Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Getting Over Paranoia Of Being Glutened.


Serielda

Recommended Posts

Serielda Enthusiast

So the other day I went out to get new clothing as I needed some, since kicking gluten out of my life, I have dropped  20lbs.  So while shopping my hubby commented hon, why do you keep picking your old size of clothing and I stopped and felt really stupid for my reply, but honestly due to  a phobia of accidently getting glutened I tend to wear clothing that is a bit big on me. Pre diagnosis, and after for a bit, I grew very irked and super annoyed by people thinking I was preggers, and crap, which lead to sarcasim since I can't have kids(that is another story). I am sure many here have had to endure the same nonense, from others on that topic, but still it doesn't stop those feelings. 
While my hubby is very supportive, he was sort of like baby, you still are working at things and it's going to take time to get these jitters and fears to calm down. However his fave gluten related freak out was the night I dreamed I was eating breadpudding with ice cream to wake up flipping out then realizing it was just a dream. Pre diag days I would flip with a chorus of  nom nom nom if it was anywhere near me. He sat up in bed laughing at me stating ummm do you think I'd let you  sit somewhere and freak out on that, to have to  deal with you later flipping out. I admit now it is kind of funny, as I have heard of those kind of dreams, and such but his reaction was priceless.

So does these bizare issues I mentioned above ever really dissist as silly as they sound they are kind of irritants to me.

  • 2 weeks later...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



blueshades Newbie

I think this just means you're very careful. I have dreams where sometimes someone will offer me a donut or i will eat something my mother made for the family like i use to. And once i bite into it, i start screaming at myself, saying this has wheat and i know it so why did i eat it! lol and i would be spitting it out. And it's silly because when i'm awake i know i will definitely not make that kind of mistake in real life. I am very careful and i think it's good we are since it's our health we are risking!

CathyO Rookie

I just had this conversation with my grandson (of all people) yesterday.  He's 12 and lives with us fulltime.  He's seen me unconscious on the bathroom floor, you name it.  He knows.  He is my best "gluten spy" ... "Did you read the label on that? Is there gluten in that?" He has explained Celiac Disease to adult family members who "doubt" my diagnosis.
Bless his little heart.  He worries a lot about me, and I try to help him not worry.  I was diagnosed in February of this year.

 

As we were putting dinner on the table last night (yummy gluten free pasta and steak and veggies), he said "Have you noticed lately that we don't worry about gluten as much as we used to lately? That this is just the way we eat now, and we don't even think about it."

 

I didn't tell him that I have nightmares about eating croissants, and wake up in a cold sweat. For our recent road trip I spent several weeks mapping out our trip and finding appropriate gluten-free places to eat.  The nightmares and "fear" have become a little more manageable with time.  I still buy clothes a little bigger than necessary because of "bloat".  In summer, I find that sundresses are a girl's best friend. 
 

I'm finding that things become easier as more experience in being gluten free is gained.  Knowledge is power.  I read everything I can find, I've bought new cookbooks, and have friends (the good kind!) who have sent me magazines and gluten-free cookbooks with notes of encouragement.

 

If I can do this, so can you !!! 

 

beth01 Enthusiast

I wear my new size of clothing but I always keep comfy clothes with me.  Comes in handy

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,194
    • Most Online (within 30 mins)
      7,748

    Eliana123
    Newest Member
    Eliana123
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    • cristiana
      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result.  I am interested to know, is your gastroenterologist concerned?  Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous damage, too! In my own case, my consultant wasn't remotely concerned - in fact, he said I might still get this result even if all I ever did was eat nothing but rice and water.   My coeliac blood tests were still steadily improving, albeit slowly, which was reassuring.
    • trents
      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
    • Scott Adams
      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especially since Eden has a long-standing reputation for transparency. While the lack of gluten labeling can understandably give pause, manufacturer confirmation like this is often what people rely on for traditionally fermented products. As always, trusting your body after trying it is reasonable, but based on the information you gathered, your conclusion makes sense.
    • Scott Adams
      Seven months can still be early in celiac healing, especially if you were mostly asymptomatic to begin with—symptoms like low iron, vitamin D deficiency, nail changes, and hair issues often take much longer to improve because the gut needs time to recover before absorption normalizes. A tTG-IgA of 69 is not “low” in terms of immune activity, and it can take 12–24 months (sometimes longer) for antibodies and the intestinal lining to fully heal, particularly in teens and young adults. Eating gluten again to “test” things isn’t recommended and won’t give you clear answers—it’s far more likely to cause harm than clarity. Weight not changing is also very common in celiac and doesn’t rule anything out. Please know that your frustration and sadness matter; this adjustment is hard, and feeling stuck can really affect mental health. You deserve support, and if you can, reaching out to a GI dietitian or mental health professional familiar with chronic illness could really help you through this phase. This study indicates that a majority of celiacs don't recover until 5 years after diagnosis and starting a gluten-free diet: Mucosal recovery and mortality in adults with celiac disease after treatment with a gluten-free diet However, it's also possible that what the study really shows is the difficulty in maintaining a 100% gluten-free diet. I suspect that if you looked closely at the diets of those who did not recover within 2 years might be that their diets were not 100% gluten-free. Perhaps they ate out more often, or didn't understand all of the hidden ingredients where gluten can hide. Either way, it shows how difficult recovery from celiac disease can be for most people. According to this study: This article explores other causes of flattened villi:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.