boo-hoo is right- Snickers rock!

lovegrov Collaborator

In the U.S. the mini Snickers ARE gluten-free.

richard

Bette Explorer

<_< Thanks for all the replies everybody. I kinda think Stephanie is onto something

We were at the Grocery Outlet (it's a store) the other day and they had a Snickers Fun Pack, that had about 6 different kinds of candy bar that company makes, including Milky Way Dark
.

I checked out mmmars.com and they do have 2 other candy bars Snickers Krispies and another type (can't remember what it was-it is on their website) that do have gluten in them from barley malt. So I emailed and asked if cross contamination can be an issue (are all these products made in the same facility) and could there be a problem with the multi packs, where the fun size Snicker bars are mixed with the other candy bars that have gluten in them.

I will post the response when I get it. Not everybody has an issue being so sensitive to cross contamination but I am one of the unlucky ones, and it seems to get worse the longer I am gluten free. :angry:

Berneses - Sorry to hear about you being Glutened by Amy's Kitchen Shepherds Pie. Haven't tried that one, just her Mac -n-Cheese, (which I always have stocked for those I don't feel like cooking nights). That is amazing they are testing their food now. I sure wish we had a way to check it out for ourselfs. (Oh great, now I am advocating we all become chemist-to try and figure out what we are eating!)

jrom987 Apprentice
I am sensitive down to 31 parts per million. I got glutened by an Amy's Kitchen Shepherd's Pie (gluten-free) and they sent it to the University of Nebraska for testing and that was the amount of gluten it contained.

<{POST_SNAPBACK}>

I am new to this and was wondering 1) how did you find out that you are sensitive down to 31 parts? and 2) who sent it the University of Nebraska for testing? I eat Amy's stuff all the time and have not had any problems with it that I have noticed so I am very curious.

Thanks!

Jo Ann

Guest BERNESES

Hi JoAnn- Welcome! I ate an Amy's Gluten Free/Dairy Free Shepherd's Pie and within two hours was very sick. So, I thought "What the heck? I'll call Amy's" (there's a whole other thread about this called "Mysteriouly glutened by Amy's Kitchen?") So, I called and told them what had happened and they sent two different products that I had reacted to from the same batch to the U of Nebraska (where they routinely send samples for testing) and the results came back that the Shepherd's Pie did have gluten in it- 31 parts per million (U of N can paarently test down to 10 parts per million).

Some of Amy's products copntain the warning that even though they are gluten-free, they ARE processed in a plant that also processes wheat. However, after talking with the rep, she said that they sanitize and test their own equipment regularly BUT they just started getting some ingredients from a new supplier who also processes wheat in their factory so they are going to check with that supplier.

Unfortunately, it seems for me, cross-contamination is a BIG problem.

Bette- I have long thought about how great it would be if you could just stick a little thing in your food to test it before you eat it! How great would that be? A little gluten-o-meter that you could just carry around with you. There's gotta be a way someone can make one. Maybe I'll stop my doctorate in education and become a mad scientist!

eeyor-fan Contributor
Okay I am trying to figure out why I am reacting to a Snickers bar, that I snuck out of my daughters candy last night. I had 2 of the minatures, plain (not the one with the crispies). That's it , I swear :huh: , I am having a definate gluten reaction starting with the big D, this morning, stomach cramping, nauseus, brain fog, and very thirsty.

Has anybody else had a problem with the Snickers bar?

<{POST_SNAPBACK}>

I'm glad I'm not the only one who made a Boo Boo at Halloween. My tummy is still sore. On the gluten list it had Newman's Own Organic :( dark chocolate sweet bars...believe me, the list was wrong and I should not have trusted it so much because when I went back and read the ingediance...for sur there was gluten in it. I'm a moron! :huh:

jrom987 Apprentice
Hi JoAnn- Welcome! I ate an Amy's Gluten Free/Dairy Free Shepherd's Pie and within two hours was very sick. So, I thought "What the heck? I'll call Amy's" (there's a whole other thread about this called "Mysteriouly glutened by Amy's Kitchen?") So, I called and told them what had happened and they sent two different products that I had reacted to from the same batch to the U of Nebraska (where they routinely send samples for testing) and the results came back that the Shepherd's Pie did have gluten in it- 31 parts per million (U of N can paarently test down to 10 parts per million).

Some of Amy's products copntain the warning that even though they are gluten-free, they ARE processed in a plant that also processes wheat. However, after talking with the rep, she said that they sanitize and test their own equipment regularly BUT they just started getting some ingredients from a new supplier who also processes wheat in their factory so they are going to check with that supplier.

Unfortunately, it seems for me, cross-contamination is a BIG problem.

Bette- I have long thought about how great it would be if you could just stick a little thing in your food to test it before you eat it! How great would that be? A little  gluten-o-meter that you could just carry around with you. There's gotta be a way someone can make one. Maybe I'll stop my doctorate in education and become a mad scientist!

<{POST_SNAPBACK}>

I found on a cool website:

"Have you ever used a Gluten Home Test Kit?

I was over the moon when I discovered I could buy a gluten home test kit from Tepnel. On my travels, I had frequently been made ill by products marked 'gluten free' and desperately needed some way to test them.

It was slightly less exciting to find out that the test kit costs over £30 and could only be used 5 times. It only tested for >200ppm (200 parts per million), which is too high for my sensitivity.

I got a kit and tried it out, but the LCD screen was difficult to read and I couldn't really place any confidence in the results I got, so it was back to avoiding anything that wasn't made by Orgran, whose food I have never had problems with.

This was a couple of years ago, and I have just been back to look at the details of the Tepnel Home Gluten Test Kit (links to a pdf document).

It looks as if the test kit has changed, and now comes with a high sensitivity 16 ppm, as well as one for higher levels of 160ppm. This sounds much better, and I think I'll order one to try it out."

Interesting, huh? I am going to look further into this but thought someone else might be as interested as I am!

Jo Ann

KaitiUSA Enthusiast
I'm glad I'm not the only one who made a Boo Boo at Halloween. My tummy is still sore. On the gluten list it had Newman's Own Organic :(  dark chocolate sweet bars...believe me, the list was wrong and I should not have trusted it so much because when I went back and read the ingediance...for sur there was gluten in it. I'm a moron! :huh:

<{POST_SNAPBACK}>

Lists are good for guidelines but I have definitely learned to always check the ingredients no matter what.

Canadian Karen Community Regular

I also got sick when I tried Amy's Shepherd's pie once. Never tried it again. I must also be that sensitive......

Karen

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Seeking advice on potential gluten challenge

    2. - JudyLou posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Seeking advice on potential gluten challenge

    3. - marzian commented on Scott Adams's article in Diagnosis, Testing & Treatment
      5

      A Future Beyond the Gluten-Free Diet? Scientists Test a New Cell Therapy for Celiac Disease (+Video)

    4. - Jmartes71 posted a topic in Related Issues & Disorders
      0

      Medications

    5. - Scott Adams replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Blood Test for Celiac wheat type matters?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,141
    • Most Online (within 30 mins)
      7,748

    islaPorty
    Newest Member
    islaPorty
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Welcome to the celiac.com community, @JudyLou! There are a couple of things you might consider to help you in your decision that would not require you to do a gluten challenge. The first, that is if you have not had this test run already, is to request a "total IGA" test to be run. One of the reasons that celiac blood antibody tests can be negative, apart from not having celiac disease, that is, is because of IGA deficiency. If a person is IGA deficient, they will not respond accurately to the celiac disease blood antibody tests (such as the commonly run TTG-IGA). The total IGA test is designed to check for IGA deficiency. The total IGA test is not a celiac antibody test so I wouldn't think that a gluten challenge is necessary. The second is to have genetic testing done to determine if you have the genetic potential to develop celiac disease. About 30-40% of  the general population have the genetic potential but only about 1% actually develop celiac disease. So, genetic testing cannot be used to diagnose celiac disease but it can be used to rule it out. Those who don't have the genetic potential but still have reaction to gluten would not be diagnosed with celiac disease but with NCGS (Non Celiac Gluten Sensitivity).  Another possibility is that you do have celiac disease but are in remission. We do see this but often it doesn't last.
    • JudyLou
      Hi there, I’m debating whether to consider a gluten challenge and I’m hoping someone here can help with that decision (so far, none of the doctors have been helpful). I have a history of breaking out in a horrible, burning/itchy somewhat blistering rash about every 8 years. This started when I was in my early 30’s and at that point it started at the ankles and went about to my knees. Every time I had the rash it would cover more of my body, so my arms and part of my torso were impacted as well, and it was always symmetrical. First I was told it was an allergic reaction to a bug bite. Next I was told it was eczema (after a biopsy of the lesion - not the skin near the lesion) and given a steroid injection (didn’t help). I took myself off of gluten about 3 weeks before seeing an allergist, just to see if it would help (it didn’t in that time period). He thought the rash looked like dermatitis herpetiformis and told me to eat some bread the night before my blood tests, which I did, and the tests came back negative. I’ve since learned from this forum that I needed to be eating gluten daily for at least a month in order to get an accurate test result. I’m grateful to the allergist as he found that 5 mg of doxepin daily will eliminate the rash within about 10 days (previously it lasted for months whether I was eating gluten or not). I have been gluten free for about 25 years as a precaution and recommendation from my doctor, and the pattern of breaking out every 8 years or so remains the same except once I broke out after just one year (was not glutened as far as I know), and now it’s been over 9 years. What’s confusing to me, is that there have been 3 times in the past 2 years when I’ve accidentally eaten gluten, and I haven’t had any reaction at all. Once someone made pancakes (they said they were gluten-free, they were not) and I ate several. I need to decide whether to do a gluten challenge and get another blood test. If I do, are these tests really accurate? I’m also concerned that I could damage my gut in that process if I do have celiac disease. My brother and cousin both had lymphoma so that’s a concern regarding a challenge as well, though there is a lot of cancer in various forms in my family so there may be no gluten connection there. Sorry for the ramble, I’m just doubting the need to remain gluten free if I don’t have any reaction to eating it and haven’t had a positive test (other than testing positive for one of the genes, though it sounds like that’s pretty common). I’d appreciate any thoughts or advice! 
    • Jmartes71
      Hello, just popped in my head to ask this question about medications and celiac? I have always had refurse reaction to meds since I can remember  of what little meds my body is able to tolerate. I was taking gabapentin 300mg for a week,  in past I believe 150? Any ways it amps me up not able to sleep, though very tired.However I did notice it helped with my bloating sibo belly.I hate that my body is that sensitive and medical doesn't seem to take seriously. Im STILL healing with my skin, eye, and now ms or meningioma ( will know in April  which)and dealing with this limbo nightmare. I did write my name, address ect on the reclamation but im not tech savvy and not sure if went through properly. I called my city representative in Stanislaus County and asked if theres a physical paper i can sign for proclamation for celiac and she had no clue about what I was saying, so I just said I'll go back on website. 
    • Scott Adams
      I'm not saying that some celiacs won't need it, but it should be done under a doctor's supervision because it can cause lots of problems in some people.
    • Jmartes71
      I also noticed I get debilitating migraines when I smell gluten, wheat and its not taken seriously when it affects one in every way.Im still begging to properly be heard.I also noticed tolerance level is down the drain with age and life changes. I have been told by incompetent medical that im not celiac or that sensitive. Diagnosed in 1994 by gi biopsy gluten-free ever since along with other lovely food allergies. Prayers
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.