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Goodbye

whtswrongwithme32

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whtswrongwithme32 Apprentice
whtswrongwithme32
Posted

So, They found out the root behind my issues. Man, do I wish it was celiac now...although I'm sure it is frustrating for Grandpa and all of you please do not forget to count your blessings. There are worse things than celiac out there. 

                                                                           God Bless,

                                                                                          me

p.s. thanks for being here to listen and enjoy your lifestyles!

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BlessedMommy Rising Star
BlessedMommy
Posted

I'm glad that you have an answer, but sorry that the answer frustrates you. Best wishes in healing!

mamaw Community Regular
mamaw
Posted

Good luck  with  you  true DX"S  and  YES  there  are  so many horrible  diseases much  worse  than celiac  & a diet lifestyle  change.... blessings

bartfull Rising Star
bartfull
Posted

So sorry to hear that. But before you go you should know that untreated celiac can lead to lots of other nasties, from RA to cancer. It might just be (given your family history) that you ALSO have celiac, and perhaps a gluten-free diet will help in your fight with this other problem. Or at least make you feel a little better. (((((HUGS)))))

w8in4dave Community Regular
w8in4dave
Posted

So sorry to see you go. Wish all the best! Bless you and your family. 

whtswrongwithme32 Apprentice
whtswrongwithme32
Posted
  • Author

Thanks guys. I know bartfull. I found myself wondering about that. Really enjoy life, no matter what you eat! It's too short, precious, and unpredictable. If you don't have faith, find it you may need it someday. Blessings

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    • thejayland10
      TTG IgA and IGA elevated mildy

      By thejayland10 · Posted

      That is a very good point I do not know if they truly ever went down. With my nutrient levels all being good, CBC, metabolic panel I assumed everything was fine over the years. Now Im worried this is refractory celiac or something else 
    • RMJ
      TTG IgA and IGA elevated mildy

      By RMJ · Posted

      I don’t know how common it is, but it happens.  Total IgA going up is not necessarily celiac related.  The body can make IgA antibodies against all sort of things.   But if I understand correctly that until recently you haven’t had a celiac blood test since diagnosis, how do you know that your recent blood tests are a mild rise, vs never going down to the normal range? That also can happen, although not too common. Some people with celiac disease do react even to purity protocol certified gluten free oats. Removing oats from your diet for a few months and retesting is probably a good idea.
    • thejayland10
      TTG IgA and IGA elevated mildy

      By thejayland10 · Posted

      interesting I did not know that was that common or could take that long.  When I was diagnosed 15 yrs ago I was told just follow gluten-free diet and follow up with primary care doctor (who never checked celiac panel again). I felt way better and all the major symptoms went away. It wasn't until recently at 25 (14 yrs after diagnosis) that I thought to follow up with a gastro doctor who then did a celiac panel and noted those minor elevations 3 months ago then I got them checked again by another doctor the other week and were showing roughly the same thing.  I am very strict with what I eat and dieitican was maybe thinking it could be oat flour. I do eat a fair amount of processed food but I will not touch anything unless it is certified gluten free.  Do you see this pretty commonly with others? Having mild rises in TTG IGA and IGA who have been on gluten-free diet for years? 
    • RMJ
      TTG IgA and IGA elevated mildy

      By RMJ · Posted

      Do you have any other results from either of the two labs where you’ve been tested recently?  If so, are the newest results from that lab elevated over previous results? It took me 5 years to get all of my antibodies into the normal range. Then 3 years later one went up into the positive range.  I realized that I had started baking with a different brand of gluten free flour.  When I stopped using that flour the level went back to normal.  Has something changed in your diet, environment, activities, medications or other areas where you could possibly be exposed to gluten? 
    • thejayland10
      TTG IgA and IGA elevated mildy

      By thejayland10 · Posted

      Thank you for the clarifcation, how can I get to the bottom of this as to why they may be elevated even on a super strict gluten-free diet? 
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