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Gluten-Free Label Rule To Take Effect, But Its Use Won't Be Mandatory - Los Angeles Times


Scott Adams

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Los Angeles Times

Starting Aug. 5, packaged foods such as Rudi's breads that claim to be gluten free will be encouraged to carry a label with more information. Starting Aug. 5, packaged foods such as Rudi's breads that claim to be gluten free will be encouraged to carry a label ...

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Adalaide Mentor

"From his perspective, Fasano says, goals that remain are discovering a "safety net" treatment, a complement to a gluten-free diet for people who inadvertently are exposed, and to find a way to prevent the disorder."

 

Should we band together and buy the man a cape? Green, the color of our ribbon... right?

LauraTX Rising Star

"From his perspective, Fasano says, goals that remain are discovering a "safety net" treatment, a complement to a gluten-free diet for people who inadvertently are exposed, and to find a way to prevent the disorder."

 

Should we band together and buy the man a cape? Green, the color of our ribbon... right?

 

Yes!!

Georgia-guy Enthusiast

I'm slightly confused, what exactly does the new labeling law require??

But on the flip side, "Additionally, gluten-free diets have become "fashionable," ... but also has meant that real medical problems are sometimes treated lightly, Fasano says." <---I love that statement! So true! I don't know how many times in 2 months I have had people say something to me along the lines of "I don't eat much gluten either" like they think I'm on the "fashionable diet"....ummmm....a diet is temporary and by choice, what I'm on is called a "medical neccisity lifestyle to stay healthy".

SMRI Collaborator

When I met with my nutritionist last week we were talking about the cavalier attitudes, especially in restaurants, about people that need to be gluten-free.  When I ate at Olive Garden the other day, I told the waitress I needed gluten-free and she said "no croutons, right"...which was good.  The salad arrived with obvious crouton crumbs.  I still wasn't "officially" gluten-free so I didn't say anything, but I won't eat there any more because of that.  I told my nutritionist I'm just going to tell people I have a gluten allergy because allergies people "get", not so much Celiacs and what it does.  She said she also tells people to think of Celiacs as a "peanut allergy" for your intestines. While you don't go into anaphylaxic shock from eating gluten, your intestines do and you need to treat your food like that.  I've explained that to two people so far and it's a bit of a light bulb moment for them when they hear that.

 

I also fear that with the new labeling requirements that companies will not put on the gluten-free label, even if it is, to prevent lawsuits....

psawyer Proficient

I also fear that with the new labeling requirements that companies will not put on the gluten-free label, even if it is, to prevent lawsuits.

This is already the case, and has been for years. The new law may help, because now there is a legal definition of "gluten-free," whereas in the past, it meant whatever the plaintiff's lawyer could convince a jury it meant.
SMRI Collaborator

I was just at the grocery store--thought I was safe with frozen veges--nope,  "May have come in contact with....all of the top 8 allergens"....ok, so cop out CYA or true?  


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    • SusanJ
      Two months ago, I started taking Dupixent for dermatitis herpetiformis and it has completely cleared it up. I can't believe it! I have had a terrible painful, intensely itchy rash for over a year despite going fully gluten-free. See if your doctor will prescribe Dupixent. It can be expensive but I am getting it free. When the dermatitis herpetiformis was bad I could not do anything. I just lay in bed covered in ice packs to ease the pain/itching and using way too Clobetasol. Dapsone is also very good for dermatitis herpetiformis (and it is generic). It helped me and the results were immediate but it gave me severe anemia so the Dupixent is better for me. Not sure if it works for everyone. I cannot help with the cause of your stress but from experience I am sure the severe stress is making the celiac and dermatitis herpetiformis worse. Very difficult for you with having children to care for and you being so sick. Would this man be willing to see a family therapist with you? He may be angry at you or imagine that your illness is a psychosomatic excuse not to take care of him. A therapist might help even if he won't go with you. Also do you have any family that you could move in with (with the kids) for a short time to get away? A break may be good for you both.
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      Thank you for sharing all of this, Knitty Kitty! I did just want someone to share some commonality with. I did not know This one Deficiency was a thing and that it's common for Celiac Disease. It makes sense since this is a disorder that causes malabsorption. I will have to keep this in mind for my next appointments. You also just spurred me on to make that Dietician appointment. There's a lot of information online but I do need to see a professional. There is too much to juggle on my own with this condition.<3
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      I think your initial idea, eat gluten and be tested, was excellent. Now you have fear of that testing, but isn’t there also a fear each time you eat gluten that you’re injuring your body? Possibly affecting future fertility, bone health and more? Wouldn’t it be better to know for sure one way or the other? If you test negative, then you celebrate and get tested occasionally to make sure the tests don’t turn positive again. If you test positive, of course the recommendation from me and others is to stop gluten entirely.  But if you’re unable to convince yourself to do that, could a positive test at least convince you to minimize your gluten consumption?  Immune reactions are generally what is called dose response, the bigger the dose, the bigger the response (in this case, damage to your intestines and body). So while I am NOT saying you should eat any gluten with a positive test, the less the better.  
    • knitty kitty
      @Riley., Welcome to the forum, but don't do it!  Don't continue to eat gluten!  The health problems that will come if you continue to eat gluten are not worth it.  Problems may not show up for years, but the constant inflammation and nutritional losses will manifest eventually.  There's many of us oldsters on the forum who wish they'd been diagnosed as early.    Fertility problems, gallbladder removal, diabetes, osteoporosis and mental health challenges are future health issues you are toying with.   To dispel fear, learn more about what you are afraid of.  Be proactive.  Start or join a Celiac group in your area.  Learn about vitamins and nutrition.   Has your mother been checked for Celiac?  It's inherited.  She may be influencing you to eat gluten as a denial of her own symptoms.  Don't let friends and family sway you away from the gluten-free diet.  You know your path.  Stick to it.  Be brave. 
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