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Suppliment Cocktail?

kingman

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kingman Rookie
kingman
Posted

Since malabsorption is such a huge problem for us, is there a suppliment cocktail available to help replenish our deficiencies?

Maybe one complete product?

I have been looking but many of the gluten free suppliments contain other allergens among other problems.

I would love some help on this.

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SMRI Collaborator
SMRI
Posted

I was prescribed a regular multivitamin and B-12.  I got the multiitamin at Sam's club in a huge bottle, gluten-free, for $12 or so.  The B-12 is prescription via my pharmacy.  All of my numbers were in the normal range, but some were at the low end of normal so they want me taking these.  I'm not very good about remembering to take them because I have to take them 4+ hours after taking my thyroid medication...

GF Lover Rising Star
GF Lover
Posted

Hi Kingman and Welcome.

 

You should have testing for deficencies before any supplimentation.  There are many Celiacs that do not have these problems.  Taking a daily multi-vitamin is not a problem.

 

Colleen

nvsmom Community Regular
nvsmom
Posted

Ditto Colleen. I am an odd celiac who is high in Ca and B12. My only low vitamin was A and D was a low normal, but I blame that on being Canadian.  ;)

 

Get your nutrient levels tested.  Good ones to check are Cu, Ca, Mg, K, Fe, ferritin, B12, zinc, D, A and... I'm forgetting something. Hmm.

 

If you do need to supplement, sublingual or liquid vitamins are a good way to go.  Sometimes vitamin shots are needed if the vits don't help (I've had A shots before).

 

Best wishes.

kingman Rookie
kingman
Posted
  • Author

I had low D, B, folic acid for sure. Those were tested.

GF Lover Rising Star
GF Lover
Posted

I had low D, B, folic acid for sure. Those were tested.

 

You should go with your Doctor's recommendation on how much to supplement.  Levels are different for different people.

 

Colleen

kingman Rookie
kingman
Posted
  • Author

Doctors know little about nutrition though. Including mine.

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GottaSki Mentor
GottaSki
Posted

A good celiac doctor will test and advise their newly diagnosed patients. If you don't have one of these, then only supplement those you know to be low. Be sure to get retested at six months and a year to monitor improvement. As you heal you will absorb more nutrients ... Eventually you should be able to get sufficient nutrients from your food.

Took about a year and a half for my deficiencies to improve...but all my nutrients have remained in the upper normal range since then....without supplementation.

Edited....18 months I had improved numbers but they weren't great until 2.5 years which is when I stopped supplementing everything except calcium. Eventually stopped calcium supplement for other reasons...will return to calcium supplementation at some point.

IrishHeart Veteran
IrishHeart
Posted

I had low D, B, folic acid for sure. Those were tested.

 

but, which B?

 

B-12, B6? B1? B3? B5? B7?...... because there are eight  B vitamins, including Folate which is B9.

 

Country Life makes certified G F vitamins. 

 

depending on how low your levels were, a good Multi B complex, 2000Ius of D3 and  some folic acid should do it however,

you will need to be retested in 3 months to see if the levels come up.

 

Unless you are talking about B-12, in which case, the doctor who ran the test should tell you what form and what amount

you should take. 

 

But again, this depends on what your levels were. 

 

I had to supplement folic acid, B-12, D and a few others, but once they came up (it took a few months) , my doctor told me to stop and to get my nutrients and vitamins from food. My last panels --levels are great. 

kingman Rookie
kingman
Posted
  • Author

Sorry B12

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    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
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    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
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