Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Strange Question But I'm Curious...

Sbwife14

Recommended Posts

Sbwife14 Rookie
Sbwife14
Posted

I'm new to gluten intolerance. Still adjusting. I've noticed my upper abdomen seems a bit misshapen... Kind of pokes out? I have no gallbladder. A patient who has celiac told me that because of the damage to her gut her stomach would never go back to the way it was.....seems odd but it bothers me. And times that I have an attack that area seems to be tender and feels very swollen and bloated. Does anyone have any insight on this? I apologize if there is a thread already... Thanks.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


1desperateladysaved Proficient
1desperateladysaved
Posted

My abdomen grew unusually large when I was sick.  I was mistaken for pregnant several times.  My tummy remained bloated until I removed all foods I did not tolerate.

w8in4dave Community Regular
w8in4dave
Posted

My gut is still big. Even tho I lost 40 lbs going gluten-free. I think it's because of trace amounts of Intolerance foods. I think I need to go on a gluten-free. Auto Immune diet.  <--- I think thats right. Because trace amounts of things do bother me. Corn, soy , Lactose , I know they are intolerances so I sometimes will let it slide if it's in aintolerance product but at the end of a ingredient list. I'll think well it's gluten free and only has a lil corn in it so ok yea I'll try it! Wrong Idea for me! My gut bloats up and I get gassy! But next morning i'm good! I do not have a gall bladder and my gut is a lil miss shaped but theres worse things. 

cyclinglady Grand Master
cyclinglady
Posted

I have the same issues. I am thin, but you can see the difference (just me). No worries. It is probably related to inflammation. Mine has improved greatly.

I see you did not get good medical support and did not get a proper diagnosis. I would suggest you read the newbie thread and learn about cross contamination.

https://www.celiac.com/forums/topic/91878-newbie-info-101/

It takes a long time to heal for many (a few years), so be patient!

GottaSki Mentor
GottaSki
Posted

Mine swells and recedes along with flares and healthiest days...sometimes hours.

I do have many other intolerances and autoimmune issues, so you will likely have your tummy area much less swollen as you heal and your time gluten-free increases....it can take a long time, but it will happen.

Sbwife14 Rookie
Sbwife14
Posted
  • Author

Thanks guys. I did not have much medical support however today my PCP is ordering a gammit of tests and I am thankful. I don't think anyone else really notices but of course I think everybody notices. Finally I hope to get some definitive answers! When I have attacks my upper abdomen swells and sometimes gets hard....gassy...bad stomach pains....I will check out the newbie feed. I have a lot yet to learn!

BarryC Collaborator
BarryC
Posted

I am a guy with a huge bloated belly, looks like I am 9 months pregnant. What annoys me is that there is no fat and I actually have a sixpack. Everyone probably assumes I am a heavy drinker.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Sbwife14 Rookie
Sbwife14
Posted
  • Author

I'm having a lot of trouble losing weight. I'm assuming it's because I'm new to this and my body hasn't had time to adjust and heal. When I do lose a few pounds my belly still looks swollen...it's discouraging so I'm wondering if it will always be that way?

GottaSki Mentor
GottaSki
Posted

I'm having a lot of trouble losing weight. I'm assuming it's because I'm new to this and my body hasn't had time to adjust and heal. When I do lose a few pounds my belly still looks swollen...it's discouraging so I'm wondering if it will always be that way?

Welcome SB!

It can take a while. How long ago were you diagnosed?

What age were you when diagnosed?

How long did you have symptoms before diagnosis?

Sorry for 20 questions..but details help folks here lend their knowledge.

Hang in there :)

Sbwife14 Rookie
Sbwife14
Posted
  • Author

Thanks, GottaSki, for the welcome! I don't have a firm diagnosis yet. I finally found a doctor that is as convinced as I am that I have a gluten intolerance and is working on scheduling a biopsy for me. My labs were negative. Here is my story....I had my gallbladder removed 2 years ago. About 6 months later I began having attacks....bloating, gas, excruciating pain that last as many as 7 days, easy bruising, foggy headed, tired all the time, migraines, low back pain and severe GERD...to the point of vomiting bile and constipation. These attacks would wake me up and keep me from sleeping and eating. I fasted my way thru it. These attacks happened over 7 months until I finally talked to my doctor. He did an upper GI AND EGD which showed GERD and gastritis. I followed anti reflux diet and taking two different prescribed reflux medicine sand GERD was no better. He then did a stomach scope and said GERD was worse and gastritis was worse and increased my reflux meds. It continued so I referred myself to a GI specialist who asked me about celiac. I hadn't heard of it. He ran labs and they were negative. I started looking into it on my own because he offered me no other advice...only GI cocktail which did nothing and I kept having attacks. I removed gluten entirely from my diet and within one week I couldn't believe the difference!! I "tested" gluten and ate 3 pieces of pizza and had the worst migraine ever!!! Continued eating sandwiches and other gluten foods and all of my symptoms worsened. I tried this several times to be sure. I changed PCP and told her my story and she def believes I have an intolerance. It's been hard for me so I've not been 100% at all....at all???and this past weekend I had a bad attack. I went to see her Monday and she placed me on gluten-free clear liquid diet only for a while, ordering ct abdomen, repeat EGD, and a colonoscopy with biopsy to check for celiac officially. Because my pain is around my pancreas and includes my low back she is checking this out as well. I am 42 years old. I never had GI issues until within the past 2 years. I've been dealing with this for that long but only made this discovery within the past 6 months. Until it actually saw the GI doc I had no idea what these attacks were. What was so disappointing to me was I saw a specialist he drew labs, said they were negative and offered nothing else...no trial, no thoughts of what else we could do to figure this out just GI cocktail and see you in three months and $168 of my dollars...I was very discouraged.

I logged onto this forum to also father knowledge and learn and cope with this. It's a huge change for me and a hard adjustment for me.

w8in4dave Community Regular
w8in4dave
Posted

I am a guy with a huge bloated belly, looks like I am 9 months pregnant. What annoys me is that there is no fat and I actually have a sixpack. Everyone probably assumes I am a heavy drinker.

I think it's called a wheat belly, and yes sometimes a beer belly. But really whats beer made with? Lol :) 

Sbwife14 Rookie
Sbwife14
Posted
  • Author

Very, very true! Hadn't really thought about it that way.

GottaSki Mentor
GottaSki
Posted

Give this a good read....

https://www.celiac.com/forums/topic/91878-newbie-info-101/

Sbwife14 Rookie
Sbwife14
Posted
  • Author

Thanks. I often refer to the link you posted. Even though I am nit officially diagnosed my doctor and I are convinced I have an intolerance! She's trying to get everything lined up to hopefully have an officialt diagnosis. Question......do I have to consume gluten again I. Order to get positive results?? I'm a little unclear about that....

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,945
    • Most Online (within 30 mins)
      7,748
    Miyasato
    Newest Member
    Miyasato
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Mari
      My only proof

      By Mari · Posted

      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but another, tissue transaminasewas normal. Itdid show I was  allergic to cows milk and I think hot peppers. I immediately went gluten free but did not go in for an endoscopy. I found an online lab online that would do the test to show if I had a main celiac gene (enterolab.com). The report came back that I had inherited a main celiac gene, DQ8, from one parent and a D!6 from the other parent. That combination is knows to sym[tons of celiac worse than just inheriting one main celiac gene. With my version of celiac disease I was mostly constipated but after going gluten-free I would have diarrhea the few times I was glutened either by cross contamination or eating some food containing gluten. I have stayed gluten-free for almost 20 years now and knew within a few days that it was right for me although my recovery has been slow.   When I go to see a  medical provide and tell them I have celiacs they don't believe me. The same when I tell them that I carry a main celiac gene, the DQ8. It is only when I tell them that I get diarrhea after eating gluten that they realize that I might have celiac disease. Then they will order th Vitamin B12 and D3 that I need to monitor as my B12 levels can go down very fast if I'm not taking enough of it. Medical providers haven't been much help in my recovery. They are not well trained in this problem. I really hope this helps ypu. Take care.      
    • knitty kitty
      Does anyone here also have Afib

      By knitty kitty · Posted

      Fascinating.
    • DebJ14
      Does anyone here also have Afib

      By DebJ14 · Posted

    • knitty kitty
      Does anyone here also have Afib

      By knitty kitty · Posted

      @DebJ14, You said "husband has low platelets, bruises easily and gets bloody noses just from Fish Oil  He suggested he take Black Cumin Seed Oil for inflammation.  He discovered that by taking the Black Seed oil, he can eat carbs and not go into A Fib, since it does such a good job of reducing inflammation."   I don't think black seed oil is lowering inflammation.  It's lowering blood glucose levels. Black cumin seed lowers blood glucose levels.  There's a connection between high blood glucose levels and Afib.    Has your husband been checked for diabetes?   Must Read: Associations of high-normal blood pressure and impaired fasting glucose with atrial fibrillation https://pubmed.ncbi.nlm.nih.gov/36750354/  
    • knitty kitty
      4.5 years into diagnosis, eating gluten-free and still struggling: would love support, tips, & stories

      By knitty kitty · Posted

      Healthy Omega Three fats.  Olive oil or flaxseed oil, oily fish, fatty cuts of meat.   Our bodies run much better on burning fats as fuel.  Diets based on carbohydrates require an increased amount of thiamine to process the carbs into fuel for the body.  Unfortunately, thiamine mononitrate is used to enrich rice.  Thiamine mononitrate is relatively unusable in the body.  So a high carb diet can further decrease thiamine stores in the body.  Insufficient thiamine in the body causes the body to burn body fat and muscle for fuel, so weight loss and muscle wasting occurs.  Those extra carbohydrates can lead to Candida (often confused with mold toxicity) and SIBO (Small Intestinal Bacterial Overgrowth).   Losing weight quickly is a symptom of thiamine insufficiency.  Muscle wasting is a symptom of thiamine insufficiency.  I lost sixty pounds in a month.   Having difficulty putting weight on and keeping it on is a symptom of thiamine insufficiency.   The AIP diet works because it eliminates all grains and grasses, rice, quinoa, all the carbs.  Without the carbs, the Candida and SIBO get starved and die off.  Easy way to change your microbiome is to change what you feed it.  With the rowdy neighbors gone, the intestine can heal and absorb more nutrients.   Supplementing with essential vitamins and minerals is beneficial.  Talk to your doctor and nutritionist.  Benfotiamine is a form of thiamine that promotes intestinal healing.  The eight B vitamins are water soluble, so if you don't need them, they can be gotten rid of easily.   Night shades are excluded on the AIP diet.  Potatoes, tomatoes, peppers and eggplant are not allowed on the AIP diet.  They contain alkaloids that promote "a leaky gut".  Benfotiamine can help here. Sweet potatoes are avoided because they contain thiaminases, chemicals that break thiamine so that the body cannot use it.   The AIP diet has helped me.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.