Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Feel Like Hot Garbage

user001

By user001
in Coping with Celiac Disease

Recommended Posts

user001 Contributor
user001
Posted

I went to visit family today. Made food last night for today and brought snacks.  Didn't eat a thing besides what I brought, even brought utensils, ate from my containers. I had bakery on main certified gluten free oatmeal for breakfast, which has quinoa and amaranth too. Took enzymes before eating and I still had a little pain and now I had D. Ughhh last night my bf was out with friends and ate a bunch of trash (no gluten allowed in our house), he has a gluten issue but no gene for celiac. I think it's a fodmap problem. He was up till 3 which means I was up off and on till then also. 

 

Not sure why I'm feeling like trash, it is impossible that I had gluten, but I'm concerned that I'm having a problem with oats (been ok with quinoa and amaranth) is it possible that lack of sleep and family stress is what's going on?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


SMRI Collaborator
SMRI
Posted

There is a bad GI bug going around, maybe you are just sick and it's nothing to do with celiac disease?  Stress can also cause a lot of problems.

ravenwoodglass Mentor
ravenwoodglass
Posted

Might be a good idea to drop the gluten-free oats for bit. I think it is advised we not add them into our diet until we have healed well. Drop them and then when you have been feeling okay for a while add them back in and see if you react.

There are some celiacs without one of the two commonly tested for genes. Hopefully your BF had other testing done as well before going gluten free. It sounds like he knows he has an issue with gluten but uses a lack of diagnosis as a reason to binge now and then. If his reactions are severe he should avoid it whether he has an official diagnosis of not. 

Sorry you are feeling so poorly right now and hope you improve soon.

user001 Contributor
user001
Posted
  • Author

I can't deal with his food issues, I really need to watch out for myself for now. He thinks I might have gotten gluten in my mouth from the kids. They had pancakes before we saw them and cookies while we were there. I was so careful not to touch my face, so irritated with myself! My stomach is still feeling rumbly. I was unsure about the oats, I googled but I couldn't find anything about if it was ok to eat gluten free oats after being recently diagnosed. Usually any cc leads to neurological issues for me like feeling dizzy, wobbly, tired and foggy. I felt like that before we arrived at my family's house. Then after I had stomach issues, I either ingested crumbs from the kids somehow or the stress is just bothering me from my grams nagging me and the traveling. 

beth01 Enthusiast
beth01
Posted

Day 5 of feeling like poo here, my couch is my best friend.  Debating if I want to actually brave going to the doctor or suck it up some more and see if it gets better on it's own.  I am just worried I am heading to a bout of diverticulitis right now.

user001 Contributor
user001
Posted
  • Author

Feeling better today, except my fingers feel like they got slammed in a door again. Stomach is a bit iffy. Job interview tomorrow.. oyyy vey.

 

5 days, that is terrible. You should see the doctor.

bartfull Rising Star
bartfull
Posted

If you're in the Midwest, it could be shegella. There have been outbreaks here in South Dakota, Texas, Indiana, and other places. If you're going to pick it up, it would likely be from kids. They say it can last from 5 to 7 days or in some cases even more. Severe D, bad stomach cramps, and overwhelming fatigue.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


elless Rookie
elless
Posted

User001, didn't you mention you were in NJ? I too am in NJ in the philly area. It has been rediculously humid here, and sometimes that can give me issues. Maybe it could be a little bug on top of the weather.

user001 Contributor
user001
Posted
  • Author

User001, didn't you mention you were in NJ? I too am in NJ in the philly area. It has been rediculously humid here, and sometimes that can give me issues. Maybe it could be a little bug on top of the weather.

yes, i am in new jersey. I think my body doesn't handle stress well. I think between that and the oatmeal, might have done it. feeling lethargic and headachy today.

elless Rookie
elless
Posted

Well, I hope you feel better soon. It's supposed to rain tonight, so hopefully it will cool down.

kareng Grand Master
kareng
Posted

Boudin??

 

Yesterday we got a shkar( you know the ones who make those rolls) brand pizza and it was sooo delicious. The perfect cheese to sauce ratio. My bf cooked it on the oven rack so it was nice and crispy too. He sauteed some onions and green peppers for the top and chopped some black olives. totally hit the spot since my grandmother kept asking if we wanted pizza- all day while we were visiting.

 

Tonight I took some chicken, bell pepper, jalepeno, garlic carrot and onion and cooked that up in the wok and added some ginger and curry powder (badia is certified gluten free!) and made like a curry fried rice on the deck.. it was delicious. ate wayyyy too much.

 

 

I went to visit family today. Made food last night for today and brought snacks.  Didn't eat a thing besides what I brought, even brought utensils, ate from my containers. I had bakery on main certified gluten free oatmeal for breakfast, which has quinoa and amaranth too. Took enzymes before eating and I still had a little pain and now I had D. Ughhh last night my bf was out with friends and ate a bunch of trash (no gluten allowed in our house), he has a gluten issue but no gene for celiac. I think it's a fodmap problem. He was up till 3 which means I was up off and on till then also. 

 

Not sure why I'm feeling like trash, it is impossible that I had gluten, but I'm concerned that I'm having a problem with oats (been ok with quinoa and amaranth) is it possible that lack of sleep and family stress is what's going on?

 

 

Just saw what you were eating in the dinner thread.  If you are having gut issues, some of these foods can be pretty rough.  Also, hopefully the oven rack has not had a gluten pizza cooked on it recently?  

 

You might want to try some simpler, non-processed foods for a while until you are consistently feeling good.  Then add back in one or 2 processed or harder to digest foods at a time to see if you can handle them again.

user001 Contributor
user001
Posted
  • Author

I am actually feeling pretty good today, but thanks karen.

 

I am pretty sure it was the oatmeal because I started having symptoms on the ride up to my grandmas. Then my uncle lives downstairs and smokes inside and the smell kind of emanates through the house, that always makes me feel like crap. My symptoms were confined to after I ate the oatmeal till before our late dinner.The next morning I was a bit tired but my stomach was just hungry.

 

My house is 100% gluten free. We never made pizza before on the oven rack, but it has been scrubbed and run through the dishwasher anyway. Curry didn't seem to cause me any problems, I didn't think it would, it never has before. Quite the opposite actually, always has made me feel better than other foods. I attribute that to the tumeric and ginger, which are two things that have always helped my stomach and even my arthritis.

kareng Grand Master
kareng
Posted

Sorry. It sounded like you were very ill for several days. But it was just some stomach issues for a few hours. Probably the oatmeal, then.

GF Lover Rising Star
GF Lover
Posted

I am actually feeling pretty good today, but thanks karen.

 

I am pretty sure it was the oatmeal because I started having symptoms on the ride up to my grandmas. Then my uncle lives downstairs and smokes inside and the smell kind of emanates through the house, that always makes me feel like crap. My symptoms were confined to after I ate the oatmeal till before our late dinner.The next morning I was a bit tired but my stomach was just hungry.

 

My house is 100% gluten free. We never made pizza before on the oven rack, but it has been scrubbed and run through the dishwasher anyway. Curry didn't seem to cause me any problems, I didn't think it would, it never has before. Quite the opposite actually, always has made me feel better than other foods. I attribute that to the tumeric and ginger, which are two things that have always helped my stomach and even my arthritis.

 

I think you may be in denial.  Those foods, even if they make you feel good, are not useful for your gut right now!  You are constantly posting that you feel like crap but don't seem to want to follow advice!  I think you should stick to very simple meals with no spices added.  You could have had just the Chicken and and carrots.  If you think oatmeal is a problem then don't eat it.  Stay away from all processed foods including pizza.  That's really all the advice I can give.  I hope you will give your gut a chance to heal before adding  the junk to it.  

 

Wish you well, I won't bother you anymore about this!

 

Colleen

Celiac Ninja Enthusiast
Celiac Ninja
Posted

If you have reactive celiac (not sure on the labeling there) but the general idea is the lining of the intestines will respond as if glutened (to some degree of being glutened) simply by being stressed. It's know as reactive. I definantly would agree about getting glutened from the kids. I got two and they put hands, toes, toys, etc. right up in my face and sometimes straight in my mouth. Very irritating. Do you have gluten enzymes that you can take to help process through what you've gotten in your system?

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Jane02
      - Jane02 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Hello, I'm very discouraged. I've been trying to find a safe vitamin mineral supplement brand for months and am tired of testing one after the other and experiencing my typical 'glutening' reactions. I'm really feeling the nutritional deficiencies set in. I'm doing the best I can to get these nutrients from my food, although it's impossible for me to...
    2. knitty kitty
      - knitty kitty commented on Scott Adams's article in Multiple Sclerosis and Celiac Disease
      3

      Gluten-Free Diet Linked to Reduced Inflammation and Improved Outcomes in Multiple Sclerosis (+Video)

      I worried at one point on my journey whether I had MS, having many of the symptoms myself. However, my symptoms improved dramatically with high dose thiamine hydrochloride, Benfotiamine, and Thiamine TTFD. Thiamine deficiency symptoms overlap with MS symptoms, including changes on brain MRIs. Thiamine deficiency affected my eyes (light sensitivity),...
    3. trents
      - trents replied to Matthias's topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

      Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products...
    4. Matthias
      - Matthias posted a topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

      The one kind of food I had been buying and eating without any worry for hidden gluten were unprocessed veggies. Well, yesterday I discovered yet another pitfall: cultivated mushrooms. I tried some new ones, Shimeji to be precise (used in many asian soup and rice dishes). Later, at home, I was taking a closer look at the product: the mushrooms were growing...
    5. trents
      - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      how much gluten do I need to eat before blood tests?

      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,330
    • Most Online (within 30 mins)
      7,748
    PattyPagnanelli
    Newest Member
    PattyPagnanelli
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Hello, I'm very discouraged. I've been trying to find a safe vitamin mineral supplement brand for months and am tired of testing one after the other and experiencing my typical 'glutening' reactions. I'm really feeling the nutritional deficiencies set in. I'm doing the best I can to get these nutrients from my food, although it's impossible for me to intake enough vitamin D as I can't have dairy and have insufficient sun exposure in the northern hemisphere. I've tried B Complex from Country Life (certified gluten-free) - horrible reaction. I've tried Metagenics vitamin D tab (certified glute-free) - bad reaction. I've tried liquid vitamin D Thorne and D Drops - reactions were mild since I tried a drop of a drop. I understand there could be other things I'm reacting to in my diet, although my diet/intake is pretty consistent with minimal variables so I do think it's something in these supplements. I understand I could be reacting to the active ingredient vitamin/mineral itself or even the filler ingredients. I tried the vitamin D drops since the only filler ingredient is coconut oil, in some brands, which I know I can tolerate really well on its own - I cook with coconut oil frequently and have no 'glutening' reactions at all. Perhaps I'm reacting to the vitamin D itself, although I eat fatty fish every few days, an entire fillet with no 'glutening' reactions, which contains anywhere between 400-600 IU per fillet so I shouldn't be sensitive to vitamin D. All this to say, I'm desperately looking for at least a safe vitamin D supplement. Does anyone know of a safe vitamin D supplement brand? I'd love to know if there are any supplement brands that have absolutely no gluten (especially in flour form) in their facilities. I've heard of Kirkman having no grains in their facility - I may try this brand. Has anyone reacted to this brand?   
    • trents
      Unexpected gluten exposure risk from cultivated mushrooms

      By trents · Posted

      Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products containing yeast because of the fact that they are sometimes cultured on gluten-containing substrate.
    • Matthias
      Unexpected gluten exposure risk from cultivated mushrooms

      By Matthias · Posted

      The one kind of food I had been buying and eating without any worry for hidden gluten were unprocessed veggies. Well, yesterday I discovered yet another pitfall: cultivated mushrooms. I tried some new ones, Shimeji to be precise (used in many asian soup and rice dishes). Later, at home, I was taking a closer look at the product: the mushrooms were growing from a visible layer of shredded cereals that had not been removed. After a quick web research I learned that these mushrooms are commonly cultivated on a cereal-based medium like wheat bran. I hope that info his helpful to someone.
    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      IBS-D vs Celiac

      By Scott Adams · Posted

      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.