Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Boston- Four Thumbs Up!


StephanieL

Recommended Posts

StephanieL Enthusiast

My son and I went to Boston a few weeks ago to see Dr. Fasano.  Aside from Celiac disease he also has life threatening allergies to peanuts, tree nuts, dairy and egg.   This was the first time flying for us and the first time being out of town without access to a kitchen for more than a day. 

 

We had an AWESOME time!!   I had some help (Thanks again Gemini!!!  My Boston personal trip planner ;)

 

We stayed at the Wyndham near Mass General.  There is a GIANT Whole Food right behind that you can get to through the back door of the hotel!!!  Awesome!

 

I shipped a Pantry box from the A place that is always bleeped out on here for spamming ;)

 

Eating out:  I will say that my kid doesn't eat out often. Our expectations are pretty simple, get my kid food he'll eat that is SAFE and we're both happy!  Simple whole foods with minimal processing is a-ok to us!

 

Ruth's Chris Steak House on School Street- Went for lunch. He had a roasted 1/2 chicken and steamed broccoli. He LOVED the crispy skin!!  (like i said, simple is great and no reaction is even BETTER!)

 

Legal Seafood- Long Wharf-  AMAZING!  I emailed them several weeks prior.  On a Friday night the manager called me and assured me they could 100% accommodate him, he entered the reservation himself and told me that he would make sure he was on duty when we came!  Can you say AWESOME!  I looked at the gluten-free menu and saw fries- I held my breath as I asked my allergy Mom questions.

 

DS had grilled shrimp, FRIES, corn on the cob and grapes.  He was in absolute HEAVEN!  He wolfed it down in no time at all!  I asked if he wanted anything else, more shrimp!  Now on the second order they brought it with some kind of sauce.  I sent it back and the manager assured be it was gluten free.  I said what about all the other allergens, they again assured me it was fine...... I wasn't willing to test it so I asked if I could kindly just have grilled shrimp again and they got it for us and again, DS had it eaten in a minute! He asked to go back the next day ;)

 

The Dean's List at the Wydham in Blossom St.- This was where we stayed.  When we were returning from a long day on the way to eat crackers and cereal in the room the chef was talking with someone so I figured what the heck, I'll ask.  He assured me he could make DS some chicken and broccoli (see a theme here?? lol  It's what he eats at home at least once a week so he was excited to be eating it out! lol).  We went upstairs and washed up and then came down for dinner.  He again ate everything and loved it!!! 

 

 

So being a first letting others cook for him several days in a row, they all hit it out of the ballpark!  He loved every minute of it and while I worried after each meal as I always do, we didn't have any issues!!!  We had an awesome trip and he's still talking about it!!

 

IMG_2442.webp

 

IMG_2441.webp

 

IMG_2498.webp


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GF Lover Rising Star

Awesome Stephanie.  Your son looks very happy. and the pic with Dr. Fasano, The Celiac God, is awesome.

 

Colleen

Gemini Experienced

This is so awesome, Stephanie!!!!!!!!!  I finally get to see what the little guy looks like and what great photos they are. The one with Fasano is great.....especially since I have seen the one of Fasano in his bathing suit from the Celiac Convention in Florida.  Thanks to Irishheart, that's the image that always comes to mind when I see a photo of our Celiac Doctor God.    :lol:   Ha, Ha!!!!!!

 

I am so very happy that everything worked out well with DS's food during your stay and if you guys come back, for any reason, I will come into town to meet up with you. You have to come back because I know DS wants to.  That's what happens when your kids start traveling.....they like it!  ;)  

StephanieL Enthusiast

OMG!  I am SO glad that you did not tell me that story before we saw him or I don't think I could have looked at him with a straight face! lol  Yeah, DS's been planning out our next trip since before we even left!  At one point he was planning on moving us all there!  He was just telling our sitter today about Legal Seafood and how it was the best part of the trip! lol  We'll let you know when we come back which would be tomorrow if it were up to him! lol

IrishHeart Veteran

I told you if you got him in to see  Dr. Fasano it would help!! whoohoo! I am so happy for you!!

 

And Boston is my hometown, so I am especially pleased for you. I knew Gem would help you out! She's my homie-sistah!! LOL

 

Good for you, Stephanie and good for your boy!

 

If you want to see the pic of me with Dr F (in his swim trunks,,,I can hook you up   :)  he's my hero, too. 

Truly, just the best man to have our collective celiac backs. 

 

I was so delighted to have a chance to meet him and talk with him for a while. And his presentation

was absolutely the high light of my trip to the conference. It's why I drove 4 miles round trip to see him. 

 

 

 

Open Original Shared Link

StephanieL Enthusiast

Well we still aren't getting anywhere yet... I am waiting (not so patiently ;) ) to hear back from them about our next steps but we shall see. 

 

As for the picture...NOOOOOOOOO!  We may have to go back and see him again! lol  Just out of curiosity though is it one of those "Hey looks who I took this sneaky shot of" picture or was it a posed picture? 

 

Edited: I just saw the link and the picture.  I was on my phone before and didn't see the link.  How funny!  He didn't seem shocked at all when I asked for a picture with him. He asked if I wanted to be in it! lol No thanks ;) lol

GottaSki Mentor

No, it is an excellent full shot of four beauties smiling poolside in Orlando (including IH)....I can post it if you'd like ;)

While I also love our Dr. F.....my favorite photo above is the pure joy on your son's face....aside from the medical aspects....this trip did so much to encourage both of you to travel....priceless!

Nicely done Gemini and Irish....don't forget that itinerary...my trip to Boston is still in the works...best guess today is November :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



StephanieL Enthusiast

Alright...now I want to see it!!! Post away!

 

This trip did SOOOOOO much for both of us.  It forced me WAY outside of my comfort zone but if I didn't have this push (even though it sucks that we are having these issues) I don't know that I ever would have made the leap!  You are so right about what it did for him!  I see stuff all the time about kids with allergies being scared to even eat at school.  Pushing the limits is making him see all he can do and THAT is what I want him to grow up knowing!

 

Now if he would just get back to me ;) lol He's only in the office on Thursdays so my fingers are crossed for tomorrow but I am not holding my breath! 

 

I think I could be persuaded to meet up with you fine ladies in Boston for a little ME time!  I loved it!  As a side note I took my Burberry purse there to be repaired and it came home to me today!  Perhaps I need to go back and buy the one I really wanted ;)

GottaSki Mentor

http://glutendude.com/wp-content/uploads/2014/04/rock-stars.webp

Gluten Dude, Jules Gluten Free, Dr. Fasano and our own IrishHeart :)

LauraTX Rising Star

The picture of you son in a state of absolute joy just made my day.  I am so happy you guys had a good experience!!!  I want to go meet gluten rock stars now!!! LOL

Gemini Experienced

No, it is an excellent full shot of four beauties smiling poolside in Orlando (including IH)....I can post it if you'd like ;)

While I also love our Dr. F.....my favorite photo above is the pure joy on your son's face....aside from the medical aspects....this trip did so much to encourage both of you to travel....priceless!

Nicely done Gemini and Irish....don't forget that itinerary...my trip to Boston is still in the works...best guess today is November :)

You're coming to Boston in November??????????  I hope so, for totally selfish reasons!  That would be great!  Stephanie and DS should come too.  And anyone else who wants to join in the fun.  I am keeping November wide open....... :D

IrishHeart Veteran

You're coming to Boston in November??????????  I hope so, for totally selfish reasons!  That would be great!  Stephanie and DS should come too.  And anyone else who wants to join in the fun.  I am keeping November wide open....... :D

 

 

ack! I can't go north in NOVEMBAH. fah cryin out loud!! ...I gots no boots, hat, scarf, mittens, coat ... :lol:

StephanieL Enthusiast

You're coming to Boston in November??????????  I hope so, for totally selfish reasons!  That would be great!  Stephanie and DS should come too.  And anyone else who wants to join in the fun.  I am keeping November wide open....... :D

 

I'll come up to supervise you ladies! God only knows what would happen if you came across Fasano in a dark restaurant! Or followed him to his car at the end of the work day! lol

 

ack! I can't go north in NOVEMBAH. fah cryin out loud!! ...I gots no boots, hat, scarf, mittens, coat ... :lol:

 

Oh come on!  I'm sure we can wrangle up a pair for you to borrow! lol

IrishHeart Veteran

I'll come up to supervise you ladies! God only knows what would happen if you came across Fasano in a dark restaurant! Or followed him to his car at the end of the work day! lol

 

 

 

 

 

I was alone with him in an elevator, too............ B) 

StephanieL Enthusiast

 

 

 

I was alone with him in an elevator, too............ B) 

 

You're starting to creep me out now!!! lol  snort!!!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,674
    • Most Online (within 30 mins)
      7,748

    Joann A
    Newest Member
    Joann A
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Beverage
      I strongly agree with others about processed gluten free foods, like breads and pasta, being bad for us. Read the labels, full of this starch and that starch, seed oils that are inflammatory, etc. Before you were celiac, you probably wouldn't even touch something with those ingredients. I do much better with whole foods, meat, veggies, a little fruit. I made 90% myself, make extra and freeze it for future meals. Cutting out processed gluten free food and eating mostly real whoke food helped me feel much better. And definitely benfotiamine!
    • knitty kitty
      Please be sure to try Benfotiamine or Thiamine Hydrochloride.  The form Thiamine Mononitrate is not absorbed nor utilized well.  Benfotiamine is much more bioavailable.  Perhaps Thiamine Mononitrate was in your previous B Complex supplements, explaining why they didn't work for you.   All the B vitamins work together.  Thiamine needs the other B vitamins to make enzymes and ATP, so you will need to take them.  Taking them in individual supplements is fine.  I've done the same.  Just remember you need all eight.   Let me know how it's going for you!
    • Zuma888
      Thanks! This makes a lot of sense.
    • Zuma888
      Thanks! I am currently trying B1 out on its own. I tried many brands of B-complex and they always make me feel nauseous and tired. I think I may have to try taking each B vitamin on its own.
    • ARutherford
      Thank you heaps for this advice!  
×
×
  • Create New...