Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New Celiac


lil-oly

Recommended Posts

lil-oly Newbie

I am so new to all this. I only a week ago was diagnosed celiac. I ate some glutenfree noodles today almost immediately had stomach cramps. I now have heart burn and belly bloated, so discouraging I was so happy for the first time in my life I had a semiflat belly. :( I haven't eating many grains, ate quinia the other day and had mild tummy pain. I feel like such a wussy!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



LauraTX Rising Star

Welcome to the forum!
 

I made your reply into a new post, so you can get more personalized conversation.  What brand of noodles did you eat?  It can take a long time for things to calm down after going gluten-free, so just stick to it and things should continue to improve overall.  Feel free to post any questions you need help with!

nvsmom Community Regular

Welcome to the board.  :)

 

I am so new to all this. I only a week ago was diagnosed celiac. I ate some glutenfree noodles today almost immediately had stomach cramps. I now have heart burn and belly bloated, so discouraging I was so happy for the first time in my life I had a semiflat belly. :( I haven't eating many grains, ate quinia the other day and had mild tummy pain. I feel like such a wussy!

 

It can take weeks or months for symptoms to really calm down even if you are eating safely gluten-free. Your belly will get flat again and start staying flat for longer periods of time.  Celiac recovery is often two steps forward and one step back - Just hang in there.

SMRI Collaborator

What else did you eat with the noodles?  Gluten is "hidden" in a lot of other products you would not expect.  What have you done to get gluten out of your diet?  It takes a while to see any real improvement with your system too.  

kareng Grand Master

Did you use the same old colander to drain them?  Its very hard to get every little hole clean from sticky noodle residue.  And what else did you eat with them?  What did you eat before them?  

 

It takes much longer than a week to heal.  It could just be a messed up GI system.

GFinDC Veteran

Welcome to the forum! :)  If you ate the noodles with soy sauce that was a likely problem.  Most soy sauce has gluten in  it.  But it really does take some time for things to settle down in our GI tracts after going gluten-free.  You may find you react to many foods for a while that may or may not have gluten in them.  It's a good idea to keep your diet very simple for a while to lessen the chance of glutenings.  Then slowly branch out and add more foods one at a time.

Cara in Boston Enthusiast

Yes, I'm guessing that you are still getting gluten from cross-contamination (cooking pot, colander, utensils, etc.)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

    2. - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

    3. - Paulaannefthimiou posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

    4. - jenniber replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

    5. - trents replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      High TTG-IgG and Normal TTG-IgA

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,849
    • Most Online (within 30 mins)
      7,748

    Jadelucia
    Newest Member
    Jadelucia
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Are Bobresmill gluten free oats ok for sensitive celiacs?
    • jenniber
      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
    • trents
      Let me suggest an adjustment to your terminology. "Celiac disease" and "gluten intolerance" are the same. The other gluten disorder you refer to is NCGS (Non Celiac Gluten Sensitivity) which is often referred to as being "gluten sensitive". Having said that, the reality is there is still much inconsistency in how people use these terms. Since celiac disease does damage to the small bowel lining it often results in nutritional deficiencies such as anemia. NCGS does not damage the small bowel lining so your history of anemia may suggest you have celiac disease as opposed to NCGS. But either way, a gluten-free diet is in order. NCGS can cause bodily damage in other ways, particularly to neurological systems.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.