Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Reaction In Just 1 Hour?

Ladyrhedd

By Ladyrhedd
in Coping with Celiac Disease

Recommended Posts

Ladyrhedd Rookie
Ladyrhedd
Posted

Hi! It's been a long time since I posted and even then, I only posted a couple of times, but I'm hoping someone can tell me if it's possible to react to gluten so quickly. I went to dinner with family tonight, I had a filet mignon (no marinade), a baked sweet potato (no butter/toppings) and a glass of water. When we walked outside to leave, I could feel the rumbles in my stomach and felt mildly bloated. By the time I got home (5-10 minutes later), I had diarrhea. I've gone two more times since then (we left the restaurant a bit over 2 hours ago.)

Is it possible it is gluten that is making me sick? I do think it is (my son had something floating in his water he said came from a pitcher and when I scooped it out to smell it, it smelled like bread-I'm not sure if I was drinking from the same pitcher, though), but I can't find much about how soon after being glutened someone reacts.

Thanks for any help/feedback.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


dilettantesteph Collaborator
dilettantesteph
Posted

I think that it varies depending on how sensitive you are, how long it is since the last time that you were glutened, how big a dose you got, and things like that.  I don't think that there is a definitive answer which is why you can't find one.  I don't think that it inconceiveable that you could have reacted so quickly.  I think that I have.  I hope a that you feel better quickly.

GF Lover Rising Star
GF Lover
Posted

One of the few times I've eaten out I got glutened.  I was doubled over before we left the table.  It was very early in my diagnosis and I've learned a lot since then.  I assume it was cc from the kitchen as I was very careful on my end.  

 

Colleen

elless Rookie
elless
Posted

I feel it with in 20 minutes, half hour if I'm lucky. Usually it's the brain fog first and the headache. Like my heads full of rocks. Then comes the stabbing stomach pains. Then about 6- 12 hours later the D sets in. I think it's different for everyone.

Ladyrhedd Rookie
Ladyrhedd
Posted
  • Author

Thanks. I had a mild headache all day yesterday and generally felt "off" the whole day. I had another bout of D this AM, though, while nothing yesterday. <ETA: I had really bad stomach pains for a little while last night, too.> Now I'm wondering if it could still be gluten-my thought is yes, but my husband is doubtful...

GF Lover Rising Star
GF Lover
Posted

Thanks. I had a mild headache all day yesterday and generally felt "off" the whole day. I had another bout of D this AM, though, while nothing yesterday. <ETA: I had really bad stomach pains for a little while last night, too.> Now I'm wondering if it could still be gluten-my thought is yes, but my husband is doubtful...

 

If I get got, my symptoms in some way, shape or form last for about 3-4 weeks.  Many friends with multiple AI's also have long recovery times.  It's why some of us Veterans on the Forum are so careful and know so much about Celiac.  Once the immune system ramps up it can take awhile to calm back down.  Pre-diagnosis symptoms may return.  

 

Colleen

Doorknocker Newbie
Doorknocker
Posted

I'm a new Celiac (just diagnosed in April) but I can tell within 40 minutes if I ingested something with gluten.  Luckily it's only happened to me three times, but today was by far the worst.  We ate breakfast out at a place I wasn't exactly comfortable with.  I need to learn to speak up more, I guess.  I left the restaurant and got some things out of my trunk for my sister in law, and by the time I arrived at the grocery storea short distance away, where I intended to pick up a few things, my vision was shot and the brain fog settled in.  Then came the indigestion, the bloating, the gagging, the puking and the big D.  It's now been a full eight hours and my head rash, that never really went away, is starting to itch and tingle.

 

So yes, I fully believe symptoms can start within an hour.  It didn't take me very long to figure out I'd been cross contaminated today at all!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jddh Contributor
jddh
Posted

I used to have a hard "3 hour minimum" before I got sick. My guess was that this was how long it took for food to pass from my stomach to my small intestine, where the autoimmune reaction happens.

Since I've been getting older and more sensitive, however, I've found that window to be often smaller and unpredictable; sometimes as little as 30-60 minutes.

As folks have said, it's very personal! Getting an early warning can at least prep you for heading home and taking easy on yourself. On the bright side, the earlier symptoms begin, hopefully the earlier they wrap up for you!

Take care and feel better soon.

Ladyrhedd Rookie
Ladyrhedd
Posted
  • Author

Thank you all again! This is very validating! Yesterday I was driving to my sister-in-laws and I missed the turn I usually take and my husband was asking me where I was going. Then I didn't recognize another street I'd been on several times. It was so odd. I'm thinking it could be lingering effects since it was only 5 days later... My digestive tract is definitely still off. I may have to find or start a support group in my area because when I tell my husband that I think it's because of gluten, I don't think he believes it! There is still doubt in my own mind (really, it's denial, not doubt!)

notme Experienced
notme
Posted

if it's something else that just didn't agree with me (i have a problem with soy, for example.  i can tolerate a little, but too much will make my guts turn to goo) it's usually over pretty quickly.  if it's lingering with other telltale symptoms, then i can expect it to last, like 12 more days...  yay...  i am sort of 'lucky' - i get that left side pain that tells me it's gluten.  hope you feel better soon!

SMRI Collaborator
SMRI
Posted

I'm a new Celiac (just diagnosed in April) but I can tell within 40 minutes if I ingested something with gluten.  Luckily it's only happened to me three times, but today was by far the worst.  We ate breakfast out at a place I wasn't exactly comfortable with.  I need to learn to speak up more, I guess.  I left the restaurant and got some things out of my trunk for my sister in law, and by the time I arrived at the grocery storea short distance away, where I intended to pick up a few things, my vision was shot and the brain fog settled in.  Then came the indigestion, the bloating, the gagging, the puking and the big D.  It's now been a full eight hours and my head rash, that never really went away, is starting to itch and tingle.

 

So yes, I fully believe symptoms can start within an hour.  It didn't take me very long to figure out I'd been cross contaminated today at all!

 

What kind of dog do you have?  Our puppies look a lot  alike :D

 

 

I saw a blog the other day where a mom posted (in the comments not the blog writer) that have just ONE DAY of being gluten free her son's symptoms all disappeared, and she had a laundry list of digestive and neurological symptoms too....um, sure.....NOT. 

Doorknocker Newbie
Doorknocker
Posted

That's my rottweiler.  He was a baby in that picture but is now just over a year old and is 110 pounds. 

 

There's no way her son's symptoms just disappeared in ONE day.  In my case, my big D did stop once I eliminated gluten, but it took several weeks for the joint pain (I still get it sometimes) and headaches to let up.  I still have several other problems and I am almost four months in.  I don't believe her.

 

Lady, I think my husband believes me, but I don't think he gets it entirely.  I think it's really hard for someone who has never heard of this before to get it.  :(  I can't find any support groups in my area at all.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,685
    • Most Online (within 30 mins)
      7,748
    tdouglas2901
    Newest Member
    tdouglas2901
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Draft gluten-free ciders… can they be trusted ?

      By Scott Adams · Posted

      I'd go with a vodka tonic, but that's just me😉
    • Rejoicephd
      Draft gluten-free ciders… can they be trusted ?

      By Rejoicephd · Posted

      That and my nutritionist also said that drinking cider is one of the worst drink choices for me, given that I have candida overgrowth.  She said the combination of the alcohol and sugar would be very likely to worsen my candida problem.  She suggested that if I drink, I go for clear vodka, either neat or with a splash of cranberry.   So in summary, I am giving ciders a rest.  Whether it's a gluten risk or sugars and yeast overgrowth, its just not worth it.
    • Inkie
      Tea Bags and Gluten

      By Inkie · Posted

      Thank you for the information ill will definitely bring it into practice .
    • Scott Adams
      Tea Bags and Gluten

      By Scott Adams · Posted

      While plain, pure tea leaves (black, green, or white) are naturally gluten-free, the issue often lies not with the tea itself but with other ingredients or processing. Many flavored teas use barley malt or other gluten-containing grains as a flavoring agent, which would be clearly listed on the ingredient label. Cross-contamination is another possibility, either in the facility where the tea is processed or, surprisingly, from the tea bag material itself—some tea bags are sealed with a wheat-based glue. Furthermore, it's important to consider that your reaction could be to other substances in tea, such as high levels of tannins, which can be hard on the stomach, or to natural histamines or other compounds that can cause a non-celiac immune response. The best way to investigate is to carefully read labels for hidden ingredients, try switching to a certified gluten-free tea brand that uses whole leaf or pyramid-style bags, and see if the reaction persists.
    • Scott Adams
      Inconclusive results

      By Scott Adams · Posted

      This is a challenging and confusing situation. The combination of a positive EMA—which is a highly specific marker rarely yielding false positives—alongside strongly elevated TTG on two separate occasions, years apart, is profoundly suggestive of celiac disease, even in the absence of biopsy damage. This pattern strongly aligns with what is known as "potential celiac disease," where the immune system is clearly activated, but intestinal damage has not yet become visible under the microscope. Your concern about the long-term risk of continued gluten consumption is valid, especially given your family's experience with the consequences of delayed diagnosis. Since your daughter is now at an age where her buy-in is essential for a gluten-free lifestyle, obtaining a definitive answer is crucial for her long-term adherence and health. Given that she is asymptomatic yet serologically positive, a third biopsy now, after a proper 12-week challenge, offers the best chance to capture any microscopic damage that may have developed, providing the concrete evidence needed to justify the dietary change. This isn't about wanting her to have celiac; it's about wanting to prevent the insidious damage that can occur while waiting for symptoms to appear, and ultimately giving her the unambiguous "why" she needs to accept and commit to the necessary treatment. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.