Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Abnormal Screening Mammogram...worried

icelandgirl

By icelandgirl
in Coping with Celiac Disease

Recommended Posts

icelandgirl Proficient
icelandgirl
Posted
  • Author

Add me to the hug list, Icelandgirl! But when I read what you said about your mother, it might help to remember that many times, health issues can be familial. Cysts seem to be one of those things. I know mothers and daughters that have had cyst problems but they were never cancerous. Just pesky cysts. So, if your mother has had this experience and everything was fine every time, dwell on that because it just might be you are like her and everything will BE FINE! I know you will be really worried because so wouldn't anyone else but concentrate on the positive, if you can!

I will now turn on my positive and healing thoughts beam to you and await that type of result on Monday.

Thanks so much for the hug Gemini. I've cried so much since yesterday that my eyes hurt. I really feel paralyzed with fear. I'm not sure how I'm going to get through the next few days. I don't think we'll have results until Thursday. And if they're bad how I'll get through that. I'd love to think that I'm like my mom, but she always had really dense breasts which is what led to biopsies. I on the other hand do not have particularly dense breasts but have an area of increased density on one breast over previous years. I'm so scared.
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


icelandgirl Proficient
icelandgirl
Posted
  • Author

We called it the hurry up and wait process...every step seemed like we had to wait just another ten days. I don't think you'll have to wait more than a few days for this one. I hope not.

Hugs.

Thanks as always for the hugs and support, Lisa. I really need it. Struggling with emotions and fear. Ugh.
icelandgirl Proficient
icelandgirl
Posted
  • Author

Hey all...I had my biopsy Monday...got a call this morning that everything was benign. I can't even explain the relief and gratitude I feel. Thank you all for your support.

GottaSki Mentor
GottaSki
Posted

Hey all...I had my biopsy Monday...got a call this morning that everything was benign. I can't even explain the relief and gratitude I feel. Thank you all for your support.

 

Great News!

 

I don't wish you another scare, but as with your Mom...this may not be the last lump or bump that needs to be investigated.  The first one was really scary for my sis and others I know with this issue... now it's.....oh well, another lump.  Just always investigate them!

 

Thanks for sharing the good report :)

SMRI Collaborator
SMRI
Posted

FANTASTIC NEWS!!!!!!!!!!!!!!!!!!

Gemini Experienced
Gemini
Posted

I am doing the happy dance for you, icelandgirl!!!!!!!   :D   Just remember...no gluten, no cancah and another of my favorites......what doesn't kill you only makes you stronger!

With all of your issues with celiac and this, you must be superhuman by now..... ;)

icelandgirl Proficient
icelandgirl
Posted
  • Author

Great News!

 

I don't wish you another scare, but as with your Mom...this may not be the last lump or bump that needs to be investigated.  The first one was really scary for my sis and others I know with this issue... now it's.....oh well, another lump.  Just always investigate them!

 

Thanks for sharing the good report :)

I know...it could happen again.  I hope not...but I know.  I'm so happy to share something good.  :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


icelandgirl Proficient
icelandgirl
Posted
  • Author

FANTASTIC NEWS!!!!!!!!!!!!!!!!!!

Thank you!!!!!

icelandgirl Proficient
icelandgirl
Posted
  • Author

I am doing the happy dance for you, icelandgirl!!!!!!!   :D   Just remember...no gluten, no cancah and another of my favorites......what doesn't kill you only makes you stronger!

With all of your issues with celiac and this, you must be superhuman by now..... ;)

LOL Gemini!  I have no idea what you look like, but I'm trying to picture this happy dance anyway.  :P   Thank you so much!  It feels so good.

Gemini Experienced
Gemini
Posted

I know how you feel.  Years ago, pre-celiac diagnosis, I kept getting canker sores, which is common for celiac people.  I also have Sjogren's so that may have contributed to the problem also.  Well....I had one that was not healing and I am usually a fast healer.  My dentist freaked out at about the 3 month mark and sent me to an oral surgeon because, of course, they wanted to biopsy it for cancer.  I was a nervous wreck, to put it mildly.  I had to wait about a week to get in on such short term notice and this oral surgeon ended up not doing a biopsy because he insisted it was not cancer.  He called it something else and said he saw this type of thing from time to time and it was never cancer.  The relief I felt......well, you know!  Turns out, I still had a lot of trouble with canker sores until I was diagnosed with celiac.  After about 3 months, I never, ever got another canker sore again.

And to think so many doctors blame them on a "virus".

 

Go ahead...have a little red wine tonight to celebrate!!!!!  Just a little....... :)

icelandgirl Proficient
icelandgirl
Posted
  • Author

Do you think celiac causes or contributes to abnormal growths?  Whether it's canker sores or like what I've had this year uterine polyps, gallbladder polyps, etc.  Just wondering.

 

I will celebrate for sure!  

kareng Grand Master
kareng
Posted

Great news!

RMJ Mentor
RMJ
Posted

YES!!! Great news. :)

Gemini Experienced
Gemini
Posted

Do you think celiac causes or contributes to abnormal growths?  Whether it's canker sores or like what I've had this year uterine polyps, gallbladder polyps, etc.  Just wondering.

 

I will celebrate for sure!  

I think it could and the reason could just be out of control inflammation.  Canker sores would be more obvious because your mouth is the start of the digestive tract.  But most illnesses start with inflammation so there could be a possiblity of it causing many other things.  I doubt there would be any studies done on it, though.  There is no money in Celiac Disease for doctors so we don't get much attention as far as research goes......only to come up with a stupid pill so people won't have to follow the diet.  I'd rather them study the link between associated conditions and a cure for those!  Sjogren's Syndrome can be a b%$@#......I would love it if I had normal moisture in my eyes and mouth.  :(

You don't appreciate these things until you lose them.......

GottaSki Mentor
GottaSki
Posted

You don't appreciate these things until you lose them.......

 

No truer words.

 

Hugs.

icelandgirl Proficient
icelandgirl
Posted
  • Author

I completely agree Gemini and Lisa...

dilettantesteph Collaborator
dilettantesteph
Posted

Great news.  Thanks for sharing.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      IBS-D vs Celiac

      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    2. trents
      - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      how much gluten do I need to eat before blood tests?

      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in...
    3. SilkieFairy
      - SilkieFairy posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      IBS-D vs Celiac

      After the birth of my daughter nearly 6 years ago, my stools changed. They became thin if they happened to be solid (which was rare) but most of the time it was Bristol #6 (very loose and 6-8x a day). I was on various medications and put it down to that. A few years later I went on this strict "fruit and meat" diet where I just ate meat, fruit, and squash...
    4. catnapt
      - catnapt posted a topic in Related Issues & Disorders
      0

      anyone here diagnosed with a PARAthyroid disorder? (NOT the thyroid) the calcium controlling glands

      learned I had a high PTH level in 2022 suspected to be due to low vit D got my vit D level up a bit but still have high PTH I am 70 yrs old (today in fact) I am looking for someone who also has hyperparathyroidism that might be caused by malabsorption
    5. catnapt
      - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      how much gluten do I need to eat before blood tests?

      I am on day 13 of eating gluten and have decided to have the celiac panel done tomorrow instead of Wed. (and instead of extending it a few more weeks) because I am SO incredibly sick. I have almost no appetite and am not able to consume the required daily intake of calcium to try to keep up with the loss of calcium from the high parathyroid hormone...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,322
    • Most Online (within 30 mins)
      7,748
    James Minton
    Newest Member
    James Minton
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • trents
      IBS-D vs Celiac

      By trents · Posted

      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in hospitals or institutional care and I'm guessing your physician would be willing to grant you a diagnosis of gluten sensitivity (NCGS) even if your celiac testing comes up negative. Also, you need to be aware that oats (even gluten free oats) is a common cross reactor in the celiac community. Oat protein (avenin) is similar to gluten. You might want to look at some other gluten free hot  breakfast cereal alternatives.
    • SilkieFairy
      IBS-D vs Celiac

      By SilkieFairy · Posted

      After the birth of my daughter nearly 6 years ago, my stools changed. They became thin if they happened to be solid (which was rare) but most of the time it was Bristol #6 (very loose and 6-8x a day). I was on various medications and put it down to that. A few years later I went on this strict "fruit and meat" diet where I just ate meat, fruit, and squash vegetables. I noticed my stools were suddenly formed, if a bit narrow. I knew then that the diarrhea was probably food related not medication related. I tried following the fodmap diet but honestly it was just too complicated, I just lived with pooping 8x a day and wondering how I'd ever get and keep a job once my children were in school.  This past December I got my yearly bloodwork and my triglycerides were high. I looked into Dr. William Davis (wheat belly author) and he recommended going off wheat and other grains. This is the first time in my life I was reading labels to make sure there was no wheat. Within 2 weeks, not only were my stools formed and firm but I was only pooping twice a day, beautiful formed Bristol #4.  Dr. Davis allows some legumes, so I went ahead and added red lentils and beans. Nervous that the diarrhea would come back if I had IBS-D. Not only did it not come back, it just made my stools even bigger and beautiful. Still formed just with a lot more width and bulk. I've also been eating a lot of plant food like tofu, mushrooms, bell peppers, hummus etc which I thought was the cause of my diarrhea before and still, my stools are formed. In January I ran a genetics test because I knew you had to have the genes for celiac. The report came back with  DQ 2.2 plus other markers that I guess are necessary in order for it to be possible to have celiac. Apparently DQ 2.2 is the "rarer" kind but based on my report it's genetically possible for me to have celiac.  I know the next step is to bring gluten back so I can get testing but I am just not wanting to do that. After suffering with diarrhea for years I can't bring myself to do it right now. So that is where I am!   
    • catnapt
      anyone here diagnosed with a PARAthyroid disorder? (NOT the thyroid) the calcium controlling glands

      By catnapt · Posted

      learned I had a high PTH level in 2022 suspected to be due to low vit D  got my vit D level up a bit but still have high PTH   I am 70 yrs old (today in fact) I am looking for someone who also has hyperparathyroidism that might be caused by malabsorption    
    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      I am on day 13 of eating gluten  and have decided to have the celiac panel done tomorrow instead of Wed. (and instead of extending it a few more weeks) because I am SO incredibly sick. I have almost no appetite and am not able to consume the required daily intake of calcium to try to keep up with the loss of calcium from the high parathyroid hormone and/or the renal calcium leak.    I have spent the past 15 years working hard to improve my health. I lost 50lbs, got off handfuls of medications, lowered my cholesterol to enviable levels, and in spite of having end stage osteoarthritis in both knees, with a good diet and keeping active I have NO pain in those joints- til now.  Almost all of my joints hurt now I feel like someone has repeatedly punched me all over my torso- even my ribs hurt- I have nausea, gas, bloating, headache, mood swings, irritability, horrid flatulence (afraid to leave the house or be in any enclosed spaces with other people- the smell would knock them off their feet) I was so sure that I wanted a firm diagnosis but now- I'm asking myself is THIS worth it? esp over the past 2 yrs I have been feeling better and better the more I adjusted my diet to exclude highly refined grains and processed foods. I didn't purposely avoid gluten, but it just happened that not eating gluten has made me feel better.   I don't know what I would have to gain by getting a definitive diagnosis. I think possibly the only advantage to a DX would be that I could insist on gluten-free foods in settings where I am unable to have access to foods of my choice (hospital, rehab, nursing home)  and maybe having a medical reason to see a dietician?   please let me know if it's reasonable to just go back to the way I was eating.  Actually I do plan to buy certified gluten-free oats as that is the only grain I consume (and really like) so there will be some minor tweaks I hope and pray that I heal quickly from any possible damage that may have been done from 13 days of eating gluten.    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.