Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Vitamin Levels Ok, Still Exhausted, More Testing

CajunChic

Recommended Posts

CajunChic Explorer
CajunChic
Posted

I've recently had my vitamin levels and thyroid levels checked because of exhaustion. My dr called me to tell me all of my levels were normal and she wants me to follow up with an ENT. (I had an enlarged lymph node.) Saw him and he said my sinuses could be causing me to be tired. Now he wants to do a CT scan, antibiotics after if infection is found, then balloons in my sinuses to increase oxygen flow.

Maybe I spent so much time getting a celiac dx that I'm not wanting to follow through with all of this sinus stuff.

Could this constant sinus pressure be food derived? Should I go through with more testing, more trial and error? Is exhaustion just part of celiac? I've read many stories of people healing their sinuses with their diet, but don't know where to start or if I should.

I'm overwhelmed.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


NatureChick Rookie
NatureChick
Posted

I had sinus issues, but they cleared up quickly after going gluten-free so I don't know what to tell you. But I'd definitely get a second opinion before getting balloons put in. I'd also try a different type of doctor who might consider other possibilities.

HavaneseMom Explorer
HavaneseMom
Posted

Hi CajunChic,

I have sinus pain and pressure too. Have you tried eliminating dairy? I do notice that I have increased pain/pressure when I eat dairy and I recently learned that it is a known offender for causing some people sinus problems. If you call your ENT, they might have a diet they would recommend that you try. It might be worth a phone call to find out what they say and if they think it could work in your case. I think alot of doctors assume that patients aren't willing to try self help approaches, so those options go unmentioned.

Another thing that I have tried and liked was a Neti Pot. If you haven't tried it before, there are some YouTube videos showing how to use it properly. I'm not going to lie, it does feel a little strange at first, but it does temporarily relieve some pressure.

I do think that the exhaustion hangs on for a while for some of us. I'm not sure how long you have been gluten free, but I have been for 8+months now and am still pretty tired most of the time. Hang in there and I hope you feel better soon.

flowerqueen Community Regular
flowerqueen
Posted

Giving up dairy products can help with sinus problems. I have been plagued with sinus problems almost all my life. When I was diagnosed with Coeliacs disease a few years ago, I had already given up dairy as I was unable to tolerate it and noticed my sinus problems improved.

Other people I know have also given up diary to improve sinus issues. There's only one way for you to find out and that is to try it and see, as nothing works for everyone.

CajunChic Explorer
CajunChic
Posted
  • Author

Thanks y'all. I've been gluten-free for 11 months, with a few hiccups in between. I eat dairy-light as it bothers me. I'll try giving it up completely and see if it helps. Also, thanks for the neti-pot advice. I looked it up and it seems it'll help! I'll def be getting one.

I also think I'll see an acupuncturist and chiropractor for a while. I think I'll give modern medicine a break for now. Thanks for y'all's input!

NatureChick Rookie
NatureChick
Posted

I did have another thought though it is not something I know much about. I know at least one of my real-life gluten-free friends claims to have adrenal insufficiency that was caused by celiac and have seen others comment about it on the forum as well. And I know there are tests for it. I don't know enough to know if it can cause exhaustion though I'm sure you can look it up online.

CajunChic Explorer
CajunChic
Posted
  • Author

I did have another thought though it is not something I know much about. I know at least one of my real-life gluten-free friends claims to have adrenal insufficiency that was caused by celiac and have seen others comment about it on the forum as well. And I know there are tests for it. I don't know enough to know if it can cause exhaustion though I'm sure you can look it up online.

Thank you, I've heard of it but don't know much about it. I'll look it up.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


frieze Community Regular
frieze
Posted

get your lab work from the doc, "normal" doesn't mean "optimal".

CajunChic Explorer
CajunChic
Posted
  • Author

get your lab work from the doc, "normal" doesn't mean "optimal".

True Frieze. I definitely will do that and check to see if they're a low normal. Thanks for the reminder!

millerb68 Newbie
millerb68
Posted

Just because you tested normal for thyroid doesn't mean all things are normal. My thyroid levels were "normal" also, but my doctor diagnosed "subclinical hypothyroid" (yet another autoimmune disease) based on some other markers that she explained, but were rather complicated.  I'd never heard of it, but it's real: (Open Original Shared Link Open Original Shared Link now taking T4/T3. 

 

As for sinuses, food allergies can contribute to sinus pain and pressure, as well as dehydration. My migraines almost always start in my sinuses. 

 

I had sinus surgery in 1992. Although I'm sure it has improved since then, it was not pleasant, and didn't take care of the whole problem. 

 

Good luck.

nvsmom Community Regular
nvsmom
Posted

Like the last couple of posters, I was a "normal" thyroid tester for years but it really was hypothyroidism - they just looked at the wrong things.  Definitely get your lab reports.

 

I have found that generally thyroiditis patients feel their best when the TSH is near a 1, free T4 and free T3 are in the 50-75% range of your lab's normal reference range, and TPO Ab should be pretty low. That's not true for everyone, but it is for many - and it was for me.

 

Good luck. I hope you find your answers soon!

CajunChic Explorer
CajunChic
Posted
  • Author

It's been a while, but I got my results from my vitamin test. Though the dr said normal, they were a low normal. my vit D was 39 (range 30-100 norm) and my calcium was an 88.8 (88-90-something norm). I don't want to supplement because I'm scared of overdosing, so I'll add more to my diet. Hopefully I'll be feeling much better! My TSH was really normal(2), lol. So good news there.

I'll continue to find a dietary cause for my sinuses before any medical intervention.

As always, thank y'all for the advice!

HavaneseMom Explorer
HavaneseMom
Posted

Hi CajunChic,

I'm glad you came back to follow up. I know we talked about dairy earlier and I just wanted to let you know that I myself have been off of dairy for 10 days in an attempt to try to relieve sinus pain/pressure/headaches. They have all lessened a bit already and I have had a rather annoying buzzing noise in my left ear for years that is now down to whisper. My doctor always told me that buzzing noise was caused by congestion. It's not easy to give up my beloved cheese and dairy, but I just wanted to let you know that I have seen some improvement and hopefully you will too :-) .

NatureChick Rookie
NatureChick
Posted

CahunChic. I totally agree on skipping supplements for vitamin D because they tend to do very little compared to the side effects or damage they can cause. 

Sun is really the best way to get D levels back up again. One tip for that. The "good" rays from the sun do get blocked by our atmosphere so you get the most of them if you expose your skin at high noon, when the sun has to penetrate the least amount of atmosphere to get to us. The "bad" rays don't get blocked so they hit us all day long. 

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Me,Sue
      - Me,Sue posted a topic in Introduce Yourself / Share Stuff
      0

      Knowing what to do when feeling unwell.

      I was diagnosed with coeliac disease a couple of years ago [ish]. I love my food and a variety of food, so it's been hard, as it is with everyone. I try and ensure everything I eat doesn't contain gluten, but occasionally I think something must have got through that has gluten in. Mainly I know because I have to dash to the loo, but recently I have noticed...
    2. Francis M
      - Francis M replied to Francis M's topic in Gluten-Free Restaurants
      8

      The Happy Tart review

      Thanks. Since the back and forth and promises of review and general stalling went on for more than six months, the credit company will no longer investigate. They have a cutoff of maybe six months.
    3. Scott Adams
      - Scott Adams replied to Francis M's topic in Gluten-Free Restaurants
      8

      The Happy Tart review

      Is this the same restaurant? https://www.facebook.com/TheHappyTartFallsChurch/ Is it too late to take this up with your credit card company? Normally you have a few months to do a chargeback with them. It seems very odd that they are taking this approach with someone who is likely to be a regular customer--not a good business-minded way of handling...
    4. Scott Adams
      - Scott Adams replied to Colleen H's topic in Related Issues & Disorders
      3

      Stomach burning and neuropathy

      Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The...
    5. Scott Adams
      - Scott Adams replied to Me,Sue's topic in Related Issues & Disorders
      2

      Nausea

      Welcome to the forum. Is the nausea associated with eating certain foods, or anything else in particular? Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,852
    • Most Online (within 30 mins)
      7,748
    LG2
    Newest Member
    LG2
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Me,Sue
      Knowing what to do when feeling unwell.

      By Me,Sue · Posted

      I was diagnosed with coeliac disease a couple of years ago [ish]. I love my food and a variety of food, so it's been hard, as it is with everyone. I try and ensure everything I eat doesn't contain gluten, but occasionally I think something must have got through that has gluten in. Mainly I know because I have to dash to the loo, but recently I have noticed that I feel nauseous after possibly being glutened. I think the thing that I have got better at is knowing what to do when I feel wiped out after a gluten 'episode'. I drink loads of water, and have just started drinking peppermint tea. I also have rehydration powders to drink. I don't feel like eating much, but eventually feel like I need to eat. Gluten free flapjacks, or gluten free cereal, or a small gluten free kids meal are my go to. I am retired, so luckily I can rest, sometimes even going to bed when nothing else works. So I feel that I am getting better at knowing how to try and get back on track. I am also trying to stick to a simpler menu and eat mostly at home so that I can be more confident about what I am eating. THANKS TO THOSE WHO REPLIED ABOUT THE NAUSEA .
    • Francis M
      The Happy Tart review

      By Francis M · Posted

      Thanks. Since the back and forth and promises of review and general stalling went on for more than six months, the credit company will no longer investigate. They have a cutoff of maybe six months.
    • Scott Adams
      The Happy Tart review

      By Scott Adams · Posted

      Is this the same restaurant? https://www.facebook.com/TheHappyTartFallsChurch/ Is it too late to take this up with your credit card company? Normally you have a few months to do a chargeback with them. It seems very odd that they are taking this approach with someone who is likely to be a regular customer--not a good business-minded way of handling things!
    • Scott Adams
      Stomach burning and neuropathy

      By Scott Adams · Posted

      Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.        
    • Scott Adams
      Nausea

      By Scott Adams · Posted

      Welcome to the forum. Is the nausea associated with eating certain foods, or anything else in particular?  Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.