Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Ugh--doctors!

skyengabbie

By skyengabbie
in Doctors

Recommended Posts

skyengabbie Newbie
skyengabbie
Posted

Sorry to rant being so new to the board and all, but UGH!! I called my PCP yesterday morning to request some blood work and he has yet to call back :( I called again today and was told he would call back between 12-8 p.m. and I never recieved a call. Did any of you have a problem with your doctors and them not calling back?? I just feel especially anxious because I have an Infectious Disease Appt. for my 15 month old in a week and I would hate to put her through more unneccessary tests if at all possible:( Again sorry to rant, I am just frustrated <_< Thanks for listening

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


nettiebeads Apprentice
nettiebeads
Posted
Sorry to rant being so new to the board and all, but UGH!! I called my PCP yesterday morning to request some blood work and he has yet to call back :( I called again today and was told he would call back between 12-8 p.m. and I never recieved a call. Did any of you have a problem with your doctors and them not calling back?? I just feel especially anxious because I have an Infectious Disease Appt. for my 15 month old in a week and I would hate to put her through more unneccessary tests if at all possible:( Again sorry to rant, I am just frustrated <_< Thanks for listening

<{POST_SNAPBACK}>

Ranting is fine here, esp when it comes to the medical community. I'm sure on the average the medical community is caring and professional, it's just that this is a field where a slip up can be fatal!! It's frustrating I know. I guess call them back and ask why your messages aren't being written down and acted on. I've had to deal with insurances over the phone for years - You learn to keep a log on who you spoke with and when and what was said.

Rusla Enthusiast
Rusla
Posted
Sorry to rant being so new to the board and all, but UGH!! I called my PCP yesterday morning to request some blood work and he has yet to call back :( I called again today and was told he would call back between 12-8 p.m. and I never recieved a call. Did any of you have a problem with your doctors and them not calling back?? I just feel especially anxious because I have an Infectious Disease Appt. for my 15 month old in a week and I would hate to put her through more unneccessary tests if at all possible:( Again sorry to rant, I am just frustrated <_< Thanks for listening

<{POST_SNAPBACK}>

Oh believe me I have had problems with doctors. Do I tell you about the one who let me almost die from pernicious anemia because he was too lazy to do a blood test and tried to tell me I had the flu for a year or menopause and it was neighter. Or about the GI who only wanted to do a blood marrow test, wouldn't tell me anything and hated that I did research but had me black balled by all the GI's in the city before he moved to the US. About all the doctors who would only look at my TSH on my thyroid not the nodules or the 3.5 times more antibodies than what you should have for Hasimoto's. The fact none of them would do anything about either thing because they want them to get bigger instead of trying to shrink them. That they tell me now because now I have gone through menopause that it is all in my head and it is just menopause. Not one of these doctors would talk to me or return calls.

So, rant on.

Rusla

darlindeb25 Collaborator
darlindeb25
Posted

I ran into this problem 24 yrs ago when I was so sick and the doctor told me I had the flu. Well, I got pregnant and found out it was the birth control pills making me sick and that doctor told me that the pill is 99% safe and I just had to be the 1%! Of course then, doctors never looked for celiacs. Might I add that my daughter, that pregnancy, was born with a birth defect also and I am sure it was because of my celiacs. Keep on the doctors back--keep calling or find a new doctor. I just had an appt with a doctor I really liked and he still failed me. He did a blood test--said he would test for everything--he didnt test for the genes--he didnt have me fast--had a nurse call and tell me my cholesterol is too high, to watch my diet and come back for a repeat bloodwork up in 6 weeks. That wasnt a true test for chol without a fasting--I am very disappointed in him. I will return in 6 weeks and I will tell him what test I want ran. Doctors!!!!! And------I work for a doctor--he is an optomitrist, but when I tell a patient he will call back, he does. To bad he isnt a regular doctor--his patients love him. Deb

Rusla Enthusiast
Rusla
Posted
I ran into this problem 24 yrs ago when I was so sick and the doctor told me I had the flu.  Well, I got pregnant and found out it was the birth control pills making me sick and that doctor told me that the pill is 99% safe and I just had to be the 1%!  Of course then, doctors never looked for celiacs.  Might I add that my daughter, that pregnancy, was born with a birth defect also and I am sure it was because of my celiacs.  Keep on the doctors back--keep calling or find a new doctor.  I just had an appt with a doctor I really liked and he still failed me.  He did a blood test--said he would test for everything--he didnt test for the genes--he didnt have me fast--had a nurse call and tell me my cholesterol is too high, to watch my diet and come back for a repeat bloodwork up in 6 weeks.  That wasnt a true test for chol without a fasting--I am very disappointed in him.  I will return in 6 weeks and I will tell him what test I want ran.  Doctors!!!!!    And------I work for a doctor--he is an optomitrist, but when I tell a patient he will call back, he does.  To bad he isnt a regular doctor--his patients love him.  Deb

<{POST_SNAPBACK}>

The unfortunate part is that this doctor dilema seems to be universal in North America. My family doctor is Hindu, he was the one to discover my pernicious anemia when lazy bugger went on holidays. I got my celiac disease test results back which they said they consider non celiac disease but very high gluten sensitivity. My doctor who is not fond of many doctors because he said they never look at the big picture has recomended I go gluten-free for three months and then he wants me to go back on gluten for 3 days and take the test again. He was the only one who never doubted me on the thyroid when the others said it was in my mind and wouldn't even see me when the nodules had appeared they declared they were too busy or didn't see "this type of patient." I wanted to know what type of patient was I, seeing as how they hadn't seen me and did not know me. I go to my family doctor and tell him what kind of tests we should do and he does them. I am so pissed off at specialists and their arrogant ways, they make me ill. I figure maybe I should start goingto a veterinarian.

Rusla

debbiewil Rookie
debbiewil
Posted

Rusla,

I agree with you about the veterinarian! :) My cats go to a clinic with multiple doctors - not one has ever not taken the time to do a thorough evaluation, explain to me any problems, medicine, possible side effects of medicine, etc. I don't get one tenth of the attention from my doctors that my cats get at the vets. I've told a couple of the vets that if they ever start treating the human animal, I'm their first patient!

Debbie

skyengabbie Newbie
skyengabbie
Posted
  • Author

Thanks for listening, I am sorry to hear that many of you have had such bad experiences, I wish it were different in the medical community :( I went ahead and called this morning and the nurse called me back within 20 minutes, apparently the doctor put in the order on Tuesday and the nurse was supposed to call and advise me that I could go in and get my blood drawn-UHG!! Oh well, I went in today and had blood work done and am hoping to know the results within 2 days!! I asked what tests the doctor orderd and she said a Celiac Panel ( not sure what that all includes???) But am hoping it will provide some much needed answers for me and then for my daughter.

Thanks again for listening :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


floridanative Community Regular
floridanative
Posted

[i asked what tests the doctor orderd and she said a Celiac Panel ( not sure what that all includes???) But am hoping it will provide some much needed answers for me and then for my daughter.

Thanks again for listening :)

<{POST_SNAPBACK}>

Rusla Enthusiast
Rusla
Posted
Rusla,

I agree with you about the veterinarian! :) My cats go to a clinic with multiple doctors - not one has ever not taken the time to do a thorough evaluation, explain to me any problems, medicine, possible side effects of medicine, etc. I don't get one tenth of the attention from my doctors that my cats get at the vets. I've told a couple of the vets that if they ever start treating the human animal, I'm their first patient!

Debbie

<{POST_SNAPBACK}>

I told my vets the same thing but I made a stipulation, they may not take my temperature the way they take the cats.

Rusla Enthusiast
Rusla
Posted
Thanks for listening, I am sorry to hear that many of you have had such bad experiences, I wish it were different in the medical community :( I went ahead and called this morning and the nurse called me back within 20 minutes, apparently the doctor put in the order on Tuesday and the nurse was supposed to call and advise me that I could go in and get my blood drawn-UHG!! Oh well, I went in today and had blood work done and am hoping to know the results within 2 days!! I asked what tests the doctor orderd and she said a Celiac Panel ( not sure what that all includes???) But am hoping it will provide some much needed answers for me and then for my daughter.

Thanks again for listening :)

<{POST_SNAPBACK}>

Best of luck. In some way it is a let down being told you are high gluten but not celieac but retest in three months, which I was told today. I feared I did not have enough gluten in my ssystem when the test was done. I am going gluten-free after this weekend. I have events I have to be at this weekend and it is too late to get the menu changed. So I will live with it this weekend and then I will quit gluten until it is time to test again.

We can all understand your frustration with the medical profession.

  • 2 weeks later...
floridanative Community Regular
floridanative
Posted

Well all I ever do when commenting on doctors is complain because I usually don't have anything nice to say about my experiences with them. With my first and former GI doc, I had to leave a message with his nurse if I had a question and I only did so twice in two months. Well she took 3 and 6 week days to get back to me respectively. She was also the rudest person I've run into in the medical profession. Okay that's negative - I apologize.

So when I switched to another practice this week, my doctors nurse was out sick so someone else was filling in. She was SOOOO nice that I was disappointed when she told me that the reg. nurse was out. Well I don't think much of the doc but he knows how to test for celiac disease which is what I need. So I called today to see when my celiac disease panel blood tests results will be in. Within TWO hours, I got a call from the reg. nurse (that I didn't meet) and she said she'd have them Monday or Tues. at the latest. She even told me to call back Monday so she'd remember to check for them for me. Now that's not normal to me but it should be. I was so happy just by someone calling me back on the same day! :rolleyes:

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Sarah Grace's topic in Related Issues & Disorders
      21

      Headaches / Migraines and Hypoglycaemia

      @Sarah Grace, Thank you for the update! It's so good to hear from you! I'm glad Thiamine, B Complex and magnesium have helped you. Yes, it's important to take all three together. I had to quit eating cheese and nuts a long time ago because they triggered migraines in me, too. They are high in tyrosine, an amino acid, found also in fermented...
    2. Jmartes71
      - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      Related issues

      Its been a complete nightmare dealing with all these health issues one thing after another and being told many different things.I am looking for a new primary care physician considering when I told my past doctor of 25 years I was diagnosed before any foods eliminated from my diet and now this year at age 54 no longer able to push considering Im always exhausted...
    3. trents
      - trents replied to Sarah Grace's topic in Related Issues & Disorders
      21

      Headaches / Migraines and Hypoglycaemia

      My migraines generally have their onset during the early morning hours as well. Presently, I am under siege with them, having headaches all but two days so far this month. I have looked at all the things reported to be common triggers (foods, sleep patterns, weather patterns, stress, etc.). Every time I think I start to see a pattern it proves not to pan...
    4. Scott Adams
      - Scott Adams replied to jessicafreya's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Tamale ingredients

      These are labeled gluten-free: https://www.amazon.com/Corn-Husks-Tamales-Authentic-Flavorful/dp/B01MDSHUTM/
    5. Wheatwacked
      - Wheatwacked replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      GI DX celiac despite neg serology and no biopsy

      Just a gluten free diet is not enough. Now you have to identify and replenish your malnutrition. Celiac disease is co-morbid with malabsorption syndrome. Low vitamin D, Low Thiamine caused Gastointeston Beriberi, low choline, low iodine are common the general population, and in newly diagnosed Celiacs in the western culture its is more likely. It takes...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,144
    • Most Online (within 30 mins)
      7,748
    Jenny0384
    Newest Member
    Jenny0384
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      Headaches / Migraines and Hypoglycaemia

      By knitty kitty · Posted

      @Sarah Grace,  Thank you for the update!  It's so good to hear from you!  I'm glad Thiamine, B Complex and magnesium have helped you.  Yes, it's important to take all three together.    I had to quit eating cheese and nuts a long time ago because they triggered migraines in me, too.  They are high in tyrosine, an amino acid, found also in fermented foods like sauerkraut and red wine.   I found taking Tryptophan very helpful with migraines.  Tryptophan is a precursor of serotonin and people with migraines are often low in serotonin.  (Don't take tryptophan if you're taking an SSRI.)     This recent study shows tryptophan really helps. The association between dietary tryptophan intake and migraine https://pubmed.ncbi.nlm.nih.gov/31254181/   For immediate respite from a migraine, try smiling REALLY BIG, mouth closed, tongue pressed against roof of mouth, and crinkle up your eyes like you just heard or saw the funniest thing...  This causes an endorphin release in the brain.  Usually it's the funny event, then the endorphin release and then the smile.  Smiling first makes the endorphin center think it missed something and it catches up quickly by releasing endorphins after the big crinkle eyed smile.  Must make crinkly eyes with smile or it won't work.  If you do this too frequently within a short time frame (several hours), you can deplete your endorphins, but you'll make more in a couple of hours, so no worries. Get your thyroid checked, too.  Migraines are also seen in low thyroid function (Hashimoto's or hypothyroidism).  Celiac and thyroid problems go hand in hand.   Vitamin D helps, too.  Low Vitamin D is found in migraine.   I'm so glad you're doing better.  
    • Jmartes71
      Related issues

      By Jmartes71 · Posted

      Its been a complete nightmare dealing with all these health issues one thing after another and being told many different things.I am looking for a new primary care physician considering when I told my past doctor of 25 years I was diagnosed before any foods eliminated from my diet and now this year at age 54 no longer able to push considering Im always exhausted, leg pain , stomach,skin and eye issues,high blood pressure to name a few all worsen because I was a  school bus driver and few years until my immune system went to hell and was fired because of it.Im still struggling now, Im sibo positive and been told im not celiac and that I am.I have a hernia and dealing with menopause. Its exhausting and is causing depression because of non medical help. Today I saw another gastrointestinalist and he said everything im feeling doesn't add up to celiac disease since my ITg levels are normal so celiac disease is under control and it's something else. I for got I had Barrett's esophagus diagnosed in 2007 because recent doctors down played it just like my celiac disease. Im currently looking for a pcp in my area because it is affecting me personally and professionally. Im told since celiac looks under control it's IBS and I need to see a therapist to control it. Gastrointestinalist around here think only food consumption and if ITG looks normal its bit celiac disease it's something else. Is this right? This is what im being told. I want medical help but told its IBS.Im feel lost by " medical team "
    • trents
      Headaches / Migraines and Hypoglycaemia

      By trents · Posted

      My migraines generally have their onset during the early morning hours as well. Presently, I am under siege with them, having headaches all but two days so far this month. I have looked at all the things reported to be common triggers (foods, sleep patterns, weather patterns, stress, etc.). Every time I think I start to see a pattern it proves not to pan out in the long run. I'm not sure it's any one thing but may, instead, be a combination of things that coalesce at certain times. It's very frustrating. The medication (sumatriptan or "Imatrix") is effective and is the only thing that will quell the pain. NSAIDs, Tylenol, even hydrocodone doesn't touch it. But they only give you 9 does of sumatriptan a month. And it doesn't help that medical science doesn't really know what causes migraines. They know some things about it but the root cause is still a mystery.
    • Scott Adams
      Tamale ingredients

      By Scott Adams · Posted

      These are labeled gluten-free: https://www.amazon.com/Corn-Husks-Tamales-Authentic-Flavorful/dp/B01MDSHUTM/
    • Wheatwacked
      GI DX celiac despite neg serology and no biopsy

      By Wheatwacked · Posted

      Just a gluten free diet is not enough.  Now you have to identify and replenish your malnutrition.  Celiac disease is co-morbid with malabsorption syndrome.  Low vitamin D, Low Thiamine caused Gastointeston Beriberi, low choline, low iodine are common the general population, and in newly diagnosed Celiacs in the western culture its is more likely.  It takes time to heal and you need to focus on vitamins and minerals.  Gluten free foods are not fortified like regular processed foods.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.