Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Blood Testing

AJO21

Recommended Posts

nora-n Rookie
nora-n
Posted

IgG type antibodies take a long time to go away, and can take a year or so to go down to below the range after going gluten free

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


nora-n Rookie
nora-n
Posted

How high/low is your total IgA? 

We have seen that some have lowish IgA and it is reported as normal.

AJO21 Newbie
AJO21
Posted
  • Author

Biopsies from endoscopy/colonoscopy all came back negative, just some mild gastritis, so now what? He said to stick with the gluten free dairy free diet, which I have been doing for a week now and my headaches have gone away, but none of my other symptoms have improved at all. So now I don't know what to do from here. Everything was negative so if its not celiac and its caused by gluten shouldn't I be feeling better by now? If anyone could help me out here that would be great because now I have no idea what the cause could be and my doctor didn't say anything other than to follow Gluten free  while longer and follow up at an appointment in 2 months. Sorry for rambling I am just a little frustrated now, thinking that I would have at least had an answer after a the colonoscopy/endoscopy. Thanks for listening again.

LauraTX Rising Star
LauraTX
Posted

If you feel better on a gluten-free/DF diet, then it is a good idea to stay on it for the 2 month trial period until you see your doctor again.  Did you get the results of your bloodwork?

AJO21 Newbie
AJO21
Posted
  • Author

I have not really felt better on the diet, although its only been a week, I've actually been a little worse in terms of GI symptoms but my headaches have gone away, that's the only improvement so far. And the only blood work that I have had done is the initial blood work where my IgA serum was very low/deficient and my IgG was positive.  

cyclinglady Grand Master
cyclinglady
Posted

I did not feel even a little bit better until I was six weeks into the diet. I felt normal closer to a year. Everyone is different. What I am trying to say is that you need to be patient and I know that is difficult. Also, consider eliminating dairy. That might help too,

In any case, you really need to stick it out at least until your next doctor's visit. This is just another "test" that your doctor is putting you through.

Watch for cross contamination and check all labels for hidden gluten.

AJO21 Newbie
AJO21
Posted
  • Author

Yeah I will definitely give it some more time, thanks for the advice. I just figured that because the endoscopy was negative that things would improve quickly if it was only an intolerance to gluten as the test ruled out celiac. And I have also eliminated dairy. I have been lactose intolerant for years but have become significantly more sensitive to all forms of dairy in the past year.  

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,114
    • Most Online (within 30 mins)
      7,748
    Cheryl Elliott
    Newest Member
    Cheryl Elliott
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      GI DX celiac despite neg serology and no biopsy

      By trents · Posted

      If you were off gluten for two months that would have been long enough to invalidate the celiac blood antibody testing. Many people make the same mistake. They experiment with the gluten free diet before seeking formal testing. Once you remove gluten from the diet the antibodies stop being produced and those that are already in circulation begin to be removed and often drop below detectable levels. To pursue valid testing for celiac disease you would need to resume gluten consumption equivalent to the amount found in 4-6 slices of wheat bread daily for at least two weeks, preferably longer. These are the most recent guidelines for the "gluten challenge". Without formal testing there is no way to distinguish between celiac disease and gluten sensitivity since their symptoms overlap. However, celiac disease is an autoimmune disorder that damages the small bowel lining, not true of gluten sensitivity. There is no test available for gluten sensitivity so celiac disease must first be ruled out. By the way, elevated liver enzymes was what led to my celiac diagnosis almost 25 years ago.
    • trents
      High DGP-A with normal IGA

      By trents · Posted

      Then it does not seem to me that a gluten-related disorder is at the heart of your problems, unless that is, you have refractory celiac disease. But you did not answer my question about how long you had been eating gluten free before you had the blood antibody test for celiac disease done.
    • Xravith
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By Xravith · Posted

      My genetic test results have arrived - I’m homozygous for DQB1*02, meaning I have HLA-DQ2. I’ve read that this is one of the genes most strongly associated with celiac disease, and my symptoms are very clear. I’m relieved that the results finally arrived, as I was getting quite worried since my symptoms have been getting worse. Next step, blood test. What do these results imply? What should I tell my family? I’m concerned that this genetic predisposition might also affect other family members.
    • Roses8721
      GI DX celiac despite neg serology and no biopsy

      By Roses8721 · Posted

      Two months. In extreme situations like this where it’s clearly a smoking gun? I’m in LA so went to a very big hospital for pcp and gi and nutritionist 
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      So far 3 months in - worsening symptoms. I have had the worst constipation in my life and I am primarily eating naturally gluten-free foods like potatoes, eggs, salad with homemade dressing, corn tortillas, etc. I hate gluten-free bread and pasta so I don't eat it. Occasionally I eat gluten-free almond flour crackers. As stated in the post, I don't have any vitamin deficiency. I was already tested.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.