Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Reaction In Just 1 Hour?


Ladyrhedd

Recommended Posts

Ladyrhedd Rookie

Hi! It's been a long time since I posted and even then, I only posted a couple of times, but I'm hoping someone can tell me if it's possible to react to gluten so quickly. I went to dinner with family tonight, I had a filet mignon (no marinade), a baked sweet potato (no butter/toppings) and a glass of water. When we walked outside to leave, I could feel the rumbles in my stomach and felt mildly bloated. By the time I got home (5-10 minutes later), I had diarrhea. I've gone two more times since then (we left the restaurant a bit over 2 hours ago.)

Is it possible it is gluten that is making me sick? I do think it is (my son had something floating in his water he said came from a pitcher and when I scooped it out to smell it, it smelled like bread-I'm not sure if I was drinking from the same pitcher, though), but I can't find much about how soon after being glutened someone reacts.

Thanks for any help/feedback.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



dilettantesteph Collaborator

I think that it varies depending on how sensitive you are, how long it is since the last time that you were glutened, how big a dose you got, and things like that.  I don't think that there is a definitive answer which is why you can't find one.  I don't think that it inconceiveable that you could have reacted so quickly.  I think that I have.  I hope a that you feel better quickly.

GF Lover Rising Star

One of the few times I've eaten out I got glutened.  I was doubled over before we left the table.  It was very early in my diagnosis and I've learned a lot since then.  I assume it was cc from the kitchen as I was very careful on my end.  

 

Colleen

elless Rookie

I feel it with in 20 minutes, half hour if I'm lucky. Usually it's the brain fog first and the headache. Like my heads full of rocks. Then comes the stabbing stomach pains. Then about 6- 12 hours later the D sets in. I think it's different for everyone.

Ladyrhedd Rookie

Thanks. I had a mild headache all day yesterday and generally felt "off" the whole day. I had another bout of D this AM, though, while nothing yesterday. <ETA: I had really bad stomach pains for a little while last night, too.> Now I'm wondering if it could still be gluten-my thought is yes, but my husband is doubtful...

GF Lover Rising Star

Thanks. I had a mild headache all day yesterday and generally felt "off" the whole day. I had another bout of D this AM, though, while nothing yesterday. <ETA: I had really bad stomach pains for a little while last night, too.> Now I'm wondering if it could still be gluten-my thought is yes, but my husband is doubtful...

 

If I get got, my symptoms in some way, shape or form last for about 3-4 weeks.  Many friends with multiple AI's also have long recovery times.  It's why some of us Veterans on the Forum are so careful and know so much about Celiac.  Once the immune system ramps up it can take awhile to calm back down.  Pre-diagnosis symptoms may return.  

 

Colleen

Doorknocker Newbie

I'm a new Celiac (just diagnosed in April) but I can tell within 40 minutes if I ingested something with gluten.  Luckily it's only happened to me three times, but today was by far the worst.  We ate breakfast out at a place I wasn't exactly comfortable with.  I need to learn to speak up more, I guess.  I left the restaurant and got some things out of my trunk for my sister in law, and by the time I arrived at the grocery storea short distance away, where I intended to pick up a few things, my vision was shot and the brain fog settled in.  Then came the indigestion, the bloating, the gagging, the puking and the big D.  It's now been a full eight hours and my head rash, that never really went away, is starting to itch and tingle.

 

So yes, I fully believe symptoms can start within an hour.  It didn't take me very long to figure out I'd been cross contaminated today at all!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jddh Contributor

I used to have a hard "3 hour minimum" before I got sick. My guess was that this was how long it took for food to pass from my stomach to my small intestine, where the autoimmune reaction happens.

Since I've been getting older and more sensitive, however, I've found that window to be often smaller and unpredictable; sometimes as little as 30-60 minutes.

As folks have said, it's very personal! Getting an early warning can at least prep you for heading home and taking easy on yourself. On the bright side, the earlier symptoms begin, hopefully the earlier they wrap up for you!

Take care and feel better soon.

Ladyrhedd Rookie

Thank you all again! This is very validating! Yesterday I was driving to my sister-in-laws and I missed the turn I usually take and my husband was asking me where I was going. Then I didn't recognize another street I'd been on several times. It was so odd. I'm thinking it could be lingering effects since it was only 5 days later... My digestive tract is definitely still off. I may have to find or start a support group in my area because when I tell my husband that I think it's because of gluten, I don't think he believes it! There is still doubt in my own mind (really, it's denial, not doubt!)

notme Experienced

if it's something else that just didn't agree with me (i have a problem with soy, for example.  i can tolerate a little, but too much will make my guts turn to goo) it's usually over pretty quickly.  if it's lingering with other telltale symptoms, then i can expect it to last, like 12 more days...  yay...  i am sort of 'lucky' - i get that left side pain that tells me it's gluten.  hope you feel better soon!

SMRI Collaborator

I'm a new Celiac (just diagnosed in April) but I can tell within 40 minutes if I ingested something with gluten.  Luckily it's only happened to me three times, but today was by far the worst.  We ate breakfast out at a place I wasn't exactly comfortable with.  I need to learn to speak up more, I guess.  I left the restaurant and got some things out of my trunk for my sister in law, and by the time I arrived at the grocery storea short distance away, where I intended to pick up a few things, my vision was shot and the brain fog settled in.  Then came the indigestion, the bloating, the gagging, the puking and the big D.  It's now been a full eight hours and my head rash, that never really went away, is starting to itch and tingle.

 

So yes, I fully believe symptoms can start within an hour.  It didn't take me very long to figure out I'd been cross contaminated today at all!

 

What kind of dog do you have?  Our puppies look a lot  alike :D

 

 

I saw a blog the other day where a mom posted (in the comments not the blog writer) that have just ONE DAY of being gluten free her son's symptoms all disappeared, and she had a laundry list of digestive and neurological symptoms too....um, sure.....NOT. 

Doorknocker Newbie

That's my rottweiler.  He was a baby in that picture but is now just over a year old and is 110 pounds. 

 

There's no way her son's symptoms just disappeared in ONE day.  In my case, my big D did stop once I eliminated gluten, but it took several weeks for the joint pain (I still get it sometimes) and headaches to let up.  I still have several other problems and I am almost four months in.  I don't believe her.

 

Lady, I think my husband believes me, but I don't think he gets it entirely.  I think it's really hard for someone who has never heard of this before to get it.  :(  I can't find any support groups in my area at all.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      32

      My journey is it gluten or fiber?

    2. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      32

      My journey is it gluten or fiber?

    3. - SamAlvi replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      High TTG-IgG and Normal TTG-IgA

    4. - trents replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      High TTG-IgG and Normal TTG-IgA

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,842
    • Most Online (within 30 mins)
      7,748

    aetherwax
    Newest Member
    aetherwax
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      I made it through the holiday w/o being glutened. I had my brother cook with gluten-free breadcrumbs and I didn't get sick. I baked cookies with gluten-free flour and had dry ingredients for cookies in ziplock bag. I also made gluten cookies as well and guess I did good washing to avoid CC. My wife also went to a french bakery and bought a gluten-free flourless chocolate cake dedicated gluten-free it was out of this world. 
    • xxnonamexx
      What do you mean it would not allow any celiac to eat gluten again. I think if this helps cross contamination when eating out at a non dedicated gluten-free restaurant this would be nice not to encounter the pains. But is their a daily enzyme to take to help strengthen the digestive system? 
    • SamAlvi
      Hi, thank you for the reply. Unfortunately, no other antibody tests were ordered. I am a 32-year-old male. About two months ago, I ate pancakes and then developed severe diarrhea that lasted the entire day. At night, I became unconscious due to fluid loss and was admitted to the ER, where I received IV fluids. Two days later, I ate bread again and once more developed severe diarrhea. I ended up in the ER again and received IV fluids. In my country, Pakistan, doctors are unfortunately not very thorough, so they treated me for a stomach infection. I visited three or four doctors, including a gastroenterologist, but it seemed like they just wanted to keep me on medications and IV fluids. Eventually, I did some digging myself and started connecting the dots. For years, I’ve had excessive gas buildup and frequent loose stools, but I never paid much attention to it. I also cannot easily digest dairy products. Two years ago, I had a CBC test that showed iron deficiency. My doctor told me to eat more meat and said it was nothing serious. However, for the past five years, I’ve also had severe motion sickness, which I never experienced before. Whenever I get on a bus or in a car, I sometimes lose consciousness for 10–20 seconds and wake up sweaty, and occasionally I feel the need to vomit. After more research on the internet, I came across gluten and celiac disease, so I got two related tests (TTG-IgA & TTG IgG) done along with a stool test and another CBC. The stool test showed weakly positive blood. Ever since eating those pancakes and bread, I’ve had a burning sensation in my gut. My doctor reviewed my tests, he told me to completely stop eating gluten and started me on IV fluids for 20 days, saying that I had severe inflammation in my gut. It has now been two months since I quit gluten, and I’m still not sure whether this is celiac disease or gluten intolerance. I don’t really trust doctors in Pakistan, so I thought I might get some help here.
    • trents
      Welcome to the celiac.com community, @SamAlvi! Were there any other antibody tests ordered? Particularly, was there a "total IGA" test ordered to check for IGA deficiency. When people are IGA deficient, celiac panel IGA test scores, such as the TTG-IGA, are likely not valid. If a total IGA test was not ordered, I would request such to be done. Note: "Total IGA" goes by other names as well. I will include a primer on celiac disease antibody testing which does a good job in covering the nomenclature variations connected with the various tests. Elevated IGG scores can certainly indicate celiac disease but they are more likely than elevated IGA tests to be caused by something else.  
    • GlorietaKaro
      Thank you— yes, valid and essential— The issue either doctors is that every one I have tried to talk to about this has essentially rolled their eyes and dismissed me as a hypochondriac, which gets discouraging. I believe a diagnosis would help me to be taken seriously by doctors as well as being validating, but can carry on without it.    There are many, probably most people in my area of my age and gender, who avoid gluten, but many just avoid it casually— eating the occasional plate of wheat pasta or a delicious-looking dessert, or baking cookies with wheat flour for gatherings.  That is not an option for me. I don’t eat other people’s cooking or go to restaurants that do not have strict cross- contamination procedures. It can be boring and lonely, and people do look at me as if I am being a bit dramatic but weeks of symptoms after a single small exposure has taught me to respect my experience.    Thank you very much for your response— sometimes I just need to hear that I am not crazy—
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.